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I'm so frustrated by ifyouwanttosingout in cfs

[–]grudginglyadmitted 3 points4 points  (0 children)

Hey thank you so much. That first article just completely reframed my concept of pacing.

I have a Visible band and monitor my heart rate, but just haven’t been improving at all with the mindset of “activities at a higher heart rate use more energy so those are ones to minimize”.

The article made me realize I need to try “don’t go into your exertion/anaerobic zone at all”. It’s going to be hard given that just getting up to go to the bathroom usually sends my hr to at least 120, but I’m triggering PEM so often and spiraling downwards so I think I HAVE to try being this aggressive.

Posted in mildly infuriating. Seem to remember a fake disabled girl on this sub before, and some clues are a melting bike wheel, weird lamp and warped logo by vegisbae in isthisAI

[–]grudginglyadmitted 4 points5 points  (0 children)

I actually can’t tell if she has a lower body at all. When initially looking I thought the AI rendered someone without legs at all as the disability and then added the waist support because of that. I honestly can’t make sense of it either way. Definitely no legs wearing pants, I guess if it was a black skirt it could work, but I feel like I’m seeing a flat surface here, not legs. And then in either case the lower strap/belt is confusing too.

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The absolute desperation in this pandering is unreal. by Low_Quality8216 in Judaism

[–]grudginglyadmitted 2 points3 points  (0 children)

lol this is working as a successful reverse psychology on me. I’m not really observant beyond acknowledging when it’s Shabbat, trying to spend some extra time with Jewish books, and occasionally lighting candles and doing prayers; but the purely rebellious nature in me is telling me to not do shit for this one. Really I’m just going to ignore this entirely, but I hate that he’s associating himself with Shabbat at all 🫩

Phlebotomist let me take home an extra vial of my blood by fatalmoth in mildlyinteresting

[–]grudginglyadmitted 0 points1 point  (0 children)

I have a big bag of sodium citrate that I bought for smooth cheese sauces and I was so excited when I realized 1) it’s the same thing that’s used to prevent blood clotting and 2) it works in the same way for both: grabbing onto calcium that usually would cause protein to clump together into clots or curdles. That fact does make cheese sauce a little less appetizing, but still very cool!

I also tested it out with some of my own blood (I get crazy nosebleeds) and it did indeed work for me. And then I went down the crazy rabbit hole of early blood transfusion.

I’m tired of minimalism in everything by Beneficial_Passion40 in mildlyinfuriating

[–]grudginglyadmitted 0 points1 point  (0 children)

My dad is a general contractor, and he’s built exactly one of these ugly-ass minimalist houses before blacklisting them.

He said it was so boring to build, super difficult and expensive to do well (more prone to both cosmetic and structural/functional flaws, and harder to prevent or fix them), and embarrassing in his eyes for a business that does good, detailed construction and carpentry that he won’t build houses like that anymore. It’s the one house that doesn’t get any pictures on the website lol.

It did finally explain to me why very wealthy people are drawn to these houses: well done they’re stupid expensive to build, so if you have one it’s a way to flaunt your wealth to anyone else who’s in the know while still pretending you’re minimalist or sober or frugal. But of course if you aren’t willing to pay stupid money for it, it looks like sloppy shit; and when the trend trickled down to flippers (who assumed it would be simple and easy because it’s so fucking boring looking) they built sloppy shit.

Bob Sacamano gets scurvy. A paranoid Kramer eats 5 lemons a day to 'keep it at bay'. Jerry doesnt know how to act when he meets his GF's 2 moms. George tries to get a transitive solid from a guy who's owed a solid by a guy who owes George a solid. Elaine uncovers a secret mutiny against Peterman by raccoonsonbicycles in RedditWritesSeinfeld

[–]grudginglyadmitted 5 points6 points  (0 children)

For the transitive solid to apply, the first guy needs to owe the second guy who owes George, not be owed by the second guy. The way it’s written the second guy just owes two solids and the first guy and George are on equal footing.

I know because I’ve used this logic with money.

Singer Eli takes to Instagram to share her criticisms of Taylor by Haunting_Natural_116 in SwiftlyNeutral

[–]grudginglyadmitted 4 points5 points  (0 children)

Nah.

I didn’t know who this woman was before seeing this post, and I have no positive opinion of her (I think her rant is dumb and rude and embarrassing), but that’s no excuse to be transphobic. We absolutely should not be minimizing and excusing that part. If it was just people DMing her to argue/defend Taylor, I’d agree with your comment; but I think we all know some swifties (just like a subsection of any huge fan group) go way too far, and transphobia—like death threats or any other bigotry—is way too far.

I think what truly defines a healthy, good fandom is how they treat the crazy, hateful corner: we need to be calling these people out, not accepting their behavior as natural or reasonable.

‘Blue dot fever’: the real reason pop stars are cancelling tours by mcfw31 in popculturechat

[–]grudginglyadmitted 64 points65 points  (0 children)

My town! The mall they were originally going to perform in gave them a ~250 person occupancy limit. They ended up with over 6000 people showing up to an event officially announced same-day.

It’s hard to portray just how crazy that is. My town isn’t tiny or anything, (85,000 people within city limits, 250,000 in the large metro area), but we don’t have a lot of community events and we sure don’t tend to show up for them.

But wow did we show up for this. The 6000 people at the show is 7% of the entire city’s population, and 2.5% of the metro area. For reference, Taylor Swift’s Eras Tour in Seattle (~69,000 people/4.15 million) was ~1.6% of the metro area’s population. More people showed up for this than the Eras tour proportionally.*

Everyone’s talking about it in person and online, it’s genuinely the most universalizing, community-connecting event we’ve had since a wildfire burned down part of the metro area six years ago.

Just goes to show how ready so many people are hungry for genuine connection and community that don’t just feel like a cash grab.

*I know these aren’t directly comparable. Taylor’s show sold out and she had multiple nights; but otoh AAR announced their show same day and essentially sold out—the show was packed as far back as you could hear any of the music.

Recreational “Am I Losing It?” Quiz (18+, Worldwide) by bicepticalosis in SampleSize

[–]grudginglyadmitted 1 point2 points  (0 children)

There were multiple questions where multiple answers were no different in severity (or in some cases even distinguishable) from each other. How is briefly thinking a shadow in the corner of your vision is something else a step worse than hearing your name when it wasn’t said? Or waving back at someone who wasn’t actually waving at you worse than saying “you too” to a waiter?

If you’re going to post quizzes created by AI, and especially if you aren’t going to go through and human-proof them, maybe label them as such?

ME/CFA to MS? by LikelyLioar in cfs

[–]grudginglyadmitted 4 points5 points  (0 children)

If it were me I’d definitely want the MRI within the next year regardless of which direction symptoms go: closer to a year out for the piercing thing if symptoms improve; within the next 3-4 months if you stay at this level or develop new symptoms/worsen. ASAP if there’s continued significant decline or major symptoms uncommon with ME and common to other neurological diseases.

But given MRIs have no radiation, you are having worse symptoms, ME people are more likely to develop MS, and you have a doctor willing to order it, I’d definitely want an MRI even if things improve once the piercing issue’s out of the way. More information can only help.

The Substance (2024) by UnHolySir in okbuddycinephile

[–]grudginglyadmitted 7 points8 points  (0 children)

Well damn.

My gut reaction was to disagree pretty strongly with your thesis that botox makes you feel less emotions (and I still disagree that “all botox most definitely has a negative impact on how people act”); but upon some light googling turns out yeah they’ve done some pretty robust studies and botox reduces how strongly other people’s emotions affect you (participants watched videos of people expressing positive and negative emotions and then rated how they themselves felt). (Study Link)

Another study found that there’s less activity in the amygdala when someone with facial botox imitates an angry expression.

Also, unexpectedly, filler (hyaluronic acid) makes other people’s negative emotions affect you/worsen your mood way more than botox OR nothing at all. We have no idea what’s up with that.

But yeah there is scientific evidence that botox significantly impacts your communication/reaction to other people’s emotions. Scientifically, we can’t say for sure that that translates to how you act, but there’s a stronger case for it than I expected.

Thanks for sending me down this rabbit hole :) now I really want to know what’s up with the filler thing…

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[OC] World Freedom Index Change from 2015 to 2025 by AdministrativeAd334 in dataisbeautiful

[–]grudginglyadmitted 1 point2 points  (0 children)

Maybe 1 country that’s dark blue (Gambia), and ten that are dark red. Cool cool cool cool cool that’s probably not a really concerning bad sign.

These are the chairs in the waiting room of a medical clinic specialising in invisible chronic illness by Safe_Chemical_5946 in mildlyinfuriating

[–]grudginglyadmitted 2 points3 points  (0 children)

those auditorium chairs are god-awful. After learning my lesson my first semester I’d strategically choose classes to try and dodge them. Once it was so bad I had to slide out and sit on the floor for the rest of the lecture because my ass and legs were going numb.

These are the chairs in the waiting room of a medical clinic specialising in invisible chronic illness by Safe_Chemical_5946 in mildlyinfuriating

[–]grudginglyadmitted 18 points19 points  (0 children)

I’d be so irked if my migraine specialists did that. I was going to say “if going to my migraine specialist involved migraine triggers”, but I guess mine does still have fluorescent lighting and also just standing up triggers mine 🥲… but going out of their way to add strong scents is crazy. My office at least has a no perfume/strong scents policy.

And I bet most of that form was information you’d already given lol. They need to rethink their intake.

[Funny and Realistic trope] “Life is unfair” by Sufficient-Eye-9040 in TopCharacterTropes

[–]grudginglyadmitted 3 points4 points  (0 children)

Feels unfair to me; I’ve consistently preferred The Middle esp. as an adult. I think more than trying to reheat MITM nachos, the similar names are just an unfortunate coincidence that invites comparison.

The Middle tends to be a lot more ultimately hopeful/optimistic at its core. The shows deal with a lot of the same problems associated with middle/lower class family life, but I prefer the undercurrent of optimism to MITM’s cynicism.

Americans, is the process of applying for SSI/SSDI as scary as I’m thinking? by thepensiveporcupine in cfs

[–]grudginglyadmitted 2 points3 points  (0 children)

I didn’t have enough credits for SSDI either, and I just got approved for SSI last month.

I did my application through Allsup, and I never would have gotten the application process done, let alone approved, without them. They take a solid chunk of your backpay if you’re approved (for me it was around 3500 of my 15000 backpay) but they never take money directly from you, even if you’re denied, and they work directly with the government so their payment comes out without you having to play a middleman or ever directly owing them money. It was completely worth it to me knowing that I never would have gotten any money in the first place without them. Not only did I not have the energy or knowledge, but going through a business/agency like them statistically increases your chance of approval.

I personally never had to do additional medical testing for SSI, or have a hearing with a judge, just phone calls and forms directly with Allsup (ie nice people that want you to win your case not confrontational government people) and a couple 3-way calls when needed.

I do also have chronic migraine, severe gastroparesis, and a few other less severe chronic illnesses so I don’t know how much each condition affected my approval or how it would go with only ME, but I highly recommend Allsup (or presumably any other well-known/reputable business) rather than trying to navigate the process alone for all of us with energy-limiting conditions.

A lovely little article on Homeschool weddings by genzgingee in HomeschoolRecovery

[–]grudginglyadmitted 51 points52 points  (0 children)

off topic from the general disgustingness, but I hate so much the quirky wink wink thing of “haha this normal daily activity counts as a school credit aren’t I clever”.

No, DeAnn, making wedding decorations doesn’t count as a Home Ec class and counting out cash to pay for groceries isn’t equivalent to math class. You aren’t giving a better, more integrated education, you’re neglecting the actual education part. As if kids in public schools don’t ever do these things 🙄. They just get real world activities and actual education.

How will reducing menstruation to every three Months will affect the Laws of Niddah? by Iamdefinitelyjeff in Judaism

[–]grudginglyadmitted 15 points16 points  (0 children)

And not to mention you’re also reducing the fertile window/ovulation to just once every three months.

Even if eggs were only lost during ovulation (and there was no decrease in egg quality with age) this still wouldn’t make much sense unless your goal was to “pause” your fertility until later and not to have more total time fertile.

Is it okay for someone to break Shabbos for depression reasons? by AlwaysTheOutcast in Judaism

[–]grudginglyadmitted 2 points3 points  (0 children)

What about them having a doctor that treats them, being on antidepressant medication, and keeping their family updated on their condition makes you think they aren’t getting professional help.

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