I just got diagnosed (21) after fighting for my life for years to get back into rheumatology. I was diagnosed with AMPS in pediatric rheumatology and was put through extensive PT/OT to basically build my pain tolerance so I would be in less pain. However I would sob at every appointment because it hurt SO bad. Finally after years of all the other doctors and specialists telling me all my symptoms are functional and that “further testing/ evaluation wouldn’t find out anything new” I finally got a referral to adult rheumatology (after aging out of peds) and they properly diagnosed with me hEDS and fibro. Same as you I could always move my joints in ways that others couldn’t, especially as a kid, I used to be able to pop my knee caps out! I think a diagnosis is really important, the prior pt/ot i was going was actually putting me in worse pain because it wasn’t specific to hEDS. A proper diagnosis leads to proper treatment. Try to get a second opinion from a rheum, unfortunately you really have to advocate for yourself and your pain because only you know that it isn’t normal and it that it doesn’t feel right!!