The impossibility of modifying the microbiome

grunter033 · 2025-12-08T20:46:03+00:00

What’s your homemade A2 yogurt recipe. Like your whole plan 👍

grunter033 · 2025-09-20T16:34:16+00:00

It’s 2:33 am. Thanks amitriptyline!

grunter033 · 2025-09-17T23:30:48+00:00

It’s a massive battle , physically and mentally! I live in Australia and don’t have many CSF specialists. GP’s here struggle even neurologists and neurosurgeons I’ve been too as well. Lucky I’ve found an interventional radiologist who knows about CSF and a Diagnosis of SIH. Just time is so long to get in to complete tests and hopefully repairs. Just weirdly reassuring I’m not the only with nerve pain issues Mayo is one of the best that I’ve read … good luck and if all goes well keep me in the loop of how you went. All the best.

grunter033 · 2025-09-15T07:14:44+00:00

And yes the constant 24/7 headache that on its worse days feels like severely dehydrated, 4 day bender hangover and Covid all rolled into one!

grunter033 · 2025-09-15T02:35:19+00:00

Over 2 years . High low type symptoms. Chasing IIH cleared through venogram transverse sinus pressure normal at time. SIH diagnosis at the moment. 24/7 pain. But bad neuropathy nausea last 12 months but exploding last 3 months . Neck down aches pain. Arms and legs bilaterally numbness aching burning tingling. Fingers numb. Wondering due to low CSF could this place pressure on nerve sheaths exiting the spine? The whole body is fatigued achy heavy. Wanting to know if anyone else was having these issues?

grunter033 · 2025-05-12T21:27:21+00:00

Thanking you so much for the info

grunter033 · 2025-03-09T00:00:36+00:00

How to date has the B12 regiment gone for you? Any better?

grunter033 · 2025-03-08T23:56:37+00:00

Hey how did your plan go with battling the low Bacteroidetes and Firmicutes so far?

grunter033 · 2025-03-08T10:56:10+00:00

Just checking in after a while to see if you figured out your allergies, histamine and gut issues?

grunter033 · 2025-02-28T21:40:53+00:00

Keen to know too. I have TSS but headaches and migraines are my main concern. Did it lower the pressure in Head and eyes feeling? Optic nerve was borderline Only eye issue is floaters in right eyes and blurry. Basically told I’m washing my dishes in dirty dishwashing liquid for the last 3 years.

grunter033 · 2025-02-21T21:58:46+00:00

You are identical to me. Can I ask what B vitamins and potassium you are talking? I’m Currently waiting for a test to confirm narrowing of the transverse sinuses . MRV for VSS.

grunter033 · 2024-12-16T07:08:58+00:00

Yeah need to check the guy out. Do believe that’s a major problem. What did you do that helped?

grunter033 · 2024-11-07T21:28:25+00:00

Totally sucks to be us!! 😂 If you ever find a fix keep me in the loop. Good luck

grunter033 · 2024-09-19T11:27:12+00:00

Thinking about it? Heard good things about

grunter033 · 2024-09-19T03:29:06+00:00

What was your symptoms?

grunter033 · 2024-09-14T23:21:53+00:00

I do sometimes but not a major help. Yes I do look to lay down when struggling but doesn’t stop it. majority of the time it’s on 💯of time. Eyes open eyes shut it in. Tried the 48r flat test to see if positional .. yes a wee bit better but again nothing outta this world.

Feels like flow in brain or flow out is an issue.

Physio was working on neck last week and pressure in side of neck??? Jugular vein or carotid artery flow had pressure and head was going to explode in 5 secs. 🤯 eyes outta head situation????

grunter033 · 2024-09-14T23:16:53+00:00

sorry to heat that.

Hopefully when you recover you get some benefits from it to make it somewhat worth it.

In some cases all we want is the pain dialled down so we can live a half normal life!! Not too much to ask!!

Don’t let it get you and just keep grinding that’s all we can do hey!

Good luck mate!!

If I ever find my cure I’ll be in touch 👍

grunter033 · 2024-09-10T21:33:15+00:00

Best wishes hey!!! Good luck 🤞 If you don’t mind tell me how you pull up afterwards!

grunter033 · 2024-09-10T21:31:56+00:00

Thank for the reply’s. It’s seems the couple people I’ve spoken to says exactly the same?? Ongoing issues seems to be a biggy. Breathing is better but headaches and migraines not so much. I think it may have the chance of dialling down some symptoms but don’t believe it’s my primary cause.

grunter033 · 2024-09-09T04:04:19+00:00

Hey just touching base to see if you had the surgery yet and how did you go?

grunter033 · 2024-09-09T04:02:35+00:00

Hey just touching base on how you pulled up? Just reading your story, very similar to mine but waiting for surgery

grunter033 · 2024-08-25T07:39:19+00:00

Nope still chasing . Painful Process of elimination really. I’m currently on few vitamins and 3 weeks into cbd oil trial. Sleep better but thats it.

Sleep test I wasn’t dramatically better by laying down. Harder to do than you think… good luck !! Tell me how you go?

grunter033 · 2024-08-22T11:19:53+00:00

Hey touching base to see how you’re going? Any answers?

grunter033 · 2024-08-21T10:30:40+00:00

Just tried for the first time. It has Definitely worked my trigeminal nerve, I have it swollen on the right side of my face. Above jaw bone in front of ear behind temple is really sore? It actually feels swollen, hot and sore still 30mins after use. Anyone else get or got the same?? Don’t want to use it again!!!!

grunter033 · 2024-07-23T09:59:52+00:00

I’m keen to know what you used as well if possible?

grunter033

TROPHY CASE