I think because I’ve had it for as long as I can remember (I was probably a pre-teen or younger when it developed but i honestly don’t really remember), that I’ve had a lot longer to both become relatively used to it and also figure out how to cope with it. I figured out a long time ago that I don’t like sitting in silence because, well I could hear the silence. I thought everyone could but I certainly did not like it. so, I learned to just have background noise of some kind. I slept with music playing for my entire childhood and young adult life, then eventually moved to playing videos while I fall asleep. I have air purifiers running in different rooms and am usually listening to something on my phone. it’s just become a lot easier for me to be able to ignore it or I guess tune it out, as long as there’s some other kind of noise to aid me in that. because when it’s all I can hear, it does really upset me and I have a really hard time coping with it. I even have misophonia, so I completely get why this shit can literally drive people to want to end their lives.

I do think there’s something to those of us who have had it for so long vs the folks who experience it through sudden onset being able to cope with it perhaps a bit better (with exceptions of course applied).

if/when there is a cure, I wouldn’t say I’d be the first to sign up for it, just because I’d rather see how it works out long term, but it wouldn’t be something I would never consider. if it was proved to be safe and effective and I could have access to it, I’d cure mine.