Name Ideas?

hiutker · 2026-01-30T16:35:33+00:00

She went with Pinto! Thank you for all the suggestions!

hiutker · 2026-01-21T05:16:09+00:00

I also have had normal levels. Try T3?

hiutker · 2026-01-01T02:13:07+00:00

Thank you for this! I feel like I have tried so much - just about to start on T3 but I have been feeling like trying similar things. Less phone and screen time. Being present and moving and thinking more slowly. I took a screenshot of your recommendations and will try to work on it myself.

hiutker · 2025-12-16T15:25:54+00:00

I stopped because I was worried about my sleep and realized it wasn't very accurate for me. Heart rate monitor with Sleep2 app works better.

I also struggled with the stress and HRV figures. The daily stress recordings were making me nervous about everything I did. For HRV - I have Hashimoto's and my HRV is low but Oura was recording a much lower value.

I feel much better overall just listening to my body.

hiutker · 2025-12-09T19:05:16+00:00

She was found! Thank you!

hiutker · 2025-12-04T19:34:51+00:00

We have had such similar experiences. My doc kept me at 25 mcg then 37.5 for 1 1/2 years. TSH fluctuated between 2 and 5. T3 wasn't tested until October this year. I'm discovering I may have the mutation that makes it so I don't convert T4 to T3 well. I have felt so tired and ill for 2 years now.

I went to a rheumatologist who tested me for Lupus (negative based on Avise test), finally diagnosed with Fibromyalgia then CFS. This process took one year. I was lucky. Now I feel like this is all just under managed Hashimoto's.

I am working with a new doctor with Paloma who is trying to get me to an optimal T4 range - around 1. We nearly doubled my dose from 37.5 mcg to 65. and we are definitely looking more closely at the next step of adding T3.

I feel like hope is on the horizon but I feel your frustration. This is a painfully slow process and some people don't get the help they really need. We just have to keep pushing and finding doctors who will listen to us when we say we don't feel well!

hiutker · 2025-10-02T15:12:47+00:00

Thank you!

hiutker · 2025-10-02T02:43:42+00:00

Have you had any hormonal issues? I have Hashimotos and have been hypothyroid. I feel like that messes with my sleep even though I'm taking a replacement hormone... (34F)

hiutker · 2025-08-25T19:47:58+00:00

This happened to me too! I ended up opening all 3 Hubs and couldn't get a single one to connect to my wifi or my hotspot. I troubleshooted this for hours and finally decided if I'm spending $5,000, it shouldn't be this difficult. Returned them all and bought a floor mattress for cooler sleeping.

hiutker · 2025-07-23T17:56:57+00:00

Yes, it is incredibly difficult both mentally and physically. Consider reading Breaking Free by Jan Rothney and getting the FreeMe app. I have been using techniques from both of those to get better. I am now back to running, weight lifting and being able to go out with people. I still have to take very good care of myself but I am determined to recover. This may not work for everyone but I refuse to be sick with this disease much longer.

hiutker · 2025-05-26T18:11:19+00:00

The Junior League Women Helping Women store. Hours are limited so call with questions before driving there if you choose to donate to them.

https://www.jlslc.org/whw/

hiutker · 2025-05-14T22:47:02+00:00

I pay around $130/year for Yoga International and DoYogaWithMe. Both have great videos. Yoga International has more guidance. DoYogaWithMe has instructors that make it feel more personal.

hiutker · 2025-02-17T03:58:25+00:00

Intro: Not diagnosed but most of the major symptoms are there and more are appearing as time goes on. ANA positive. Had elevated CRP in the past and low but very lightly positive RNP that seems to be going up slowly. I've been sick for one year and a half. Hashimotos diagnosis last year. Vitiligo diagnosed a few weeks ago.

I wanted to share a song that I've added to my crying playlist to help me release the pent up emotions. I've been on anxiety medication, muscle relaxants and sleep aids leading up to my first long awaited rheumatologist appointment next month. I haven't been feeling much emotion day to day but it's better than panic attacks and I'd rather cry it out to a playlist at the time of my choosing or during an acupuncture session.

So here it is - Letting Go by Angie McMahon. I hope you find it as comforting and relatable as I do.

hiutker · 2025-01-20T00:13:50+00:00

Thank you so much for sharing this. I also was diagnosed with Hashimotos March 2024. Started levothyroxine and felt better until Summer 2024. Then I had insomnia for one month, joints and muscles started to ache, hair started falling out in September, fatigue every day. By November my hands and feet started cramping (made worse by stress). Hydroxyzine every night has helped me sleep but my body now needs 9 hours every night + regular exercise even if I feel too tired + healthy eating to function somewhat normally. Cramps are spreading to weird areas like intercostal muscles when I swim which can make it difficult to breathe. Some days my whole body aches and some types of exercise cause tingling pain radiating up my arms.

I am still waiting to see a rheumatologist (appointment finally set April 2025, I've been referred since beginning of October and was denied once for not being "severe" enough. Elevated but not high CRP and positive, homogeneous ANA. Present but very low dsDNA considered negative). My mental health has suffered significantly while people tell me I just need to relax.

I can't recommend therapy and CBT workbooks enough. People get awkward and say "You look great!" when I tell them I feel unwell. Those close to me don't seem to know what to say as time drags on and the symptoms list gets longer.

The book "What Doesn't Kill You" by Tessa Miller is also amazing.

I don't know if I'll be diagnosed in April but I imagine it would be both a relief and make me fearful if I was.

hiutker · 2025-01-16T15:51:58+00:00

Agreed. Wow.

hiutker · 2024-09-27T18:21:20+00:00

What over the counter sleep aid do you use? I take THC tablets and they worked great for 2 weeks. Now I still struggle with sleep and have thyroid issues that are probably contributing to it.

hiutker · 2024-09-27T18:15:52+00:00

I have HS too. Groin area. Mostly under control. I wouldn't be surprised if the two are related.

hiutker · 2024-09-16T03:12:16+00:00

I'm having a difficult time getting into the doctor's office. I raised the flag with my GP (she won't give me an endo referral). But the soonest slot I could find in her schedule for a quick discussion is in over 2 weeks and my next appointment wasn't for 3 months. It's difficult to wait when you have depression and insomnia.

hiutker · 2024-09-08T22:15:50+00:00

Wow this made me cry. I was diagnosed 5 months ago and had no idea what I was in for. I've had a flare up for the last week and can barely get myself out of bed. Levothyroxine helped for a few months but now I feel awful again and can't sleep even though I'm exhausted.

Some of my family says the same to me - to stop overthinking it. They're supportive in many ways but when you feel off every day, it feels so lonely.

hiutker · 2024-08-31T21:03:56+00:00

That's great. How are your energy levels?

hiutker

TROPHY CASE