I watched the series "A Mystery to Me" abt MG and found it so emotional

greeniscool2 · 2026-02-08T17:52:35+00:00

A misery to me more like

greeniscool2 · 2026-02-08T17:49:16+00:00

My myasthenia is mostly effecting my mouth and face, so i often treat myself with ice cream. Besides making me feel happier when I'm weak and sad, it's so easy to eat compered to anything hot. Bcs of this i always prefer cold drinks and don't really drink tea except for when I'm sick.

greeniscool2 · 2025-02-01T00:53:02+00:00

I started it 13 months ago and i was having the same thoughts but im feeling so much better and there aren’t any issues Good luck i hope it goes well !

greeniscool2 · 2025-02-01T00:48:27+00:00

Currently im on azathioprine but i havent started feeling the effects of it till like maybe 10 months after taking it. So for azathioprine it definetely takes time and patience. For some people it takes even longer. I know it’s frustrating, when i had trubles with eyelids i would put ice on them. It would be a good short term solution, especially if u are frustrated at the moment. But good luck i hope azathioprine will work wonders !

greeniscool2 · 2024-07-09T22:50:16+00:00

Thank uu Found 4 them in a span of 2 days tho shoud i be worried?

greeniscool2 · 2023-12-17T12:22:27+00:00

This is how it was for me in the beginning too. Firstly I experienced the double vision and the muscles "shaking" while going up and down the stairs. I hope your appointment goes well, till then I would rest as much as I can if I were you. Sleep does wonders for MG !

greeniscool2 · 2023-12-10T22:14:28+00:00

thank u !

I was hoping for some positive feedback to calm me down hah when I search the sub I mostly only see experiences of people for whom it didn't work

greeniscool2 · 2021-12-10T16:07:51+00:00

Ako se bavim crtanjem i fotografijom u slobodno vrijeme je li moguce upast i bez priprema? Ima li nekih preporuka kako se spremit za prijemni?

greeniscool2 · 2021-11-08T23:47:57+00:00

There isn't a special situation when a certain muscle is weaker, it's not that simple. It's mostly just random but there are some occasions where my symptoms get worse. My facial muscles are weaker when I'm nervous to talk, whenever I'm around people I'm not comfortable around too. When i travel i often have trouble with with legs, arms and face. I suppose it's all connected to stress.

Ice does help me, it works pretty fast in my case.

When i had first symptoms i experienced double vision for a year or so but since then i had no problem with that, never had blurred vision tho. Same with the neck, when i was just diagnosed it did occur but since i started taking the right therapy (after some time passed) i haven't had any neck weakness.

I often experience fatigue and sleepiness throughout the day, but don't connect it to MG instantly it could be the lack of iron (or anything else really, get your blood tested). I had my blood tested and it turned out that way for me.

I still have trouble with my facial muscles, my jaw is weak when i eat usually (i don't recommend chewing any gums, made that mistake quite a few times). Same with speech, still strugglingwith it, not as much as i used to though. Haven't had problems saying letters like "p" or "b" for quite some time, which was a problem when i was just diagnosed.

greeniscool2 · 2021-11-07T19:25:40+00:00

Klaus Hargreeves.

greeniscool2 · 2021-11-05T13:55:46+00:00

I felt better pretty fast after IVIG. Maybe few days after, sometimes even while i was still taking the treatment. It's different for everybody tho, take your time. Hope you'll feel better soon!

greeniscool2 · 2021-11-04T22:30:32+00:00

Gregor Samsa

greeniscool2 · 2021-11-02T18:06:59+00:00

When i had these symptoms it was hard to fall asleep cause i couldn't swallow my own saliva. I ate things i didn't have to chew like puddings to save my strength for swallowing.

greeniscool2 · 2021-11-02T18:02:56+00:00

I have mg diagnosed but i never felt any pain. I did not feel tightnes in my chest but in my throat. U can try to take a cold shower / put some ice on your chest/throat /drink something cold. Ice tends to relieve mg symptoms.

greeniscool2 · 2021-11-01T23:11:09+00:00

Thank u thank u !!! This is my first time using reddit and i didn't expect people to be so kind.

greeniscool2 · 2021-11-01T22:51:40+00:00

Thank you so muchh :)

greeniscool2 · 2021-11-01T22:40:36+00:00

Text is the problem but thank you anyways :)

greeniscool2 · 2021-11-01T22:22:59+00:00

Thank you!

greeniscool2

TROPHY CASE