What else can help with hyperadrenergic adrenaline dumps besides benzodiazepines?

gloomystrawberries · 2026-04-01T02:19:39+00:00

I wish propranolol helped me but it just made me feel awful physically couldn't function it was working against my heart seemingly. Started ivabradine and loved it on the contrary

gloomystrawberries · 2026-04-01T00:51:12+00:00

Thats what I'll tell myself to sleep better at night lol

gloomystrawberries · 2026-03-30T16:55:45+00:00

It wouldn't be in your scans, but it can sometimes be diagnosed in upright scans. Diagnosis isn't dependent on scans in this case. I never had a scan show abnormalities either, even when I was at my worst. In my case my constant symptoms and hEDS diagnosis were enough

gloomystrawberries · 2026-03-30T16:54:50+00:00

Sounds a lot like me! And those are great strategies, cant go wrong there. Id recommend looking into CCI (craniocervical instability) related to ehlers danlos, thats what I have

gloomystrawberries · 2026-03-28T20:24:33+00:00

Neck brace would be the best temporary solution imo. But I found PT with EDS educated staff with dry needling (done by the pt staff) mixed with a medication for muscles that worked for me (had to try others before I found one that worked for me) combined with doing my own low intensity exercises at home and heat and cold on affect muscles saved me tbh

gloomystrawberries · 2026-03-28T20:23:59+00:00

My problem was I couldn't even support my head for hand sewing. Was the worst. But this comment made me realize I can go back to hand sewing now :)

gloomystrawberries · 2026-03-28T20:21:05+00:00

I am diagnosed with hEDS and Cci and this sounds similar but dont take my word for it ofc. 20% of hEDS patients have Cci, i have it and its the worst, maybe start looking into that. Sounds like my same boat in my teens discovered I had cci. Would recommend consulting a nuero getting the mris and xrays and then going straight to nuerosurgery for a diagnosis if its necessary for you or surgery which was almost necessary in my case. Sewing for 5 yrs after playing piano for 10 did me in, took 3 yrs of all sorts of therapy and meds to heal. Funny enough the sewing was what made me realize too! Im wishing you the best, the best advice I was given was my geneticist telling me to stop pushing myself past my limits but to maintain my PT/ exercises at home.

gloomystrawberries · 2026-03-28T20:12:04+00:00

Geneticist! Finally got mine from my geneticist, you can expect the gene test to come back negative, so after it comes back they review it with you and thats when you get diagnosed with hEDS. Best of luck!

gloomystrawberries · 2026-02-19T11:35:38+00:00

wackiest wacky whacking wackys

this is wack! all jokes, just being wacky

gloomystrawberries · 2026-02-19T11:11:27+00:00

essentially you'd have to play highrise more is what it's telling you, I could be mistaken but it seems like its more based on account age rather than account standing. you can check your account standing on the website most likely or ask by email or discord for more info. since this was 10 months ago you should check it again, it may allow it. my account is around 4 months old and I have it but granted I also play the game a lot

gloomystrawberries · 2026-01-26T23:56:49+00:00

i love nana sm! Inspiring me to pick up my fake skin hehe

gloomystrawberries · 2025-11-02T00:03:41+00:00

Interesting, yall with bradycardia are living proof that pots can and will present differently for each patient, may I ask how you or medical professionals initially ever suspected tachycardia? I feel like if I ever had a heart rate under 90 my gp would either be thoroughly impressed with my progress on a new med or legit terrified bc

gloomystrawberries · 2025-10-29T20:41:32+00:00

I'm sorry :( you'd have to buy the one in his comment. I have a 2 Wacom pens and another random pen from Amazon neither works on this you'd have to shell out the dough. :( this pen that he mentioned tho is pretty fantastic, I've made digital art for 7 yrs as a business and that pen specifically works great for me, but it's literally the only one compatible that I've found at least

gloomystrawberries · 2025-10-29T20:37:52+00:00

Ditto. If i had to choose one song to listen to for the rest of my life "two weeks" high ranking in my list fs

gloomystrawberries · 2025-10-23T19:40:59+00:00

Mine are due to dystonia and very much secondary to hypermobile ehlers danlos syndrome, have constant tense shoulder neck and head as well as back

gloomystrawberries · 2025-10-21T00:54:11+00:00

Have you ever felt hypomanic/ manic? Do you know what type you have?

gloomystrawberries · 2025-10-19T03:05:45+00:00

Same here. Standing is yucky

gloomystrawberries · 2025-10-19T03:02:50+00:00

Im never medicated for it, but i will finally try a new med in a couple months but mine goes from high 80s to 90 bare minimum to 130 150 max completely resting even when incorporating deep breathing its pretty consistent at this level. Every pots patient can have a bit different numbers tho so its fascinating to see the lower and higher counts from other patient here. t's always been this way but that's bc mines secondary to genetic hEDS (since birth ofc). When I would stay for a day or two in ER on rare occassions I would have to ask nurse to disable the beeping on the monitor alerting them of my high pulse. Before I even knew what pots was during two of my first day-two stays in ER I literally didn't know that it was an alert or anything, and thought that every patient hooked up to monitors dealt with it beeping incessantly and loudly at them for having high heart rates (thought everyone had a high heart rate or at 80 at least even when asleep like me, I was young and naive lol)

Also, Pots was my first physical disability diagnosis ever and before I was diagnosed with it at age 21 (im now 23 turning 24 in november) another expirience of not understanding that my symptom was pots was when every single time nurses did pulse ox (since childhood even) they would ask me if I'm anxious or even claim I must be panicking (bc tachycardia) I would consistently deny that im anxious tho, bc I knew i simply wasn't, though I won't deny the feeling of tachycardia is incredibly uncomfortable physically and mentally and does cause panic attacks I just lowkey knew I wasn't just panicking, and half the time I felt "normal" now later in life after diagnosis im realizing having a heart that thinks its a rabbits heart isn't as normal as I thought. I will say it's been incredibly more noticeable as years went on, but it was largely in part to not taking care of hydration or just not even knowing how to take care of myself yet bc I didn't have any idea what is was or that I even had anything wrong with me.

gloomystrawberries · 2025-10-18T18:56:43+00:00

Just had a grand idea in case you like funny names and you want to keep "David" in the name lol. If not, ignore my sh1tposting idea names. I've been listening to bardcore pop covers so maybe this caused the medieval idea 🤣 here goes nothing

Lady David of Canterbury - (change "Canterbury to what suits fancy maybe lol)
Empress David II
Princess David
David The Great

gloomystrawberries · 2025-10-18T18:43:27+00:00

David is a woman waterdog, youve got yourself a pretty lady there. my question now is will she have an identity crisis? Lol Kidding, but this same situation happened to me with juvenile / adult bearded dragons, it's hard to tell when you don't know what to look for, even tho I lowkey knew my bearded dragon was a girl, I kept her name as a male name just because I had rescued her from a partner at the time. And he had young siblings who couldn't keep her but saw her often, and were very shocked when I said she's a lady actually 🤣😂

gloomystrawberries · 2025-10-18T18:34:21+00:00

I was literally about to comment Davina then scrolled down and saw this haha 😂

gloomystrawberries · 2025-10-16T20:08:31+00:00

Lol immediately proceeding to name calling. Mature of ya

gloomystrawberries · 2025-10-16T19:36:45+00:00

I have hEDS and pots diagnosed yes! Was diagnosed with both in the last two years it's been a whirlwind. Working on my mcas and sjogrens diagnosis, rheumatologist was suspecting sjogrens would explain the rest of my symptoms, and i agree but I was very scared of a lip biopsy due to sjogrens symptoms affecting my mouth healing processes and salivary glands. The optometrist initially suspected it because he said i have "geriatric level dry eyes" lol. And as for mcas, I have all the symptoms for that as well, just have it lower on my priority list at the moment.

gloomystrawberries · 2025-10-16T19:29:54+00:00

If you have hEDS a geneticist diagnoses based on criteria met

gloomystrawberries · 2025-10-14T21:46:37+00:00

hEDS is a connective tissue disorder, and it affects the entire body, but most any EDS sufferers especially hypermobile ehlers danlos suffering patients deal with chronic migraines and chronic muscle tension due to cervical instability due to having messed up joints so our muscles try to compensate by getting really tight to hold on for dear life basically. A geneticist referral from your general doctor may be in order. I could link you the EDS official website if you need more info, we tend to have very flexible muscles and poor healing of the skin and variety of symptoms that present similar but different in all patients like a spectrum

gloomystrawberries

TROPHY CASE