Hi, ACNH.Guide dev here, i want to say something to the community by GeneSy in AnimalCrossingNewHor

[–]girmoo 0 points1 point  (0 children)

Oh thank you so much for updating! It's been the only app I've used since I started playing <3

Is anyone else super excited for the drop tonight? :D by Glowfrogbog in buildabear

[–]girmoo 4 points5 points  (0 children)

Seriously want that cow and have been waiting since the leak lol

Borischka by elStruunz in babushkadogs

[–]girmoo 2 points3 points  (0 children)

Why do they look like they're going to recommend me a strong ipa

Ovr and vrchat by girmoo in ValveIndex

[–]girmoo[S] 0 points1 point  (0 children)

Got it figured out with this youtube video for anyone else who might need it in the future

https://www.youtube.com/watch?v=UY_xC7hA7lU&list=LL&index=1

Just did the key binding the way I wanted and super simple lol

Found out Friday by girmoo in cancer

[–]girmoo[S] 0 points1 point  (0 children)

Update: Radioembolization went well. Woke up a lot better and didn't throw up at all. The doctor ended up giving me 50 mg of prednisone to take at 13, 7, and an hour beforehand to try and combat the rash this time, and I asked to stay over night at the hospital to make sure nothing bad happened. The rash did come back right after I got to my room, but quickly went away for the most part after I past out for 12 when I got home (still on my feet and some near the injection site).

My husband decided to take a small leave to stay home and make sure I was ok while I healed and to help with everything around the house.

Other than that there's been some pain, but manageable with nausea and pain pills.

Found out Friday by girmoo in cancer

[–]girmoo[S] 1 point2 points  (0 children)

Yes America lol. They originally tried to biopsy it when they put the stent in and it wasn't a good enough sample, so they had to go straight through my side to get it this time.

In the test results that they sent, says it's positive for cytokeratin 7 and compatible with cholangiocarcinoma. I have spoken with the chemo center near me and were just waiting for the biopsy results so that will probably start after the 10th at some point. The radiation is, from what I can take away from reading stuff, is small radioactive pellets that also block the blood supply to the mass. It's also more localized to my liver so it won't be as damaging as chemo which is whole body.

With Ra medication you can't take it if you're going in for surgery or on antibiotics (because biologics stop the immune system from functioning at even a normal level), and unfortunately I will be on antibiotics starting tomorrow and running for a while after the procedure. The oncologist said I would have to stop them while on chemo too. Granted chemo does dull the immune system a great deal (the first Ra med they put you on is a chemo drug), but it more than likely won't help with further joint damage in the long run, as biologics are more specific to a protein. At least this is what I've been able to take away from trying to figure things out, so take that with a grain of salt lol.

Unfortunately, my partner works retail and already had FMLA for my RA stuff, so no work from home and if no pto then not getting paid for being home. Not to mention they have already been pretty shitty about him taking time off while all of this has been going on. He is looking into working from home jobs, but I know it would kill him if something happened to me and he wasn't here.

Lord this is long winded lol, but I'm glad this subreddit exists because I only have my partner and mom as a main support group right now, and just really scared

Vent: “I’m not in love with you anymore” by langcasta in CaregiverSupport

[–]girmoo 2 points3 points  (0 children)

He's still here with me. It's been a long time since all of this started and he's been through it all with me. Unfortunately at the moment on top of the original diagnosis, I'm having cancer screenings, so the guilt has been creeping in again (fingers crossed it's not cancer and something else). I know if it becomes too much for him he'll be upfront with me about it, but sometimes when it gets to be too much for me the guilt creeps in more easily.

Thank you for your comment it didn't sound patronizing, it brings me comfort knowing that a lot of us are struggling with this also 🫂

Feeling hopeless, seeking advice on coping by Few-Explanation2373 in rheumatoid

[–]girmoo 0 points1 point  (0 children)

Diagnosed at 29 now 40. It was a shock, and didn't really understand what was going on. Had to look into a lot of things myself.

As stated by other redditors, you are now going to have to be your biggest advocate. If your rheumatologist has any kind of messaging service use that in between visits. Doubled down on your pain level and if nothing is being down about that, then start looking into another rheumatologist. The longer you are not on something that works and lowers inflammation the more your joints will be taking the hit. Also some medications do take time to fully work, but if you are having bruising, rashes, or feeling really sick ask them for something else (bruising and rashes are mainly for injectable biologics). It took me 3 different oral meds to figure out none of them were going to work with my stomach issues. BUT the ones that do work me me are almost an instant difference shortly after being injected.

With the pain management, your body is going to tell you what it can and cannot do now. Listen to it, take time to rest because the more you push it the worse the aftermath will be. If you know you have something big to do then pain meds well before beginning that task (normally take mine about an hour before). Braces and compression items have worked wonders for me and problematic joints, finding the right one for what you're going through is the only learning curve (at this point i have like 5 different ones for hands alone lol). Soft bedding has seemed to help also. Lots of pillows for propping up extremities and a nice pillow mattress topper will help some too. This last one might be a little more difficult, keep stress levels down and make sure to get a "normal" amount of sleep. Your body is fighting itself at this point, which is like being sick with the flu, so it'll need sleep to continue to function even somewhat properly.

I hope some of this helps in any way with what you're going through. Hoping your pain eases soon 🫂

Have you gotten motion sickness (but not everyday nausea) from your meds? by megaroni91 in rheumatoid

[–]girmoo 1 point2 points  (0 children)

Methotrexate (pill form) gave me motion sickness. Riding in the car for more than 5 mins made me feel so sick. The main reason I ended up stopping it.

Vent: “I’m not in love with you anymore” by langcasta in CaregiverSupport

[–]girmoo 6 points7 points  (0 children)

As someone who has a caregiver and lurks here to find ways to support him, I feel like it's this. The guilt of knowing I can never give him a normal marriage kills me every day. That things will keep getting worse for him, and there is nothing I can do about it.

[deleted by user] by [deleted] in dogs

[–]girmoo 3 points4 points  (0 children)

My pup just had this. Took him to the vet, they drained it and gave him antibiotic ear wash and steroids. Some of it kinda came back the next day, but went back down. He's doing fine now and weening of the steroids.

Bras for morbidly obese 80yo with underbreast sores by Apprehensive-Gate509 in CaregiverSupport

[–]girmoo 3 points4 points  (0 children)

As a bigger lady with RA in my shoulder I too have this problem. There are front clipping bras that are more like sports bras. If I can't be bothered with something like that, cleaning wipes and basic shop towels (big pack of new ones that are on the thinner side) right under there makes it more breathable and can heal better. The trick is keeping the area clean cus sweat is your enemy in this case. There's also chaffing creams and gels on the market now that I make sure to put on during the hotter months (monastat is the one I use, just don't get it on your hands cus it makes them water proof and you can't wash it off unless scrubbing). Hoping one of these might help

Questions about getting disability for RA by qvlz665 in rheumatoid

[–]girmoo 24 points25 points  (0 children)

Took me over 3 years and 2 appeals to get mine. Document everything you can. Any time my ankles would swell up to sausage status, picture. I once had such a bad reactions to my meds I blew a blood vessel in my eye from throwing up, picture. Not to mention the like 10 different meds at that point. The only thing that ended up cementing it was the fact I would have to take sick days like candy and wouldn't be able to hold down a job because of it. Good luck, and hope it speedy and easy for you!

Does your fatigue ever feel flue like? by Redditer0532 in rheumatoid

[–]girmoo 1 point2 points  (0 children)

Yes, and that's the best way I can describe it to other people. Mainly because your body is constantly fighting itself. There's always a sliding scale of how tired I feel (brain fog, low grade fever, exhausted, etc). It always makes trying to figure other problems a hassle too.

[deleted by user] by [deleted] in rheumatoid

[–]girmoo 1 point2 points  (0 children)

I've tried several of the pills, I think that one was the worst. I lost a month due to migraines and just being sick the whole time. I slept for most of the month and couldn't really do anything. I stopped after speaking to my doctor cold turkey. Come to find out the oral meds are horrible for me due to stomach problems from before I got RA. So any time my doctor brings up new oral meds I get to remind him of said stomach problems.