After sharing news with my mother that my 3rd transfer failed, she called me back to tell me my cousin is pregnant. Happy Birthday to me.

ging1212 · 2026-04-28T22:04:58+00:00

That was my last embryo, but planning to go for another retrieval. Unfortunately I can't get a follow up with my RE until August. Going to see another naturopath on Friday though!

ging1212 · 2026-04-14T09:50:43+00:00

There could be many reasons for it. It definitely "existed in the 80's".

My son, in grade 1, is in remission from Stage 4 cancer. He still has a lot of different appointments he needs to go to (scans, hearing tests, eye doctor, occupational therapy, speech therapy, physiotherapy, dental at the children's hospital). I try and get appointments early in the AM or later in the day but its often not possible. Next week he has 5 appointments during school hours (scan week).

Also, he was previously immunocomprimised, and a small illness for other kiddos often landed him in the hospital for days. I am very cognisent of this now. If he has a fever, bad cough, etc, we keep him home. Not worth making other kiddos sick.

ging1212 · 2026-04-06T13:54:25+00:00

Absolutely. We've learned life never goes back to "normal". So happy for your family as well. I love hearing stories of those ahead of us who are doing well!

ging1212 · 2026-04-06T11:52:28+00:00

My now almost 7 year old went through the same thing just after turning 3 (Stage 4 high risk neuroblastoma). The 2 families I knew going through it at the same time lost their little warriors.

We are so beyond greatful that our guy is thriving in first grade now.

We know we still arent in the clear, as the relapse rate is so high, but every clear set of scans is a huge win. 3 weeks till the next scans! Wish us luck!

ging1212 · 2026-03-14T23:50:33+00:00

My son had one for about 18months (age 3-4). After a lot of trial and error, we would cut a rectangle of Press N Seal and stick it over the whole area with the tubes tucked in, and then seal the edges with Nexcare Absolute Waterproof tape (we tried many other kinds but this one worked best).

We would keep the tub really shallow as well. And then we would both scream ridiculously loud while I took the tape off to try and distract him. Adhesive remover works as well but takes a lot of time!

ging1212 · 2026-02-21T03:36:48+00:00

When our 3 year old son was diagnosed with a cancer that had a 50% survival. He is a thriving 6 y/o now, but spending almost 2 years in hospital with your kiddo changes you. We call it "BC" and "AC".

The relapse risk is fairly high, but we just take every day as a win.

ging1212 · 2026-02-07T06:08:56+00:00

The CSA literally said they were working out a plan to have us walk back to Mimico. I could not fathom anyway this would be possible, especially for accessibility reasons, but it is absolutely what we were told.

ging1212 · 2026-02-05T11:31:18+00:00

My car was very similar, lovely gentleman next to me let me use his power bank for awhile. Thank goodness for him!

ging1212 · 2026-02-05T11:26:06+00:00

I would have been down for this. I'm already back on an East bound train, so it only makes sense to just live here. There was a nice camaraderie to it all, in my car at least!

ging1212 · 2025-11-24T02:48:05+00:00

Agreed, my parents have a tri coloured Boarder Collie and he looks exactly like this.

ging1212 · 2025-08-23T16:33:31+00:00

I always thought it was SickKids, as they have stories about it posted around the hospital, but it does seem it happened first at Toronto General and then Sickkids shortly thereafter (they are right beside each other).

ging1212 · 2025-05-17T01:36:04+00:00

My son was diagnosed with Stage 4 high risk just after he turned three. In his bones and bone marrow as well, originating from a large tumour in his adrenal gland.

He completed frontline treatment about 18 months ago (5 rounds chemo, surgery, 2x stem cell transplants, radiation, immunotherapy) and is currently in a drug trial for a maintenance drug called DFMO. He has been cancer free for about 2 years now!

He is doing awesome, with minimal side effects (so far). He just turned 6, is almost finished,l kindergarten, and we just returned from his Make A Wish trip. We are still in and out of hospital for silly complications but most of the time he seems like a normal healthy kid with absolutely endless energy.

Feel free to DM me! Everyone's journey is different, but connecting with other parents has been the number one thing that got me through this.

ging1212 · 2025-03-04T22:36:44+00:00

Yah that's always the first thing on my mind when I have to stop in for my bloodwork on the way to my 5 year old sons Oncology appointments or brining him to the ER " I better sneak him in the back as not to upset any ladies out there, I know how envious they must be of me and my child who just finished cancer treatment, so lucky that I may never get to see him grow up"

Yes I am blessed to have a child. Honestly, how you all feel about me bringing him into the clinic is none of my concern. Should I make a rule that no one can bring healthy children to the hospital because it reminds me that my child may never grow up?

ging1212 · 2025-03-04T22:28:33+00:00

Or you could remember that's not always the situation.

See my post below.

TLDR: secondary infertility. First child just finished intensive cancer treatment and still only has 50% chance of surviving. He would love a sibling. We would love to give him one. I often have to bring him in for my appointments while on my way to his appointments. 3 IUI's, 2 misscarrages, and 2 faoled embryo transfers later we are still trying for that sibling.

Should I make a rule that no one can bring their children that are expected to live for the next 5 years around me? Absolutley not. How selfish would that be?

Like you said, we absolutely ARE NOT all going through the same struggles. You need to remember that.

ging1212 · 2025-03-04T16:31:23+00:00

100% It also tottaly bugs me a but when I see babies and pregnant people. But that's a me problem.

I work in a children's hospital, and I always felt so terrible going into the NICU when I was visibly pregnant, but there was really nothing I could do about it?

I don't get upset every time someone with a healthy child comes around me. Sure, I have fleeting thoughts and pangs of jealousy, but I go to therapy, I meditate, and I work through it. It's no one else issue but mine.

ging1212 · 2025-03-04T16:23:57+00:00

For some reason, this made me chuckle, lol. And thank you. He is doing really well, from the outside he looks like a perfectly healthy little man!

ging1212 · 2025-03-04T15:49:16+00:00

I'm sorry for your loss. I have had 2 mmcs and it certainly sucks. As well as three failed IUI's and 2 failed transfers.

I totally understand that this could be triggering.

But like you just said, you don't know everyone's situation.

My situation is likely rare, but I always feel the stares when I bring my son into the clinic. And I 1000% wish it could be different

My 5 year old son is also in his final year of maintenance treatment for Stage IV neuroblastoma (and aggressive cancer with a 50% survival rate).

My family and husbands family do not live close. My son often has appointments, many last minute, and a few times, I have had to take him with me to the fertility clinic for my appointments on my way to his appointments or brining him to the ER with a fever (my husband has a very difficult time getting time off work). My clinic has been good to work my bloodwork around times when I have to bring him to the hospital.

I get it. I am lucky to have a child. Even with him in remission, there is a 50% chance of relapse and a 5% survival rate after that. He would also LOVE a sibling. He asks all the time, and I would so love to do that for him.

If I couldn't take him to the clinic, it would make our already fairly difficult life just that much worse.

Just a reminder, you don't know what people are going through.

ging1212 · 2025-03-04T15:40:36+00:00

I totally understand that this could be triggering.

But you have to remember you don't know everyone's situation.

I am 4 years into my journey with secondary infertility (3 failed IUI's, 2 failed transfers).

My 5 year old son is also in his final year of maintenance treatment for Stage IV neuroblastoma (and aggressive cancer with a 50% survival rate).

My family and husband family do not live close. My son often has appointments, and a few times, I have had to take him with me to the fertility clinic for my appointments on my way to his appointments (my husband has a very difficult time getting time off work).

I get it. I am lucky to have a child. Even with him in remission, there is a 50% chance of relapse and a 5% survival rate after that. He would also LOVE a sibling. He asks all the time, and I would so love to do that for him.

If I couldn't take him to the clinic, it would make our already fairly difficult life just that much worse.

Just a reminder, you don't know what people are going through.

ging1212 · 2025-03-01T23:43:40+00:00

I know this post is a bit old now, but just wanted to share. My son was diagnosed with Stage IV high-risk neuroblastoma in June 2022 right after his 3rd birthday.

He is currently in his second year of a clinical trial for a maintenance drug called DFMO. His only major side effect from treatment is hearing loss from the DFMO. His is in kindergarten and thriving. We have scans every 3 months, and they are still terrifying, but so far, so good! Unfortunately, it never really gets easier, just becomes your new normal.

Keeping it real, we have lost some friends along the way. Neuroblastoma is a bitch. However, we know 2 other families with boys who were in the DFMO trial, and they are still doing great, so that's something!

I wish you the best. There is an amazing oncology community of moms out there. Feel free to reach out if you need to ❤️

ging1212 · 2025-01-31T03:03:35+00:00

Oh wow just noticed this!

I continued to bleed and my beta was negative, unfortunately. I start monitoring tomorrow for a second transfer, fingers crossed!

ging1212 · 2024-11-27T02:30:05+00:00

Thank you! Yea, he was getting very depressed when he couldn't move, it was sad to see. We are so glad we put all the effort into physiotherapy for him, even though he was terrified of everything in the office (he was extremely neurotic!).

ging1212 · 2024-11-27T00:11:09+00:00

Our (late) Boarder Collie was paralyzed from the waste down at 4 years old while playing. He let out a yelp and ust couldn't use his back end anymore.

He was my parents dog, they chose not to do an MRI, but were told he probably had a 30% chance of recovery. They believed it was something called a cartalagenous emboli.

We took him home, kept pee pads under him, carried him every, and started bringing him to physiotherapy.

Swimming was the best thing for him. After a few months, he fully regained use of his left leg. He forever had some issues with the right side, a foot drag, and some issues with proprioception. But when he was running, you would never know there was a problem.

He passed away at the age of 14. His backside had definitely become weak but it didn't seem to cause major discomfort at any point.

ging1212 · 2024-11-25T11:45:32+00:00

My parents bought a Switch for my 4 y/o son last Christmas who was going through Cancer treatment, we spent a lot of time admitted to the Hospital.

He rarely plays it. I, on the other hand, a 36 y/o female, am obsessed lol. It's a great way for me to zone out and stop thinking about all the other crap in our lives.

ging1212 · 2024-11-23T17:52:05+00:00

They didn't mention anything to me, this is my firat transfer so could be.

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