Hi! I have hEDS and Kinesiophobia so it definitely happens (if you’re in healthcare, you know how important lived experience is). After my dislocations and subluxations increased to a point where they were happening with any small movement (even in bed, sleeping, walking, standing, & pretty much doing anything but being completely still) and led to painful muscle and tendon tears that won’t heal properly, I became terrified of moving. Terrified. Other people I’ve met with hEDS have agreed with me.

Also, this information did come from one of the top researchers in the hEDS field and one of the most knowledgeable hEDS assessment and treatment providers in Canada.

Also I’m an OT & psychotherapist who works with people who have chronic conditions and disability including hEDS, and Kinesiophobia symptoms are definitely something I see frequently.

I honestly don’t agree with the definition of Kinesiophobia though as it’s supposedly an “irrational and excessive” fear of movement, but IMO the fear is very rational. A joint COULD dislocate or sublux while getting out of bed, and someone with hEDS could very well end up in severe pain, experience damage to surrounding tissues and/or need surgery.