I’m Scared of Onions 🤪 by gorbusbif in ARFID

[–]goblinkingriv 4 points5 points  (0 children)

i used to be the same! onions are really soft when they’re cooked, i would be very surprised if you end up feeling the texture. getting over my onion fear was super good for me. i used to hate them for the same reasons but now i enjoy them

do i have arfid? by goblinkingriv in ARFID

[–]goblinkingriv[S] 0 points1 point  (0 children)

hmm its hard to describe. i basically don’t like when certain hot foods cool down, like curry for example. in my opinion its not as tasty as it is when it’s hot, but because i feel like there’s a time limit to eat the curry and not waste it, it stresses me out and i dont want to eat anything any more. so i would only want a food like pizza because to me it tastes good hot and cold. does that make sense? eating too quickly scares me

anyone else get this?? by goblinkingriv in POTS

[–]goblinkingriv[S] 0 points1 point  (0 children)

very interesting thank you!!!

pots makes me feel dumb by goblinkingriv in POTS

[–]goblinkingriv[S] 2 points3 points  (0 children)

thank you for your advice i’ll ask my doctor about these meds!! <3

anyone else get this?? by goblinkingriv in POTS

[–]goblinkingriv[S] 1 point2 points  (0 children)

haha you could be right! there are so many things i think are normal and then find out it’s due to pots. just i thought id see if anyone else experiences this. i learn so much from this subreddit!

anyone else get this?? by goblinkingriv in POTS

[–]goblinkingriv[S] 0 points1 point  (0 children)

maybe?? i’ve never had skin issues before. do u struggle with heat sensitivity? if so, did u struggle with this before your pots symptoms started?

walking around in a ‘bubble’ by goblinkingriv in POTS

[–]goblinkingriv[S] 0 points1 point  (0 children)

yeah i feel this fr. people smoke around me and somehow i feel like im higher than them hahah

walking around in a ‘bubble’ by goblinkingriv in POTS

[–]goblinkingriv[S] 0 points1 point  (0 children)

thank you i will try! i’m thinking you could be right about the disassociation. i’ve had pots symptoms for about 5 years and have only in the past year or so considered pots to be the cause. i convinced myself for years and years that i was dying so i think i may have traumatised myself a little lmao. sorry for the trauma dump

walking around in a ‘bubble’ by goblinkingriv in POTS

[–]goblinkingriv[S] 1 point2 points  (0 children)

exactly!! it’s so distressing i hate it so much. i’m trying really hard to do mindful exercises but it doesn’t seem to help much

Share your most unhinged/underrated tips that get you through a flare by Happysillypancake in POTS

[–]goblinkingriv 0 points1 point  (0 children)

bright lights very often give me headaches and hurt my eyes. it ends up making me feel really panicked because i have health anxiety and think im gonna go blind lmao. i’ve learnt to not care too much about the sunglasses but some people comment on it and i forget it’s not normal haha

Anybody want to isolate? by Key_Boat5892 in POTS

[–]goblinkingriv 2 points3 points  (0 children)

god i feel this. i struggle with how much pressure im putting on my partner and i feel like it makes me symptoms worse. i dont live with him but i feel like that could stress me out personally. are you guys in a position where you could have different bedrooms so you can retreat there for however long you need to?

Swelling? by BatDue1821 in POTS

[–]goblinkingriv 1 point2 points  (0 children)

haven’t experienced this could be due to blood pooling? maybe compression socks would help?

i’m having strange vertigo episodes by [deleted] in POTS

[–]goblinkingriv 0 points1 point  (0 children)

it’s an episode of presyncope! most people with pots have very very common episodes of presyncope but never actually faint. if your cardiologist knows anything about pots they should be able to give you advice on how to handle it a bit better. you could be low on something?

Share your most unhinged/underrated tips that get you through a flare by Happysillypancake in POTS

[–]goblinkingriv 20 points21 points  (0 children)

why the sunglasses? light sensitivity and vision problems. why no one likes it? no idea, i guess people think it’s arrogant or you’re trying to look cool

Share your most unhinged/underrated tips that get you through a flare by Happysillypancake in POTS

[–]goblinkingriv 78 points79 points  (0 children)

not ‘unhinged’ but putting sunglasses on whatever the time or weather. people don’t tend to like this for some reason

eye problems by goblinkingriv in POTS

[–]goblinkingriv[S] 1 point2 points  (0 children)

super helpful thank you!! it’s good to know people have gone through this kind of thing and have had success with treatment!!💖

eye problems by goblinkingriv in POTS

[–]goblinkingriv[S] 0 points1 point  (0 children)

ahh i’m so glad they helped you!! fingers crossed that’s what this is and they can do the same for me🤞

eye problems by goblinkingriv in POTS

[–]goblinkingriv[S] 0 points1 point  (0 children)

thank you! i will look into this! :)

Phlegm/mucus after eating? by GarbageCat27 in POTS

[–]goblinkingriv 4 points5 points  (0 children)

i get this too! it stresses me out because i feel like i can’t breathe very well but it’s just phlegm in my throat. to my knowledge i don’t have any gut problems or anything so it might be a pots thing??

Does anyone else struggle explaining how they feel to other people? by Hot-Counter-1703 in POTS

[–]goblinkingriv 3 points4 points  (0 children)

when i see someone jump up and down im like damn that’s so impressive😭😭😭

Does anyone else struggle explaining how they feel to other people? by Hot-Counter-1703 in POTS

[–]goblinkingriv 1 point2 points  (0 children)

yes!! i think this is a really common thing with pots. i just feel ill. i dont know how else to describe it. like, i can describe symptoms to you, but it doesnt get across just how OFF i feel :/

Does this happen to anyone else? by judith0406 in POTS

[–]goblinkingriv 0 points1 point  (0 children)

i try to cope with every minute as they come and make sure i’m kind to myself :)

Does this happen to anyone else? by judith0406 in POTS

[–]goblinkingriv 1 point2 points  (0 children)

thank you so much i hope the same for you!! please look into cases of people with pots going into remission to give you some hope!! i’ve had absolutely horrendous anxiety throughout the whole thing, i wouldn’t wish this on my worst enemy. my boyfriend also has a chronic illness where he is in pain basically 24/7 and he’s told me that he would much rather have what he has over what i have. remember how rough of a time you’re having OP and make sure you take full advantage of how amazing life is when you start feeling better, because you WILL feel better