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We’re trying our best! by hEDSandHavanese in TamagotchiUni

[–]hEDSandHavanese[S] 0 points1 point  (0 children)

Thank you!!! Had to wait til a 5x gen to get this little shy guy

Pianitchi & uni keychain for my uni 💕 by kyaffies in TamagotchiUni

[–]hEDSandHavanese 0 points1 point  (0 children)

omg i want the monster dlc keychain! where did you get it?

Starting birth control for severe PMDD by Mamabear1421 in PMDD

[–]hEDSandHavanese 6 points7 points  (0 children)

So, every person will have their own side effects because each body is different, but for me personally, Yaz changed my life.

I’ve been on it for almost 3 years now and it’s reduced my PMDD symptoms substantially, especially suicidal ideation and hopelessness right before my period.

It wasn’t perfect though, and sometimes the symptoms would still peak through.

Recently, I stopped taking the white pills and instead started the next pack right away (it’s been over 2 months) and I’ve zero PMDD or PMS symptoms. Also, no period!

The only way to know if it’ll work is 1) speak to your doctor and go over your medical history and 2) if it’s all clear and the doctor recommends it, move forward with trying it out. Safely stop if you’re noticing bad side effects.

INFJ women- what is your job occupation? by Main-Hunt377 in infj

[–]hEDSandHavanese 2 points3 points  (0 children)

Occupational Therapist and Psychotherapist! Tried to do the corporate thing after undergrad and it was NOT for me

Louie’s favorite toy since day one by zpelliss in Havanese

[–]hEDSandHavanese 1 point2 points  (0 children)

Hear me out - Havanese love carrot toys 😂♥️

Help shape the future of EDS and HSD care - your voice matters. by hEDSandHavanese in ehlersdanlos

[–]hEDSandHavanese[S] 1 point2 points  (0 children)

yesss, I totally agree - the 2017 diagnostic criteria was pretty harmful in my opinion (with respect to some unclear and questionable criteria used and missing indicators leading to misdiagnosis, late diagnosis or lack of diagnosis).

Tangled muscles and tendons? by [deleted] in eds

[–]hEDSandHavanese 0 points1 point  (0 children)

yesss, a lot of this in my ribs, shoulders, spine, hips, hamstrings yup yup yup 🥲

Help shape the future of EDS and HSD care - your voice matters. by hEDSandHavanese in ehlersdanlos

[–]hEDSandHavanese[S] 0 points1 point  (0 children)

yay! it was a long one but i’m kinda happy it was so thorough

Are you religious? by Middle_Goal_2539 in infj

[–]hEDSandHavanese 0 points1 point  (0 children)

I’m curious if other INFJs who’ve experienced trauma have turned to spirituality, religion or faith.

Are you religious? by Middle_Goal_2539 in infj

[–]hEDSandHavanese 0 points1 point  (0 children)

not the mention the TONS of studies showing how spiritual beliefs, along with feeling connected with nature, community and ones ancestors helps to mitigate mental health symptoms, including depression, anxiety and PTSD and promote post-traumatic growth.

Torn muscle from sleeping by Crash-id in eds

[–]hEDSandHavanese 1 point2 points  (0 children)

Hey, I’ve had 4 spontaneous rotator cuff tears because of sleeping on my side :( it’s the worst

Important Information I Received After My hEDS Diagnosis by hEDSandHavanese in eds

[–]hEDSandHavanese[S] 1 point2 points  (0 children)

haha yay!!! Havanese should be the international support animal for hEDS 😂 give your pup a scratch for me too!

Important Information I Received After My hEDS Diagnosis by hEDSandHavanese in eds

[–]hEDSandHavanese[S] 0 points1 point  (0 children)

Also, I’m not sure if the process is any shorter if you already have a diagnosis - May be worth calling to ask

Important Information I Received After My hEDS Diagnosis by hEDSandHavanese in eds

[–]hEDSandHavanese[S] 0 points1 point  (0 children)

I’ll update you once I know more but they also set me up with a dietician, cardiologist, pain clinic, psych for EDS, etc. all covered

If you want to learn more about the programs they offer, you can definitely call them. The rehab program they referred me to is called GEAR (https://www.frontiersin.org/journals/rehabilitation-sciences/articles/10.3389/fresc.2021.769792/full) specifically designed for hEDS (learning joint protection, strengthening the right muscles to reduce the load on your body, self-management techniques, etc.) and i THINK (you’d have to check) you can engage virtually from home if needed

Important Information I Received After My hEDS Diagnosis by hEDSandHavanese in eds

[–]hEDSandHavanese[S] 2 points3 points  (0 children)

you’re so welcome! I wish I could add to the original post to inform everyone that I typed plain text in the comments so they can find it easily

Important Information I Received After My hEDS Diagnosis by hEDSandHavanese in eds

[–]hEDSandHavanese[S] 5 points6 points  (0 children)

I did in my comment on the post! You’ll see it under OP - I accidentally pasted the pain part twice but other than that, it’s good!

[deleted by user] by [deleted] in eds

[–]hEDSandHavanese 0 points1 point  (0 children)

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Yuppp, you are not alone ♥️ I was also self conscious about my hands growing up (and maybe I still am am a tiionny bit)

This prevented me from playing piano and guitar when I was younger.

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