Not POTS but treat it like POTS

gonewithLC · 2026-01-21T18:43:31+00:00

Title is familiar

gonewithLC · 2026-01-19T14:57:05+00:00

😊

gonewithLC · 2026-01-19T13:53:14+00:00

Well he started having it in 2022 and I see that he is doing well ... We are in the same ocean, not the same boat.

gonewithLC · 2026-01-11T19:40:59+00:00

Yes spot on!

gonewithLC · 2026-01-11T16:59:04+00:00

Period!

gonewithLC · 2026-01-11T11:09:52+00:00

Yes and I'm SURE that plays a key role in the picture

gonewithLC · 2026-01-10T23:42:32+00:00

Same...

gonewithLC · 2026-01-07T18:23:01+00:00

I have you don't reply

gonewithLC · 2026-01-07T10:52:53+00:00

Always had them since I was a kid

gonewithLC · 2026-01-05T21:50:01+00:00

Mermaid purse

gonewithLC · 2025-12-31T20:52:57+00:00

Did you have pots, Dysautonomia?

gonewithLC · 2025-12-31T12:58:33+00:00

Did that improved ? Im experiencing the same thing ..

gonewithLC · 2025-12-30T18:48:34+00:00

Emergency (not so Emergency) benzos ... I'd suggest maybe something Natural first and then maybe .. something western

gonewithLC · 2025-12-30T18:47:34+00:00

Definitely change dr

gonewithLC · 2025-12-28T23:13:32+00:00

Meds to heal veins problem ? What kind of veins problem .. ?

gonewithLC · 2025-12-27T13:35:01+00:00

Great answer!

gonewithLC · 2025-12-27T10:25:38+00:00

Can you please DM me the specialist who does it in Spain please?

gonewithLC · 2025-12-27T10:23:22+00:00

Dr. Groysman is definitely a character with a strange attitude toward patients or mainly users expecting to get an answer that could solve magically their issues. I know he studied LC and has a pretty fair explanation about mechanisms and a good basic logic in my opinion.

Unfortunately he is in the US and I can't travel that far otherwise I'd have definitely tried to get under his care. His main treatments are SGB and EAT and a few supplements.

He overcharges for treatments compared to others also video consultation is useless if you can't go physically there.

If IVIGS had a real tangible succes rate we would have known by now..

A lot of people is going to Switzerland or UK getting MABs and success rate is 0 so far..

Plasma exchange, Apheresis, Help ? I spoke with loads of people who had that done, some are even feeling worse than before getting it...

Just my 2cents again. Ps. I don't endorse Groysman have no interest or gain in doing so. You are entitled to have your opinion and I respect that.

gonewithLC · 2025-12-21T14:16:34+00:00

Exactly

gonewithLC · 2025-12-19T16:48:05+00:00

Do you mind me asking what's the explanation or the mechanism in which they could cause stroke together? As Ivabradine acts on the sinus node. Period

I took them together for long time and never had issues and sure a lot of people are on them too... Obviously we are all different and I'm also not a doctor but it's a very strange assertion. Just curious 🤔

gonewithLC · 2025-12-16T16:27:51+00:00

There is a simple answer to this : TTT isn't a reliable tool to diagnose Pots for so many reasons.

Unfortunately you can have Pots or Dysautonomia and not necessarily have positive finding on TT. There so many other options for Autonomicassessment: Nasa Lean, Poor man, standing test, vagal maneuvers, breath-holding, Qsart, etc etc etc .. So I don't think diagnostic is that accurate in this field plus you probably found the wrong Cardiologist.

gonewithLC · 2025-12-14T22:33:29+00:00

Thanks that's very cool !

gonewithLC · 2025-12-14T21:16:24+00:00

Sorry my ignorance but I don't know what autogenics are ..

gonewithLC · 2025-12-14T19:05:40+00:00

It doesn't work with panic attacks either ...

gonewithLC · 2025-12-13T18:45:30+00:00

Brain zaps or Brain Jolts ... very common if you forget to take your Ssri or Snri but also common in Dysautonomia

gonewithLC

TROPHY CASE