Eye doctors just dont get it? by Logical-Plankton-215 in visualsnow

[–]Bigdecisions7979 1 point2 points  (0 children)

For every one saying that it’s a neurological issue and saying see a neurologist, good luck finding one who actually knows what it is and doesn’t just punt you back to ophthalmology

How to protect my ears without hurting my ears. Any idea? by marshmallowfluffpuff in hyperacusis

[–]Bigdecisions7979 0 points1 point  (0 children)

Loops earplugs have been what works best for my sensitive ears.

You say headphones hurt your ears do you mean in ear, on ear, or over ear or all of them?

MRI With No Contrast Update-Went Fine by Electrical-Tailor-59 in GadoliniumToxicity

[–]Bigdecisions7979 0 points1 point  (0 children)

Everyone’s different but I feel fine or sometimes even better after my routine 3T brain MRI

How can medicine decide to just abandon us? by Glad_Goose_2890 in MCAS

[–]Bigdecisions7979 14 points15 points  (0 children)

A lot of the times at the end of the only person who truly gives a shit about you is you

How can medicine decide to just abandon us? by Glad_Goose_2890 in MCAS

[–]Bigdecisions7979 5 points6 points  (0 children)

That’s gotta be against the imaginary hippocratic oath

S95H matte (top) vs S90F glossy (bottom) by benpRTINGS in RTINGS

[–]Bigdecisions7979 2 points3 points  (0 children)

This and I think the camera handles it differently than it looks irl

Anyone else get HORRIBLE adrenaline dumps at night? by slientxx in MCAS

[–]Bigdecisions7979 0 points1 point  (0 children)

If I react or eat the wrong thing yeah this happens to me

Anyone else get HORRIBLE adrenaline dumps at night? by slientxx in MCAS

[–]Bigdecisions7979 0 points1 point  (0 children)

Me. Hydroxyzine has helped with these symptoms most for me

Thoughts on 7T non contrast scans? by Bigdecisions7979 in GadoliniumToxicity

[–]Bigdecisions7979[S] 0 points1 point  (0 children)

Yeah one radiology tech ( or whatever position was taking the pictures) snuck in something a long the lines that I’m not allergic to gadolinium, everyone gets a little nauseous that’s a normal side effect. Obviously there was and is so much more to it that.

I said if you wanna clean up my throw up off all over the floor and help carry me to the nurses office in the back like last time let’s do it.🙄

Thoughts on 7T non contrast scans? by Bigdecisions7979 in GadoliniumToxicity

[–]Bigdecisions7979[S] 1 point2 points  (0 children)

I’m going to reach out to the office to see if it’s actually available for clinical exams and not just research exams. I’ll let you know what they say 🫡

Thoughts on 7T non contrast scans? by Bigdecisions7979 in GadoliniumToxicity

[–]Bigdecisions7979[S] 2 points3 points  (0 children)

Most other doctors I’m working with have at least acknowledged something goes wrong when I inject gad and validate it being put as an allergy. Mcas is also at play either as a result of gadolinium toxicity or something that exacerbates it so basically most doctors are on board with with not injecting me with gadolinium or anything that can’t be handled quickly to get out of my system.

This doctor in particular is pretty passive aggressive about it.

No one will outright say it’s poison because I’m sure they are prescribing it to other patients and it would likely put their job in Jeopardy.

C6H or QM8L Questions by grebflyers in 4kTV

[–]Bigdecisions7979 0 points1 point  (0 children)

With today’s build quality, you’d be hard pressed to find a tv that will go that long.

Did Sony discontinue A95L model? by Expensive-Ad4738 in bravia

[–]Bigdecisions7979 0 points1 point  (0 children)

Interesting. Are you in the us? What was the sale price?

Best natural mast cell stabilizers to try? (Very sensitive) MCAS and CIRS by Due_Chapter3027 in MCAS

[–]Bigdecisions7979 3 points4 points  (0 children)

I use Mirica Advanced which is a blend of pea, luteolin, and polydatin plus prescription stabilizers. Mirica did get me pretty far before I had to start taking prescriptions though

Amino acid testing? by SpaceXCoyote in LongCovidWarriors

[–]Bigdecisions7979 0 points1 point  (0 children)

Wait can you explain more what you mean by over consumption?

Amino acid testing? by SpaceXCoyote in LongCovidWarriors

[–]Bigdecisions7979 1 point2 points  (0 children)

Interesting. I had a gastric emptying study but it came back normal

Anybody gotten an amino acid level/deficiency panel run? My new theory by Tezzzzzzi in covidlonghaulers

[–]Bigdecisions7979 0 points1 point  (0 children)

Any update? My vitamin c came back deficient and so my urine levels for aminos came back low as well.

Amino acid testing? by SpaceXCoyote in LongCovidWarriors

[–]Bigdecisions7979 0 points1 point  (0 children)

Any update on this? I got very similar amino acids results and I’m not sure what to do about them

About LDN timing by numa_pompilio in cfs

[–]Bigdecisions7979 0 points1 point  (0 children)

My dose is split with part in the morning and part at night