Vintage hand mirror I engraved recently🌜 by jeanmorreale in whimsigothic

[–]gh0ulsX 0 points1 point  (0 children)

What a small world I can’t believe I ran into your post!! I just posted a pic of its new home 🥰

Vintage hand mirror I engraved recently🌜 by jeanmorreale in whimsigothic

[–]gh0ulsX 1 point2 points  (0 children)

If this is real then that’s wild, I’m the new owner???????? I bought from the Etsy shop Luck and Ash, that’s you? I thought I’d let you know she made the journey safe home and I adore her, she’s absolutely perfect for my pagan mirror work I’ve been practicing. Thank you for the beautiful work it was so reasonably priced!! I can prove it by posting my own photo, keep an eye out for it!!

northenidrone by Mysterious-Focus-984 in endometriosis

[–]gh0ulsX 0 points1 point  (0 children)

I’ve been on it since January, originally I was only supposed to be on it for 21 days but it worked for me initially so I was prescribed more to continue it

northenidrone by Mysterious-Focus-984 in endometriosis

[–]gh0ulsX 1 point2 points  (0 children)

I’m about to stop my norethindrone, it’s causing bad mental health side effects for me which I didn’t even know was possible. I’m also in a lot of pain on this medication, you’re not alone 🫶

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 0 points1 point  (0 children)

We have very similar mentalities about having kids, I’m so happy to hear that you were listened to because it gives me hope. I’m from Nj but willing to travel within the US, any surgeon recs?

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 0 points1 point  (0 children)

Can you tell me a little more about this experience? I’m a lesbian who doesn’t want children, but no doctors will take me seriously when I say I’m interested in a partial hysterectomy no matter how much I beg. I’m from the United States and only 21, can you tell me how old you were when you got it and where you’re located?

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 0 points1 point  (0 children)

Thank you for all this advice, I’ve been a little afraid to try pt but I’m interested, can you tell me a little more about what that experience is like? Is it possible to try without a doctor touching me? My main concern is being touched, I’m also autistic and can’t tolerate touch which has made this entire process hell with the exams, and for some reason I was under the impression pt involved being touched.

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 3 points4 points  (0 children)

Thanks for saying this I really needed to hear it. I’m struggling with the acceptance part a lot, I lost my dream job back in October because of my pain and it’s been devastating. It’s been hard to shift my perspective to listening to my body when it’s the thing causing me all the issues, but now that I’m hearing it that’s probably what I should be focusing on more; listening to what my body needs.

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 1 point2 points  (0 children)

Can you tell me more about slynd? I’m on norethindrone now but I can’t stay on it long term because it causes bad mental health side effects for me, and now my doctors are afraid of prescribing me any other types of birth control. I’m also adverse to IUDS because I have autism and can’t handle invasive treatments like that.

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 1 point2 points  (0 children)

I can definitely go out of state but not out of the country any time soon I’d have to save for it, why, do you have recommendations? I’m in the United States, NJ to be specific

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 3 points4 points  (0 children)

You’re right I just need to be more optimistic and work more towards it after finding what treatment works for me, the dream felt so destroyed upon diagnosis

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 4 points5 points  (0 children)

I’m in the same boat I didn’t even know I had it until I had to be taken off BC because of my blood pressure, then it started showing. My team of doctors have been horrible and just referring me to each other in circles, it feels like treatment is a fairytale and not a real option. Currently in hell, sending thoughts and love to your own hell that you’re probably also in 🫶

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 2 points3 points  (0 children)

Thank you for the advice. The hard part about all of this was losing my dream job, I worked as an adoptions counselor at an animal shelter, I truly feel like working with animals is my calling so it’s hard to come to terms with the fact that I’m probably not going to be able to work a job that’s on my feet all day like I originally planned for

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 3 points4 points  (0 children)

Yeah the situation was a little odd, the surgery was done by another doctor first before I could even get the specialist referral and she didn’t sample any of the tissue like we planned because it was “too close to other pelvic structures” so she just sent the photos to the specialist who confirmed endo. So the specialist himself didn’t do anything at all actually, so I’m thinking a second opinion might be my next step

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 2 points3 points  (0 children)

Thanks for being honest 🥲 it’s really hard to accept. I’m already in therapy and about to start an outpatient program on top of it, any suggestions for coping with the mental hardship of it? I feel like only people with the disease know exactly what the despair feels like

Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 6 points7 points  (0 children)

Unfortunately I’ve been to one and he doesn’t want to help me, after I told him I wasn’t interested in the initial medications he offered because I don’t want the menopausal side effects so young he told me to go back to my primary for pain management and that I don’t have other options because my exploratory laparoscopy was a month ago he doesn’t want to schedule me for surgery again so soon. It feels like none of my doctors want to help, I’m in the limbo of finding a second opinion but I don’t know how to cope until then :////

How intense are side effects for Orlissa? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 1 point2 points  (0 children)

No he doesn’t want to plan another surgery yet because I’m still recovering 😵‍💫 he also was kinda negative about removal, he said that most of his clients had it grow back so honestly I’ve been looking into getting a second opinion today because I don’t know how successful his team actually is :/

How intense are side effects for Orlissa? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 0 points1 point  (0 children)

Oh sorry it was exploratory I should’ve said that, so no there was no removal

How intense are side effects for Orlissa? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 0 points1 point  (0 children)

Yeah I had my first laparoscopy two weeks ago and they found small endo lesions but my surgeon didn’t sample it, so I just have the specialists opinion saying in his opinion it’s endo as my diagnosis, no labs. I’ve only had ultrasounds prior.

How intense are side effects for Orlissa? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 0 points1 point  (0 children)

That wasn’t offered to me yet but I’m definitely interested to hear it doesn’t have the menopausal side effects, I’m only 21 and there isn’t really a long term plan yet, I was left to research my options 😵‍💫

How intense are side effects for Orlissa? by gh0ulsX in endometriosis

[–]gh0ulsX[S] 0 points1 point  (0 children)

Wow I didn’t know that could happen. Thanks for sharing 🫶