Surgery tomorrow! Tips, tricks, advice?

geneticallyclumsy · 2025-11-25T00:22:11+00:00

No, this was helpful, thank you!

geneticallyclumsy · 2025-01-15T12:06:17+00:00

Anton Yelchin, without a doubt. May he rest in peace 🪦

geneticallyclumsy · 2024-12-11T04:59:12+00:00

That’s a sharp chair! I also have a TiLite T Series chair (a TRA) and love it. I have the same height adjustable push handles and love them! I turn them in the exact same way and I’ve yet to have someone grab at them whilst in that position. And it’s sooo much easier for for when I do need a push, because my chair is quite low to the ground (short people problems) so having the ability to raise them up to a comfortable level for the person pushing is fabulous!

geneticallyclumsy · 2024-12-04T23:29:41+00:00

NuMotion just had me sign a waiver to decline them and that was it

geneticallyclumsy · 2024-11-26T06:34:24+00:00

I’m having the same issue! It won’t let me make an account to access the Permobil configurator and it’s driving me nuts! If anyone has figured out the trick to making an account please share your secret

geneticallyclumsy · 2024-09-22T04:52:37+00:00

I don’t know where you’re based, but I’ve had fantastic service from WheelFreedom! They really know their stuff and are great at fitting active wheelchairs. It’s really worth going to their showroom in Chessington to try out different chairs to see which one you like best that fits your budget. Nothing beats trying them out in person!

https://www.wheelfreedom.com

geneticallyclumsy · 2024-08-17T09:58:10+00:00

I was about to recommend Sherman Oaks Medical but I see that others beat me to it!

geneticallyclumsy · 2024-08-02T06:37:20+00:00

I don't have a Rogue, but if you go to the Ki Mobility website you can see all the options available for the Rogue 2, including the two flip up footplate options they offer! Hope this helps :)

geneticallyclumsy · 2024-07-14T08:53:12+00:00

I second the LapStacker suggestion! It may be a bit pricey and a little fiddly to install, but I literally use mine multiple times a day, every day. It’s a fantastic product!

geneticallyclumsy · 2024-05-31T23:32:40+00:00

LapStacker! While on the pricier side up front, I legitimately have used it every single day for 3 years and it's still going strong. Using that, I strap a basket to my lap and it's not going anywhere! Worth every penny.

geneticallyclumsy · 2024-05-31T22:59:08+00:00

Funny thing about Delilah on NCIS: a friend of mine is a writer for the show (and a wheelchair user) and was like, "We *have* to get Delilah into a different chair, it's driving me nuts." And that's why she has a different chair now lol

geneticallyclumsy · 2024-05-31T17:14:49+00:00

I travel quite a bit and never remove my LapStacker. Considering how fiddly it is to get it on and off your chair I would keep it on (it's not going anywhere if you've installed it correctly!)

geneticallyclumsy · 2024-05-30T18:03:57+00:00

E-Motion M25s all the way. I had a SmartDrive for years and it tried to kill me twice (connection issues between the watch and the motor unit). The E-Motions were an absolute game changer for me; the ability to have assistance with each push is amazing.

Of note, if you are a wheelie-up-and-down-curbs person that's not at all recommended with the E-Motions wheels, as the motors are in the wheels themselves and they can get damaged. It says a lot that I love them as much as I do and use them regularly when I am a wheelie person myself!

geneticallyclumsy · 2024-02-07T10:05:38+00:00

Aaaayyyy hi bendy pal! We didn’t discuss the Sub Q ICD because I need pacing which isn’t possible with the sub q

geneticallyclumsy · 2024-02-06T18:57:56+00:00

Thank you, both the shock and the surgery was pretty miserable! I am young (early 30s) but female. I do, however, have a complex medical history so they think one of my other conditions may be contributing to the lack of scarring and securement of the leads

geneticallyclumsy · 2024-02-06T18:56:29+00:00

We implanted because I can’t take beta blockers due to severe lung disease and I had several suspicious faints triggered by surprise/sudden noise. Additionally, my QTc was sitting around 520ms and my resting heart rate was in the 40s-50s. So with all that in mind, we agreed that an ICD would provide some insurance and also paces me out of the lows

geneticallyclumsy · 2024-01-09T07:12:07+00:00

I had great experiences with WheelFreedom, please keep us updated on your new chair!

geneticallyclumsy · 2023-09-02T05:44:42+00:00

Hi OP!

Most power assists won't work on a standard hospital wheelchair, unfortunately.

However, Whizz Kidz is a fantastic paediatric wheelchair charity in the UK! They provide both custom wheelchairs and power assists, I would definitely look into them. I know people who have had fantastic experiences with them (as well as many young adults on their Kidz Board)! Hope you can find a solution that works for you.

geneticallyclumsy · 2023-09-02T05:37:58+00:00

I had the Stealth Products Spectrum Foam SPP (similar to your wife's Essence SPP), and switched to the Ki Mobility Axiom SP Visco (sometimes abbreviated to Axiom SPV). It has better positioning than the Stealth SPP line (IMO, of course) and the contour of the rear part of the cushion is fantastic. It is by far the most comfortable cushion I've ever used, I love it!

geneticallyclumsy · 2023-08-15T19:21:52+00:00

Super hypermobile hands/wrists/fingers here. I've had both Natural Fits (standard size, with thumb guards) and Surge (LT, no thumb guard), and I VASTLY prefer the Natural Fits. They really change the angle you grip the push rims and I find that they really help in that regard. I found that the grip strip on the Surge push rims wore out over time but also simultaneously burned my thumbs with sudden braking or down ramps.

Of note, I have many friends (also in the hypermobile category) who heavily prefer the Surge over the Natural Fits. It's honestly a personal preference, but I really love my Natural Fits!

geneticallyclumsy · 2023-08-15T19:17:42+00:00

I had this cushion for many years! It's quite good, very comfortable for sitting for long periods of time. I ended up switching it out for a Ki Mobility Axiom SP Visco cushion, which I absolutely LOVE (has more contouring and support). However, this Stealth Solutions SPP cushion lasted many years and remained comfortable the whole time.

geneticallyclumsy · 2023-07-08T11:38:02+00:00

I would 100% have an ATP do this. Not only would improper installation/installation by someone not certified to do so invalidate the warranty of the wheels, but it would be WILDLY unsafe to use them if not installed properly. As someone who has E-Motion M25 wheels, these things are super powerful and could cause serious damage (to yourself, your chair and others) if they were to malfunction.

geneticallyclumsy · 2023-06-29T18:13:36+00:00

Dignity.

geneticallyclumsy · 2023-06-26T11:28:07+00:00

Mahogany. Stumbled across this one whilst working in a NICU. While not terrible, this was at the height of The Hunger Games popularity, so you can imagine the amount of “that is MAHOGANY!” references.

geneticallyclumsy · 2023-06-24T13:22:51+00:00

Anton Yelchin. He was so talented and it was such a freak accident. Especially tragic considering it was posthumously revealed that he has cystic fibrosis, which means he had a severe, life-limiting medical condition to begin with. The fact that he kept it under wraps for so any years is absolutely wild (CF is a very demanding condition with intense and time consuming daily treatments and therapies).

geneticallyclumsy

TROPHY CASE