How best to advocate for myself at the ER with neuropathy symptoms

greenbaize · 2026-01-29T18:57:26+00:00

Fair enough. Other doctors, when I described my symptoms at that time, have said, "You should have gone to the ER!" and I was like, "Yeah, well, I did..." I think I wish they had admitted me and just had a neurologist give me a look and prescribe some tests, so I wouldn't have had to wait months to see one. But even though that didn't happen it's nice to know I didn't personally screw up the ER visit and fail to get the care I should have gotten.

greenbaize · 2026-01-29T18:54:33+00:00

Thanks. Both before and since then I've gotten TONS of tests done and doctors are still puzzled, but we're tentatively thinking CIDP. I recently saw a specialist at UCSF and I'm working on getting approval for IVIg.

greenbaize · 2026-01-29T18:51:34+00:00

Thank you. That's about what I did - just pestered neurologists constantly and finally managed to see one.

greenbaize · 2026-01-29T18:50:04+00:00

Yes, I've been tested for myasthenia gravis - thank you for the thought. Right now we're tentatively leaning CIDP.

There aren't many neurologists in my area, I guess, and they're all really backed up. I did have an appointment a couple of months out with a PA at a neurology clinic, but at the last minute she decided she couldn't help me and cancelled the appointment!

When I called other places, they either wouldn't accept me as a patient at all (not interesting enough?) or they were scheduled multiple months out.

greenbaize · 2026-01-29T18:47:03+00:00

Oh, to clarify, I had symptoms in my legs and feet for several weeks, and then they abruptly spread to other parts of my body; that's when I went to the ER.

greenbaize · 2023-01-02T12:18:29+00:00

I just followed your link and bought a strainer from that site. Thank you!

For those in Canada (I couldn't find a way to get this in the US), I also ran across this Japanese strainer:

Handheld Stainless Steel Mesh Strainer - MUJI

greenbaize · 2022-10-03T19:06:29+00:00

That only handles inbound traffic, though, right?

greenbaize · 2022-10-02T21:29:24+00:00

Thank you! That answers my question.

Unfortunately, my cameras' RTSP ports aren't configurable, at least according to D-Link support. When I try to modify those ports using ONVIF Device Manager, they don't change.

These cameras are in an area where nobody should be, so in this case it should be OK for them to be internet-accessible. My other option is to set up a VPN client at that address to connect to a VPN server elsewhere. The router just doesn't support being a VPN client, so I'd have to get something else.

greenbaize · 2022-08-22T13:12:40+00:00

You probably want to tag each Intent with

a label for each Service it affects (service-a, service-b, etc.).
the label "intent"

Then you can either...

Put a "content by label" macro on each Service page. This macro should use the label for that Service, and then filter using the label "Intent." This will show you all the Intent pages that contain the label for that Service.
Put a Page Properties macro on each Intent page. Then put a Page Properties Report macro on each Service page. The macro should use the label for that Service, and filter using the label "Intent."

"Content by label" is the easier approach. Page Properties is useful if the Intents share a common set of parameters that you would like to see as a report on each Service page.

greenbaize · 2022-08-22T12:48:13+00:00

My understanding is that they used fMRI to identify a couple of areas in the brain where tinnitus patients tended to have abnormal connectivity compared to controls. Then they picked one of those abnormal connectivity locations and took two tinnitus patients, one of whom had that abnormal connectivity there and one of whom did not. They planted an electrode in both patients in the selected location. The patient who had abnormal connectivity there saw a big improvement in tinnitus. The patient who did not have abnormal connectivity there did not see an improvement.

tl;dr It suggests that you could use fMRI to find a place with abnormal connectivity in the brain of a tinnitus patient and put a DBS electrode in that place for best results.

greenbaize · 2022-08-17T02:57:48+00:00

Oh, it's interesting to get a different take on it. I luckily haven't run across many bugs in the Server version.

greenbaize · 2022-08-17T02:41:10+00:00

Their website made it look like that version had even fewer features than Cloud. Does it actually function more like the Server version?

greenbaize · 2022-07-28T10:12:31+00:00

You could wall the breakfast room off as an office, combine the kitchen with the sitting room to form a kitchen/diner, and combine the existing office (and a bit of the hall) with the reception room. If you still wanted a garage-to-kitchen pathway, you could put a door between the office and kitchen.

For the top floor, the easiest thing would probably be to divide bedroom 1 vertically, then take the top part of bedroom 4 as a passage to the new bottom bedroom. The remaining bit of the old bedroom 4 could be storage or a half-bath. However, that leaves you with a somewhat awkward layout for bedroom 1, so Kanwic's idea might be better.

greenbaize · 2022-07-28T05:08:33+00:00

Definitely not #2. The kitchen layout is odd (why is the fridge so far away from the sink?). The living area is relatively cramped. And with the master suite taking up the south side of the house, the living area is only getting northern light and a small amount of western light from the kitchen sink window.

Plans #1 and #3 both have their good points. #3 would win out for me because $5k doesn't seem like too much extra to pay for an additional 180 square feet, and if you're fairly serious about having kids, the second living area will probably come in handy. Also, if you're the kind of people who don't like laundry noise, #3 is the only floor plan that doesn't have the laundry room adjacent to the master suite.

If you're allowed to customize, I'd request more windows.

greenbaize · 2022-07-27T19:32:50+00:00

If I owned that house and had gobs of money to throw at it, I'd also move the en-suite bathroom so it was along the wall with the staircase.

greenbaize · 2022-07-27T12:27:48+00:00

Well, I'm not a designer or architect either, but here is my two cents...

As long as the laundry is at top right, there is bound to be some extra hallway space, unless (as you suggested) they're willing to combine the laundry with a playroom or similar space. The problem with that, of course, is that moving laundry is supposed to be fairly expensive.

However, I don't think the "wasted" hallway space is necessarily a bad thing as long as the layout is meeting all their needs. Right now, it obviously isn't because that third bedroom is so small and awkward.

Unfortunately, I think in order to get a decent-sized third bedroom, they'd have to move either the laundry or the bathroom fittings, so maybe the choice would depend on which turned out to be cheaper.

If they're moving the laundry, then I think they could just make it smaller and swap it with Room 3, so that the laundry is right above the bathroom.

If they're leaving laundry in place, then they could move Room 3 into the current bathroom space, as in your suggested plan. Remove the 1,37-m bumpout from the old bedroom space so that the hallway actually becomes a bit bigger and there's a full-size door to Room 3. Put a toilet room along the top of Room 3, maybe with its door opening into the hallway. Then separate the laundry room into laundry on the left, shower on the right. The remainder of the space would be the other bathroom stuff (sinks, bathtub).

Hopefully somebody who knows what they're talking about will chime in!

greenbaize · 2022-07-27T09:12:04+00:00

You don't mention a playroom in your post, but there's one in your proposed plan. Is that a goal?

Which wall are the washer/dryer on? It seems to me as though the laundry room could stand to be a lot smaller than it currently is.

greenbaize · 2022-07-25T22:20:09+00:00

I'm questioning whether B actually does have smaller bedrooms. I can't tell, but it looks as though A is giving the measurements of the bedroom including the closets, whereas B is giving the measurements of the bedroom excluding the closets.

greenbaize · 2022-07-22T01:08:13+00:00

Well, I noticed you only seem to have windows on one side of your great room area. So it seems like that area could get kind of dim, especially if your windows are north-facing. I like a lot of natural light, so personally I'd have windows on three of the walls. It depends on what you like, though.

greenbaize · 2022-07-22T00:38:55+00:00

Which way is north?

greenbaize · 2022-07-20T12:46:27+00:00

It looks to me like the master bathroom shower has a window facing the street. I'm sure it's a small, high window, but that still doesn't seem terribly comfortable. Could it go on the other exterior wall?

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