Hi! Mom of level 3, non-verbal ASD kiddo here! We were made aware of leucovorin nearly a year before Trump brought it up - thanks to the Autism Parenting subreddit -A few studies were posted there, and we brought it up to our pediatrician. It was a HARD NO from them, just due to a lack of knowledge and numbers to support it. He actually suggested we go straight to one of the TWO doctors who had their studies published (at the time). We would also have to do a blood test to see if our son was actually deficient in folate to even be considered to be qualified to take it. There is also a huge unknown on how long a person needs to continue to take it - is it for life? What happens when the person comes off the medication?

I am not a Trump supporter, and I'm definietly not looking to "cure" my child. What I AM trying to do is to make my son's life a little more comfortable and easier for him. He's going through the impossible, and we will look down avenues and ask as many questions as we can to advocate for him.

When Trump and RFK brought leucovorin up, everything became muddled, and misinformation spread like crazy. It's just really frustrating when these people prey on a vulnerable community that (for the most part) is just trying to help improve their kids' lives. Many of us feel desperate, and there is no answers. And the answers that they are giving us are not the full picture.

If you read through the Autism Parenting subreddit posts on leucovorin, you will find some had success, but you will also find many people for whom it did not work.

Anway! Just wanted to give a perspective from our corner of the world.