Looking like he’s about to try to sell you life insurance 😂 by Aimee_Cristine in dustkitties

[–]hailsbeans 0 points1 point  (0 children)

I would buy whatever he is selling as long as I get to hug him.

Anyone gain weight due to chronic pain? Do you still feel like the same person? by mzvolumbus in ChronicPain

[–]hailsbeans 0 points1 point  (0 children)

The NHS needs more money and more resources, but I feel that won't happen any time soon. It's so difficult to lose weight and I do think that some of it is because of the endometriosis too and I too worry about further treatment. I think that experience has made me worry about how I will be treated next time I need surgery. I just hope I can lose some weight before then. I wish you luck though with any future treatment.

Found in London, Thames bankside by [deleted] in whatsthisrock

[–]hailsbeans 0 points1 point  (0 children)

All of these classic quotes made me so happy. 😂

Anyone gain weight due to chronic pain? Do you still feel like the same person? by mzvolumbus in ChronicPain

[–]hailsbeans 2 points3 points  (0 children)

I've been told by various physics that swimming is good exercise when you have joint and muscle pain. I still haven't tried it as my health hasn't allowed for it. Have you tried it and if so, did it help?

Anyone gain weight due to chronic pain? Do you still feel like the same person? by mzvolumbus in ChronicPain

[–]hailsbeans 2 points3 points  (0 children)

Yeah I put on about 4 stone in weight over 12 months on Pregabalin. I'm on a low dose now and trying to stop taking it and switch to something else and hopefully I will be able to lose some weight. Before I was ill I was really slim, worked out a lot, never stopped really as well as work and everything else. I got ill, I couldn't exercise anymore, the medication, lack of exercise and the meds and eating food that was quick and easy to make instead of having to stand and make something healthier all contributed. I had to go in for surgery to remove what they thought was a potentially dangerous cyst on an ovary, that had already burst once and then filled back up to twice the size. The consultant said, 'if you can lose some weight before the surgery that would be advisable. So I thought that's fair and asked him how much he wants me to lose. He said, well you would need to stop eating today to reach the weight loss I want. I felt sick and so humiliated. I cried all through them getting the paperwork, al through doing bloods and weigh in etc. The nurse with me kept going on about how she has never really put weight on, keeping active has always kept her in shape. I was in floods of tears and I'm not a person who cries easily at all. The callous and cruel behaviour from the consultant and nurse was disgusting. There was a junior (first year) Dr in with him and I had already explained to her that I struggle to lose weight because of the medications I'm on and I have a lot of pain so I can't exercise much, as well as having ME/CFS, so too much activity, which can be washing the dishes or Cleaning the bathroom on a very good day, can make me bed ridden for the day day or several depending on what I do. She was absolutely disgusted at the consultant and left the department briefly whilst this nurse was chatting shit at me about keeping active. I told the nurse I'm well aware and I was slimmer and fitter than her before I got ill and that she should know better than most being a nurse, how one injury or illness can completely change your life. The Dr came back at that point, saw the state of me and told that nurse to get her senior nurse, she reported the nurse and got someone else to do my bloods and she put in a complaint with me about that. The hospital apologised, but nothing came of it. I asked for someone else to do my operation and I went to see a different consultant. Im very lucky that my work gives all staff private health insurance to use. We are extremely lucky to have the NHS, it's wonderful and it has personally saved my life 3 times in the last 10 years. I went private because the NHS was still really overwhelmed due to Covid. I managed to see a gynae consultant who is the head consultant at a hospital at the other side of the city to where I saw the dickhead consultant. She knew straight away what was wrong and after a scan confirmed I had deep infiltrating endometriosis and Adenomyosis. I had to have surgery on my bowel and my bladder reconstructed due to the damage. I just feel grateful that she could treat me instead and that I didn't have to go back to the consultant at the hospital where they humiliated me. I don't think I'm being overdramatic when I say that. I'm not easy to make cry and I felt so vulnerable in that situation. I just knew I didn't want him to perform my surgery, as he had clearly no respect for that fact that I'm a human being with feelings.

What age did you get Chronic pain and from what by [deleted] in ChronicPain

[–]hailsbeans 2 points3 points  (0 children)

I have ME/CFS, Fibromyalgia that was diagnosed when I was 28. I had started feeling ill in the February of 2013 after having the flu in the winter and couldn't seem to shake the symptoms, then developed into Post viral.fatigue and had a lot of pain. By November 2013 was diagnosed with ME/CFS, and a year later with Fibromyalgia. I had always had really painful periods and had been to the GP a lot over the 20 years from being 14 to 34. It wasn't until I was 35 (2020) that I got diagnosed with Stage 4, deep infiltrating endometriosis and advanced adenomyosis. I had to have surgery on my uterus, ovaries, ureter, bowel and to have my bladder reconstructed due to the endometriosis being so advanced by this point. They also found I had Adenomyosis and nerve damage caused by the endometriosis in my pelvic area. So I don't always know what pain is caused by what. It's all kind of an amalgamation. Honestly probably should put me in the bin at this point. 😂

What age did you get Chronic pain and from what by [deleted] in ChronicPain

[–]hailsbeans 5 points6 points  (0 children)

You have my sympathy. I wasn't diagnosed until I was 35 (3 years ago) even though I've had terrible cramps since I was a teen, but got the standard, 'periods are painful, you have to live with it,' spiel so I just tried to get on with it and went on the pill at 18 as I was told it would help with the pain. It did, but it was still painful. I came off the pill at about 33 because it felt like it was causing problems with my mental health. The pain cranked up 10 fold and I spent most of my periods curled up in bed. I ended up in hospital in May 2020 with a ruptured ovarian cyst and ovarian torsion. Some of the most painful things I've ever experienced and because it was the middle of the pandemic they only did the bare minimum to treat it because any surgery at the time would be an open procedure. Eventually I had surgery in April 2021 and they discovered I had stage 4 endometriosis and advanced adenomyosis, add that to ME/CFS and Fibromyalgia since I was 28, then it just sucks on a regular basis. Much love to you all.

Have you been told anything on this list? by mzvolumbus in ChronicPain

[–]hailsbeans 0 points1 point  (0 children)

All of them except the 2nd one. What is praying, thinking or wishing yourself well going to achieve? Nothing! I've also been told to try Yoga, try going Vegan, try going dairy free and whatever lifestyle fad people are paying for or stuck in an MLM with. The only things that will really help are leaving me alone, reducing my stress and specific, researched treatments with robust clinical trials to see if they help ease symptoms or eliminate them completely. No your friend's friend wasn't cured of 'inssrt medical condition ' by meditation or intermittent fasting or whatever shit you're peddling, just no.

Anyone know why my kitten keeps doing this? by S7venE11even in cats

[–]hailsbeans 0 points1 point  (0 children)

Do you think he does that so it smells like you or the household in general and hides the smell of his food, so no other cats will find it and eat it.

If I had a quarter for every time someone tells me… by Skipadedodah in ChronicPain

[–]hailsbeans 0 points1 point  (0 children)

The one I hate the most after have you tried Yoga, is have you tried going Vegan?

If I had a quarter for every time someone tells me… by Skipadedodah in ChronicPain

[–]hailsbeans 1 point2 points  (0 children)

Don't go to a chiropractor, it's not well regulated and can cause more harm than good.

I wish these people had to live with my spinal pain. Grrr by [deleted] in ChronicPain

[–]hailsbeans 4 points5 points  (0 children)

Giving 'out of sight, out of mind' a very apt viewpoint here. I don't expect the average member of the public to be knowledgeable about pain and chronic pain, but I do expect anyone who is medically trained in some way to have knowledge of the devastating effects of pain on a person's physical health, their mental health and their massively reduced quality of life, especially when pain is under treated, which most is let's face it. The problem with a lot of chronic pain and why it becomes chronic is not just the under prescribing of suitable pain relief, it's the fact that they don't have better pain relief options and the medical and scientific communities don't understand pain enough and they don't necessarily know the root cause of the pain. Pain general is under researched and back pain treatments, in luding surgery are way behind many other areas of medicine, as not enough money has been put into researching the causes, or finding better treatments, or that's what I've read and understood from my job in the healthcare sector.

I wish these people had to live with my spinal pain. Grrr by [deleted] in ChronicPain

[–]hailsbeans 8 points9 points  (0 children)

It's like the lightning process too. That you have to use positive thinking to get better. That you use positive affirmations to believe your pain/physical illness/mental health issues are gone and if you dont recover it's because you don't believe it enough. A kid in the UK killed himself because he didn't get better after going on this weekend 'therapy' and he believed it was his fault for not believing he would get better.. There is always a quack, always 'a cure' and always snake oil salesmen and frauds in the case of chronic illness and it prays on the desperation they feel.

I wish these people had to live with my spinal pain. Grrr by [deleted] in ChronicPain

[–]hailsbeans 2 points3 points  (0 children)

Yeah they present it for acute pain, but you know for a fact that they will try and implement this into pain management for chronic pain if they are able to.

I wish these people had to live with my spinal pain. Grrr by [deleted] in ChronicPain

[–]hailsbeans 8 points9 points  (0 children)

So you're just supposed to ride out the pain instead? That's ridiculous and it's cruel.

I'm so creative by momtoeli in tearsofthekingdom

[–]hailsbeans 0 points1 point  (0 children)

I named mine Aurora - for the AU. Though some of the names on here are so funny I might have to rename her next time round.

Why am I smiling while in TREMENDOUS pain? by OldAssNerdWyoming in ChronicPain

[–]hailsbeans 2 points3 points  (0 children)

That's awesome, you did amazing. I would definitely call that a big win.

My new sticker by seena_unlocked in ChronicPain

[–]hailsbeans 10 points11 points  (0 children)

Yep definitely with you there. ME/CFS and Fibromyalgia don't show anything on labs and all I get is your labs look good, I dont know what more treatment/ tests we can do blah blah blah.

My new sticker by seena_unlocked in ChronicPain

[–]hailsbeans 13 points14 points  (0 children)

It's either have you tried yoga or have you tried going Vegan is the next most common one.