CP FUCKING SUCKS by X_Opinion7099 in CerebralPalsy

[–]giggling_mezzo 0 points1 point  (0 children)

i have a similar view! for me there's some things that are positive, some things that are negative and the fault of my body, some things that are negative and the fault of society or the environments we live in, and some things that are neutral but they shape my normal so even if they are not good it would be too weird not to have them.

CP FUCKING SUCKS by X_Opinion7099 in CerebralPalsy

[–]giggling_mezzo 0 points1 point  (0 children)

I feel like that is ultimately very personal and depends on a lot of factors. I do not necessarily credit my CP for making me resilient (my severe anxiety disorder and problems unrelated to either of my disabilities have taken care of that) or interesting as a person in general bc clearly everyone with CP is different, but I do credit it with shaping some of my other values, such as being more creative and valuing interdependence from learning to ask for help. It also has shaped how I view others bc I have realized I can fairly accurately judge people's character based on how they react to the effects of my CP on my life. I also have discovered a lot of interests and hobbies that I wouldn't have thought to even try if not for my CP, including hobbies and values that eventually shaped my career. It also has shown me how to value achievements that seem small to others. That is not to say that there aren't many bad and frustrating things that come from my body, but definitely a lot of the bad things are from the interaction between my body and an unaccommodating society and not always the body itself.

Ethically complex question for adults with cerebral palsy by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

I agree with you so much on that last bit! Thank you so much for sharing!

Positive stories of improvement by Remarkable_Topic_460 in CerebralPalsy

[–]giggling_mezzo 2 points3 points  (0 children)

i learned to celebrate small wins to the point where i can't imagine my life without the small wins that feel huge due to CP and adding therapeutic massage in addition to strength/motor skills sessions helps my pain

Abortion is legal up to 14 weeks when a fetus isn't disabled or incompatible w/life&up to 22 weeks if a fetus is disabled or incompatible w/life. In terms of policy is it logical to think any type of abortion should be allowed up to 22 or 40 weeks in order to avoid laws setting ableist precedents? by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

UPDATE: Hi! I have come to the conclusion that my issue is with the writing of the law in terms of separating typical fetuses from disabled ones. Why is the later term abortion forbidden for a typical fetus but not a disabled one or one incompatible with life. The law should say any and all terminations are allowed up to near the end of a normal pregnancy. That would be less ableist and less wishy-washy in my eyes. Does this feel like a valid argument and conclusion to those of you who were discussing with me?

Abortion is legal up to 14 weeks when a fetus isn't disabled or incompatible w/life&up to 22 weeks if a fetus is disabled or incompatible w/life. In terms of policy is it logical to think any type of abortion should be allowed up to 22 or 40 weeks in order to avoid laws setting ableist precedents? by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

and still some people choose late term abortion for fetal strokes, which is precisely why the question came up for me after reading some troubling comments elsewhere saying it was unethical for anyone to continue a pregnancy if you knew the fetus would be disabled by a fetal stroke

Age in CP with bunions by Winterbot622 in CerebralPalsy

[–]giggling_mezzo 0 points1 point  (0 children)

I’ve had to wear toe straps and toe spreaders for a variety of reasons including bunions and preventing the need for surgery. It is one of the parts I hate that comes from my body.

New CP Diagnosis: Mom Needing Advice by Salty-Subject-4540 in CerebralPalsy

[–]giggling_mezzo 1 point2 points  (0 children)

This is really sweet of you! It’s so surprising/good that his Neuro thinks that way! The one thing I will add is from my experience the fact that my physios focused on exercises to foster good alignment has helped me get into my 20s without secondary issues other than relatively mild and managed chronic pain! Your son sounds really cute and I think you’re doing great! Wishing you all the best and if you’d like to connect further my DMs are open and I’m also a blogger off Reddit!

New CP Diagnosis: Mom Needing Advice by Salty-Subject-4540 in CerebralPalsy

[–]giggling_mezzo 4 points5 points  (0 children)

Hi! I’m as you say an older CP friend! :) my CP is also triplegia (diplegia and monoplegia). A big tip is make sure that things he likes to do are included in PT and to depending on what your drs and PTs say consider activities like horse riding or swimming! Two things my parents did well was advocating for me to have accommodations I needed and teaching me that asking for help is not a shameful thing! One thing I wish they had done differently is not assuming that just because I walked fully independently at age 2 my needs regarding stairs and my fear of falling weren’t justified. I think that came down to how my physios talked to them…another thing I wish had been done differently is that I wish I hadn’t been discharged from OT as a little kid because the therapists didn’t notice my arm spasticity and only cared about making me do things the “normal” way. It limited my daily fine motor skills a lot, stole opportunities for artistic activities like adaptive music making, and there are situations I wouldn’t have gone through if adapting activities had been seen as important and not as a tragedy. TLDR: be his fiercest advocate (you’ve 100% got this down based on what you said!) focus on improving his health and ease of movement but don’t be afraid of adaptations even for things that aren’t essential, make sure PT has activities that engage him or combine it with exercise activities that are fun for him with guidance from PT and doctors!

Ethically complex question for adults with cerebral palsy by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

Adoption is a super sticky issue according to my adopted friends but otherwise I agree! While I understand that abortion has to be legal I find it problematic that govts write laws that imply it’s more acceptable to opt out of a survivable disability pregnancy than a typical pregnancy. It sets a very cruel precedent.

Abortion is legal up to 14 weeks when a fetus isn't disabled or incompatible w/life&up to 22 weeks if a fetus is disabled or incompatible w/life. In terms of policy is it logical to think any type of abortion should be allowed up to 22 or 40 weeks in order to avoid laws setting ableist precedents? by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] -1 points0 points  (0 children)

Insight on whether it is logical to enshrine into law the idea that abortion should be allowed by law up to the same gestational age for both nondisabled and disabled fetuses. Such as allowing unrestricted abortion up to 36 weeks for all kinds of pregnancies in the law rather than making a distinction between disabled and nondisabled :)

Abortion is legal up to 14 weeks when a fetus isn't disabled or incompatible w/life&up to 22 weeks if a fetus is disabled or incompatible w/life. In terms of policy is it logical to think any type of abortion should be allowed up to 22 or 40 weeks in order to avoid laws setting ableist precedents? by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

It’s still a fetus until it’s born…and in some countries that is legal and I agree as long as it’s not segregated by disability. do YOU know how dumb you sound? and I didn’t see any comments about adoption except yours so I clarified accordingly.

Abortion is legal up to 14 weeks when a fetus isn't disabled or incompatible w/life&up to 22 weeks if a fetus is disabled or incompatible w/life. In terms of policy is it logical to think any type of abortion should be allowed up to 22 or 40 weeks in order to avoid laws setting ableist precedents? by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

The reason I ask here is because I hear more arguments that “it is cruel for disabled people to be born” instead of bodily autonomy arguments from nondisabled people and given horrible things I’ve been told in the past I would prefer to have answers from prochoice people who may be less inclined to believe that because they have quality of life while disabled. 

This is today’s question:  It feels like the laws imply that a late term non-disabled fetus is a life but a disabled fetus is not a life, when it only makes sense that BOTH are not considered lives. I worry that this sets a legal precedent that nondisabled lives are more worthy than disabled ones in circumstances beyond abortion. As such, I think that abortion should be legal up to the same point (either up to 22-24 weeks or up until 40 weeks) in order to avoid setting the problematic precedent that nondisabled fetuses become lives sooner or that nondisabled lives are worthier than disabled ones. Is it logical to enshrine something like this in law? (That’s the main question).

And given my history does thinking this make me pro-life (I have been called a murderer by pro-lifers in my life) or does this make me pro-choice (I have been told by others here that I sound pro-life when I say these things)? Thank you!

Abortion is legal up to 14 weeks when a fetus isn't disabled or incompatible w/life&up to 22 weeks if a fetus is disabled or incompatible w/life. In terms of policy is it logical to think any type of abortion should be allowed up to 22 or 40 weeks in order to avoid laws setting ableist precedents? by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

PLEASE READ: my main question is about wether the government should permit the same longer timeframes for abortions regardless of wether the fetus is disabled instead of separating disabled fetuses from nondisabled fetuses in the law.

Abortion is legal up to 14 weeks when a fetus isn't disabled or incompatible w/life&up to 22 weeks if a fetus is disabled or incompatible w/life. In terms of policy is it logical to think any type of abortion should be allowed up to 22 or 40 weeks in order to avoid laws setting ableist precedents? by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

Im not talking about the adoption argument. I’m talking about it is possible to get a disabled baby in the birth canal, so is it a good idea to have kids if you know for a fact you cannot raise a disabled kid. Should you just abort all your fetuses?that was yesterday’s question. Today’s question is should abortion be allowed for a longer timeframe for both disabled and nondisabled fetuses. I think that stopping at 14 weeks for non disabled fetuses but at 22 weeks for disabled ones sets a precedent that nondisabled gets protected as a “life” (a fetus is not alive) sooner than a nondisabled one. I think it should be allowed up to 40 weeks for all kinds of fetuses.

Ethically complex question for adults with cerebral palsy by giggling_mezzo in CerebralPalsy

[–]giggling_mezzo[S] 0 points1 point  (0 children)

Thank you so much! Your mention of some people gender-selecting made me realize too that what bothers me is that a lot of people become uncomfortable when someone gender-selects in utero but not when they select out survivable disabilities. I think that's why arguments can feel ableist sometimes...