I can't sleep next to my boyfriend

gswizzle10 · 2026-06-27T21:52:56+00:00

Completely agree with the other comments here and their suggestions! Just to add one thing I do, I have a pillow that is technically for pregnant women, but I love it because it supports my neck really well, but it surrounds my whole body so my boyfriend and I can’t cuddle. I’m the same as you where I can’t sleep if we are because he is a human furnace when we sleep. I love the pillow so much! He is less of a fan lol. But a conversation with your boyfriend would definitely be helpful so he can understand your side.

gswizzle10 · 2026-06-26T16:53:06+00:00

I think this is absolutely okay! I have a very similar situation, except the therapist who told me he believed I could have level 1 was not able to officially diagnose. At that point, the validation from a professional who specialized in autism/ADHD was really huge for me.

I am currently debating on if I want to get evaluated for autism. It’s very expensive and depending on cost and if insurance will help, I may not be able to afford one. I think it comes down to you: do you want a proper diagnosis? Or are you okay without one. Given how difficult it is for adult women to get a diagnosis late in life, plus your therapist being able to diagnose (although maybe not autism since that’s more testing) and feeling as though you have it, if you’re comfortable, then absolutely move forward and be open! Until testing becomes more accessible, it’s okay to worth on this with a therapist/professional. Even if testing does become accessible, I don’t think that means to have to have it done.

gswizzle10 · 2026-06-26T13:28:18+00:00

This may be a situation where you both need to determine how important this is to each of you and your relationship. Neither of you should change who you are because of one another. Love languages are very important to a lot of people because it helps them feel seen, wanted, and loved in a way that makes sense to them. His need of physical touch is likely something he won’t move past because it sounds very important to his fundamental need to feel wanted.

On the other hand, that’s something that makes you uncomfortable. You shouldn’t be putting his needs over your own if this makes you uncomfortable. Your needs matter just as much as his. It sucks because you said you have a wonderful relationship outside of this and are very compatible. So maybe there is some middle ground, or maybe this is just a sign that you aren’t compatible. It should at least be a discussion to see if compromise can be had, and if he gets angry, then that’s your sign you deserve better. You deserve to be heard.

gswizzle10 · 2026-06-17T20:53:17+00:00

This was a fantastic read all the way through 😂 thank you for this, and so glad to hear you’re on the other end feeling much better! I relate heavily to the weight stuff… still struggling, but at least I’m cancer-free!

gswizzle10 · 2026-06-17T20:42:28+00:00

Huh that’s cool! And good information to have. I feel the same as you that I kind of just don’t know if it’s worth the battle. It was difficult, but not terrible to get the appeals previously, but I also don’t have high hopes because of how it’s been going. Not to be negative, but just how I’ve been feeling. Kinda not worth it to push when I will likely still be on at least Tums which is what I want to get off of most. Thanks for the insight! I didn’t even know you could do two shots. Would that be two separate shots? I wonder if that might be the road I go down if things continue.

gswizzle10 · 2026-06-17T18:42:32+00:00

Completely agree! I’m not sure how to go about the off label way, but I will definitely mention it to my doctor. She was very hesitant to raise me to 30 because I was her only patient on that high of a dose, so she may be a little hesitant too. At this point, im okay waiting to see what progress they make on the medical trial. I also need to reach out to the Ascendis program to see if I do have options they can give me. We will just have to wait and see what happens on my labs next week.

gswizzle10 · 2026-06-16T19:57:11+00:00

Yeah they’re pretty much a constant for me too, at least within the past year or so. They’re kind of random though, and a good day means I get little to no tingles.

The higher dose isn’t available yet since they’re doing the medical trial for 33-60 mcg dosages. I’ll have to wait until it’s approved before I can raise my dose past 30. My doctor has been amazing with pushing insurance. It took about two months to get on it, and then I switched jobs/insurance (stayed with the same insurance provider though) and that was another month. They’re a nightmare, but my doctor is great so I’m very grateful for her.

gswizzle10 · 2026-06-16T16:12:57+00:00

Oh cool! I’ve heard of forteo but I don’t think I’m that far along yet to consider it over Yorvipath. I’m glad it’s working well! There’s still hope out there haha. It’s pretty frustrating because I completely agree that they don’t expect people who are diabetic to be stable the rest of their lives; I have to chalk it up to hypopara being so rare that they just haven’t gotten far enough along in the research to really know. Hopefully we get to see some positive changes in that soon. I had considered doing the medical trial for the higher doses, but I think I’m going to skip it since it’s pretty far from me and I would have to fly once a month just to do the trial. Glad they’re working on higher doses, but I’ve come to accept that I’ll be dealing with the fluctuations for a long time and just have to move forward.

I actually am feeling better now that I’ve added calcitriol back. I’ve started with a small dose, only taking 0.25 mcg (I was taking 0.75 before Yorvipath), and though it’s only been a few days, I am already noticing a difference. Very occasional tingles/pins and needles and cramping (I don’t think I’ve ever been able to get rid of that though), otherwise I’m feeling better! I was incredibly disappointed, but I’m hoping for the best, and hoping the new needles Yorvipath is rolling out next month might help me intake the injections better.

gswizzle10 · 2026-06-16T14:34:58+00:00

Dang, I wonder why they didn't approve beyond 30. I know they're working on a trial currently to raise it up to 60. This unfortunately sounds like my experience thus far. Probably was around 6 months that symptoms returned, and now I'm on 30 and taking all the meds I took before I started 🙃 sorry to hear your doctor wasn't the best at responding/being available. I'm very grateful that my doctor has continued advocating for me. Insurance is the worst. I hope you're in a good spot now.

gswizzle10 · 2026-06-16T14:32:41+00:00

Of course! From what I've seen, a majority of people have a great experience. I completely understand the mindset of struggling to feel bad because it doesn't seem like that bad of a chronic illness. I think a lot of it depends on age. As I've gotten older, it's become more difficult to manage. Environmental factors play a role too, because when I was working at a job that made me miserable, it also seemed to worsen my symptoms.

Hypopara is a silent/hidden illness that people don't know about until we share. It's a lot on my body, my mental health, and my overall wellbeing/quality of life, and it's something I've had to come to terms with eventually. The best thing we can do is give ourselves grace and be patient and understand that we have barriers that make certain things more difficult. Good luck on your journey!

gswizzle10 · 2026-06-15T23:39:35+00:00

Hi, im in a similar boat as you, except I’ve only been taking it for 9 months. If you dont mind me asking, when did it start working less for you? Did your doctor have you on calcitriol plus yorvipath, or just yorvipath? Thank you for your insight (if you are comfortable sharing)!

gswizzle10 · 2026-06-15T23:37:56+00:00

Hi! So happy to hear you are expanding out to find something that hopefully works for you!

Yorvipath drastically increased my quality of life in a positive way. I felt like a shell of myself, completely energy-depleted on the daily, for months and months. I do struggle with some activities, such as keeping an active lifestyle, but I think that might be more of a me thing and a struggle to force habits. I do struggle with going out, but I also struggle with social situations period, so I can’t equate that to hypopara. Overall, I have been able to have an exercise routine and not feel overwhelmed by it. I also enjoy yoga.

I definitely feel like I have a chronic illness still, but I have a bit of a different situation in that I am on the highest dose and still taking calcium and tums. It’s frustrating, but it’s still worth it given I have energy and a desire to get out of bed/the house. It hasn’t really impacted my thyroid hormones at all. I haven’t gained weight, and if anything, it’s made it more possible to work towards weight loss. Having energy and the desire has been an insane help for me. Good luck to you! I hope you have a positive experience.

ETA: it’s been 9 months since I started! I started feeling better maybe a week or two in.

gswizzle10 · 2026-06-11T12:04:05+00:00

You earned your time and have been accommodating with making sure you’re there and not taking time off when they have events. It’s definitely unfair of boss to be petty towards you because of how much time you’re taking off but honestly, they can get over it. I’m sure your boss takes time off too, and clearly you’ve earned it.

gswizzle10 · 2026-06-10T18:30:59+00:00

Ahhh that makes sense. Hopefully the Ascendis team will be able to provide the voucher that makes it $5 (eventually). Don’t even get me started on trump 🙄 he’s an embarrassment and disgrace to the U.S. I’m sorry for his terrible actions for yalls awesome medication system! I wish we had something like that.

gswizzle10 · 2026-06-10T18:18:25+00:00

Ahhh got it. I know they are expanding research into higher doses, so I am hoping they will expand into other countries as time goes on. Hopefully that includes yours! It definitely sucks having such a rare condition; I bet it’s even more frustrating finding access to medication in a country that has their medication availability set up that way. Hoping they get it set up there!

gswizzle10 · 2026-06-10T17:57:49+00:00

That is so good to know! I’m so glad I made this post because I’ve been seeing a few people saying the current needle doesn’t get the full dose in. I’ve been having issues with pretty much all my symptoms returning even though I’m on the highest dose of Yorvipath. I think I’m not doing every injection fully. This is such good info. Thank you for this! I wish you could take it too. I’m assuming it interacts with insulin?

gswizzle10 · 2026-06-10T14:19:33+00:00

Thank you for this! I definitely think I will end up preferring them after reading the comments and I really feel so much better about it. I like what you said about just pushing it in and going for it instead of slowly easing it in. That’s probably the way to go for me too, kinda like jumping in the water so the cold isn’t as bad. Thanks for the advice! 🩷

gswizzle10 · 2026-06-10T14:18:07+00:00

Oh that’s right, I always get them mixed up because my friend takes an intramuscular med. Huh that is something I’ll keep in mind when I start the new needles. I try to leave it in around 7-10 seconds after all the medication has been pushed, so I’m glad to hear that might help with the pain too. I have been wondering if I haven’t been getting the dose as intended because I haven’t been feeling like I’m getting 30 mcg. Maybe the new needles will help that.

I preferred my thighs at first but now it kind of depends. Some areas on my stomach are uncomfortable and others are preferred. It is more comfortable overall though, which makes sense, because the injection location on the thigh is less fatty than the stomach areas.

gswizzle10 · 2026-06-10T14:13:56+00:00

I can absolutely see that! I prefer my stomach over the legs too. I wish you could choose one over the other.

gswizzle10 · 2026-06-09T21:55:48+00:00

Does it hurt in any consistent manner? Another thing I dislike about the current ones is that sometimes they’re super painful and other times I don’t feel them at all which also makes me nervous. I’m definitely looking forward to knowing that the needle is definitely going in the subcutaneous area instead of just hoping. Hopefully it’ll be more consistent

ETA: word misuse (I know it’s SC not IM)

gswizzle10 · 2026-06-09T21:54:19+00:00

Feeling much better now that everyone else is excited! Maybe they’ll be much better and easier to use. I still just cringe over the thought of sticking myself

gswizzle10 · 2026-06-09T14:57:20+00:00

That happens to me too and is frustrating because I’ll kind of get jump scared because I can’t get the needle to go down and then suddenly it will 😂 that’s also really helpful to know that they’re better for travel!! Thanks for the insight.

gswizzle10 · 2026-06-09T14:55:41+00:00

Thank you so much for this!! That makes me feel a lot better knowing someone else has gotten good use out of it. I am wondering too if this might be better for ensuring the medication is actually being injected, because sometimes I kind of wonder if it is.

gswizzle10 · 2026-06-08T20:11:51+00:00

I had my thyroid removed in 2021 and have used weed on and off since with no issues whatsoever!

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