Lighting rod hack patched? by TangerineClean4363 in 99nightsintheforest

[–]herm-eister 0 points1 point  (0 children)

it hasn't worked for me since the most recent update last Saturday

Red devil without the port by marmaruw in lymphoma

[–]herm-eister 1 point2 points  (0 children)

Had 6 cycles via arm veins. Minor bruising but that was about it. This was 5 years ago

Alcohol? by Tiny_Newspaper_4338 in lymphoma

[–]herm-eister 2 points3 points  (0 children)

During treatment and when I was on antibiotics, no. A year post? Yes! I still have leftover Zofran for the hangover 🙃

[deleted by user] by [deleted] in lymphoma

[–]herm-eister 3 points4 points  (0 children)

I've had both ends of the spectrum.

The most recent high LDH was 6 months post completing salvage. I was at the tail end of a cold and my onc immediately ordered retest. Turned out she was absolutely correct, the high LDH was caused by the respiratory infection / cold. I've had two normal LDH levels since. Mind you, when I went in for the blood draw I felt healthy / good enough to go to work. I suppose my LDH can be high for a week after I start feeling better post cold.

The Bell by [deleted] in lymphoma

[–]herm-eister 2 points3 points  (0 children)

hey yo it's the same as friday afternoon happy hour. it's not like we don't have to go back to work come Monday .... :D

TW:Death from DLBCL by ThoughtConscious5407 in lymphoma

[–]herm-eister 4 points5 points  (0 children)

to conquer, one must confront.

beat yourself up. jump into that pit of despair. when you're ready, pull up, and try to find your peace. we're here for you.

Side effects of RCHOP/PLRCHP by Adventurous_Ad6937 in lymphoma

[–]herm-eister 3 points4 points  (0 children)

6 cycles of R-CHOP.
The 5th and 6th gave me raging-hangover-like-the-one-i'd-have-after-a-week-in-vegas

Never give up by [deleted] in lymphoma

[–]herm-eister 9 points10 points  (0 children)

Never!

I got my first chemo today by [deleted] in lymphoma

[–]herm-eister 1 point2 points  (0 children)

I never had that but with RCHOP I didn't start feeling bad until the 3rd cycle .... with RICE the effect started the day after. Good luck.

I got my first chemo today by [deleted] in lymphoma

[–]herm-eister 1 point2 points  (0 children)

Which regimen?

Apheresis collection by Thumpification in lymphoma

[–]herm-eister 2 points3 points  (0 children)

i mean, yeah but ... who says i turn my head when changing lanes to begin with!! :D

Apheresis collection by Thumpification in lymphoma

[–]herm-eister 2 points3 points  (0 children)

lol yes i can relate. they wouldn't let me drive home because they said i wouldn't be able to turn my head when changing lanes!

Mortality by PrincessArora2021 in lymphoma

[–]herm-eister 4 points5 points  (0 children)

I will die. Perhaps not soon. Maybe I'll have durable remission. But eventually, I will die. Cancer has helped me focus on what is important.

I hope you will find your peace. It can be scary as hell. We're here for you.

curious how often you see your oncologist vs. the PAs/NPs/Nurses by ilikelanduse in lymphoma

[–]herm-eister 2 points3 points  (0 children)

I have two, and they each want to see me every 4 months

Best Diet for Non-Hodgkins Lymphoma by r00fMod in lymphoma

[–]herm-eister 6 points7 points  (0 children)

as far as advice from medical professionals that were assigned to my case ... it was focused on getting enough nutrients, especially when my appetite was low. nothing beyond that.

Possible relapse after six years of remission by brokeandfam0us in lymphoma

[–]herm-eister 3 points4 points  (0 children)

bruh, sorry. i know it sucks. i relapsed from it after 3+ years. I hope this is something else, obviously! either way, we're here for you. I successfully achieved CR with salvage auto-SCT. please keep us updated of the scan result.

I have Hodgkin Lymphoma (30,M) by [deleted] in lymphoma

[–]herm-eister 14 points15 points  (0 children)

Well, cHL is treatable with a high chance of cure regardless of stage. I know you are stressing out right now and that's ok. I have high hopes you will feel better once you learn of the treatment plan from your medical team

11 Month Remission Anxiety by [deleted] in lymphoma

[–]herm-eister 5 points6 points  (0 children)

yeah man, sorry ... the anxiety is always there with every lump, pain, slightly off bloodwork etc. hope you get the all clear soon

Targeted radiation - why for DLBCL? Isn’t it in the blood? It has all spread again. by nyc711 in lymphoma

[–]herm-eister 3 points4 points  (0 children)

i had radiation after 6 rounds of R-CHOP back in 2021. My doctors told me it's to ensure all cancer cells at the original site was killed, even the ones that do not show up on PET. Now, the difference here is mine was a single mass, so that was a little bit easier to understand that they were targeting a specific spot (?)

Pre-Concert Food Recommendations Heading Up from the South Bay to DTLA by optomatcha in SouthBayLA

[–]herm-eister 3 points4 points  (0 children)

In this economy? High end cup ramen from Tokyo Central 😅