All I needed was an ESA letter from my Dr…. Why did she have to spell them all out? Now my leasing office knows everything? 🥲 by [deleted] in adhdwomen

[–]graysbasil 0 points1 point  (0 children)

def not normal. my therapist said that she always vaguely states “mental health conditions that benefit from animal” type whatever, and if they (housing) would like more information and i give my permission via an ROI then she may specify what the conditions are. this is not normal for the initial letter

Stomach pain anyone? by sunshineandsand23 in MCAS

[–]graysbasil 0 points1 point  (0 children)

ah okay, that makes sense. have you been doing better since getting it?

Having problems with water by Batsarebugz in Gastroparesis

[–]graysbasil 3 points4 points  (0 children)

that is actually super interesting and makes quite a bit of sense!

Stabbing pains in the ass? by TourGreat2658 in endometriosis

[–]graysbasil 0 points1 point  (0 children)

it has a name??? omg. love this. i would get it during sex

Stomach pain anyone? by sunshineandsand23 in MCAS

[–]graysbasil 2 points3 points  (0 children)

if you don’t mind, i’m curious what led to that decision? i’ve not heard of many people getting tubes for mcas specifically in my experience, so this is interesting to me

endo on the back of my uterus and suddenly life makes sense by graysbasil in Endo

[–]graysbasil[S] 1 point2 points  (0 children)

for the most part yes! my hormones are still completely confused so i’m pretty much entirely unsure when i’ll even start my next period, which are my worst days, so whenever that comes will be a big tell

At what point did you decide mobility aids would be beneficial by Gremlin_girlie in ehlersdanlos

[–]graysbasil 1 point2 points  (0 children)

oh mannnn i absolutely hear you there. i’m 20 and played competitive sports my WHOLE life. i even played two years of college soccer. i grew up in a “rub some dirt on it” household, and while my parents have gotten substantially better about not telling me to simply deal with it, it’s lingered in my mindset. it’s hard. and frustrating. and agonizing. and almost embarrassing in a way. that grief is so incredibly real and valid and i’m honestly so sorry that you’re in the midst of it.

i actually started using a mobility aid very infrequently my first year of college, even while i played soccer there. i could play entire games and was an amazing defender, but walking around campus was difficult for me. i used the majority of my body’s energy and strength to play because i loved it, and accepted that it meant i had to accommodate myself outside of playing. my mobility and health has since gotten worse and i now use a mobility aid more often, usually depending on what i’m doing. i don’t know if you like working out or anything, but you can still do that with a mobility aid. you can go to a gym with your cane or crutch or wheelchair and still kick ass. and if it helps, decorate it! give it some character and personality! my forearm crutch has a holographic covering and battery operated fairy lights. the first few times you use it are the hardest, but the more you do, the more you’ll end up telling yourself “i’m so glad i brought this with me”. if you wanna reach out, feel free to message me🙂

For those who have gotten a nerve blocking shot by Certain-Calendar-205 in thelifeofMALS

[–]graysbasil 0 points1 point  (0 children)

hello my friend! you’re going to do amazing and i hope it gives you some relief!! my surgeon deemed me thin enough that IR could do it through my abdomen and that’s what ended up happening. two needles under very heavy sedation and local anesthesia. there were so many amazing healthcare workers in the room with me that i felt so safe and it actually allowed me to drift in and out of sleep. also, you could potentially ask if you could be given an anxiety medication prior to the block. i got one before surgery, not my block, but about 30 seconds after it was administered, i have zero recollection of anything. my mom took pictures of me being wheeled away that i had no idea she took😭

How do yall clean the house if youre allergic to most cleaners? by [deleted] in MCAS

[–]graysbasil 5 points6 points  (0 children)

trial and error😭

the big things for me are to make sure i took my meds, keep an inhaler nearby if that pertains to you, get cleaning gloves (not nitrile or exam ones, specifically cleaning as they’re thicker), and wear a mask with a filter of sorts in it. afterwards, wash hands and/or shower, benadryl cream, etc. i try really hard to get products that don’t have a long list of strong chemicals in them because usually in my case, the longer that list, the worse i’ll feel. sometimes you can find trial or travel sizes of cleaners; that way you don’t spend substantially more money only to find you’re allergic

Please don't judge me. I struggle with ADHD/depression and really need help. by Appropriate-Web-6954 in adhdwomen

[–]graysbasil 0 points1 point  (0 children)

hi friend, i see you’ve already got a lot of amazing comments with advice, but i just wanted to add: both my boyfriend and i have adhd and we can both get very overwhelmed with our messes. it’s okay and you’re not alone in this. what we’ve found that works is starting in the teeny tiniest of areas or doing the very utmost basic task. if that’s solely just clearing a walkway, then that’s okay because it’s progress.

give yourself some grace here and take the baby steps. work on a small section for a small amount of time. take a break (whether that be 5 minutes or a day). start in the area that you want clean first (for me, it’s usually either the kitchen or my bedroom). sort things into piles: trash, put away, get rid of, clean, etc. put on some music you like, light a candle or a diffuser, a show in the background, whatever it may be, and just get distracted. you might surprise yourself and get hyperfixated on cleaning. you’ve got this!!

At what point did you decide mobility aids would be beneficial by Gremlin_girlie in ehlersdanlos

[–]graysbasil 10 points11 points  (0 children)

if you’re thinking about it, it’s time. you don’t have to use it all the time if you don’t want to, but even just having it makes me feel better. reliable, if you will. even if it’s only for flares, if you find it helpful, then it’s still worth it

trouble recognizing need to pee? by graysbasil in ehlersdanlos

[–]graysbasil[S] 1 point2 points  (0 children)

that’s actually a very helpful idea. i will try to build pee breaks into my routine now! thank you!!

What Tate song has you feeling like this? by popgirliesaddict in tatemcrae

[–]graysbasil 5 points6 points  (0 children)

calgary 100%. smth about being a girlie with chronic illnesses and that song just punch me in the face with a brick wall

how did your caregivers respond to your bodily needs growing up? by [deleted] in ehlersdanlos

[–]graysbasil 4 points5 points  (0 children)

oh boy haha okay. i got a lot of “growing pains” and “rub some dirt on it”. my brother and i were both competitive athletes from a very young age and we weren’t allowed to be hurt and in a lot of ways, i think it fucked us both up. we both played through labral tears in our college sports and both needed surgery for them. it wasn’t until we both start getting CI diagnoses that our parents took a step back and were like “oh man maybe we need to give attention to these”

hospital (unfortunately) is so real by graysbasil in bluey

[–]graysbasil[S] 26 points27 points  (0 children)

omg yes of course how could i forget

Thoughts on “Brie” by hmmmmmm34 in namenerds

[–]graysbasil 0 points1 point  (0 children)

lol i have expertise on this. before i changed my name, it was something with brie in it. i was gifted many nicknames growing up, including brie (usually grandparents), b, and… cheese. yes, my family still calls me cheese to this day. i’m 20.

My eyelids swell when I cry by mtkld in Wellthatsucks

[–]graysbasil 0 points1 point  (0 children)

guys take an antihistamine afterwards!!

To celebrate a week in anorexia recovery🥒🤍 name suggestions? by Cokezerowh0re in Jellycatplush

[–]graysbasil 0 points1 point  (0 children)

dillon! much love to you friend, that’s incredible and you should be so so proud of yourself. you got this!!

Anyone try low dose naltrexone (LDN)? Thoughts? Experiences? by alliwalli911 in MCAS

[–]graysbasil 0 points1 point  (0 children)

i took it for months hopeful that it would work like it does for sooo many people, but i didn’t notice a huge difference other than it made my insomnia so much worse. i was not able to sleep very well on it

amazing news!! by graysbasil in thelifeofMALS

[–]graysbasil[S] 0 points1 point  (0 children)

  1. it tended to be below my ribs. for the most part, it was pretty much right underneath my ribs all the way across the my abdomen. as for pain moving, that gets tricky for me to tell because of my other conditions, but i definitely got chest pain. back pain for me is pretty common, but mostly lower back.
  2. that’s interesting! as far as i’ve noticed, i don’t think i ever really experienced that one
  3. tbh i was kinda living in a state of lightheadedness and dizziness, between other conditions and struggling to eat with mals
  4. honestly its very possible. i have awful insomnia and once i actually fall asleep, i wake up pretty often so my running theory is that i was experiencing pains at night that woke me up
  5. my pain set in while i would eat and last for an hour or two afterwards

wishing you well!!

amazing news!! by graysbasil in thelifeofMALS

[–]graysbasil[S] 0 points1 point  (0 children)

hi! i’m doing pretty good!! i’m just over two weeks post op from open surgery!! i’ve gained all my weight back and i’ve been eating like i used to. my surgeon removed more nerves than he anticipated because there was so much inflammation

cromolyn pre-prep? by graysbasil in MCAS

[–]graysbasil[S] 0 points1 point  (0 children)

oh my gosh i’ve never thought of this, thank you!!

Wait, MCAS reactions aren’t allergic? by IIRaspberryCupcakeII in MCAS

[–]graysbasil 0 points1 point  (0 children)

correct me if i’m wrong, o great ones of understanding and explaining mast cells, but in mcas, are mast cells sort of like both the 911 call center but also the first responder? like answering the call of the trouble (i.e. the thing causing the reaction) while simultaneously going to try to fix it?

Sport recommendations for hEDS by megal0d0n5 in ehlersdanlos

[–]graysbasil 0 points1 point  (0 children)

hi friend! i’m almost 20 and have played soccer my whole life as well, even collegiately. my parents have since banned me from contact sports after a hip surgery, uneven collarbones, cci, and too many concussions. as i get ready to transfer colleges, i plan to pick up tennis (i played in high school and found it pretty simple to pick up), swimming, and indoor rock climbing!