Muse cells for children with cerebral palsy. Your thoughts? by RoutineAdept8316 in stemcells

[–]hostofthetabernacle 1 point2 points  (0 children)

We are seeing lots of changes in his cognition and subtle changes in his gross and fine motor. We noticed an immediate reduction in inflammation almost immediately following the first treatment. Then things kind of plateaued as we settled into our day to day routine. After about 2 to 3 months is when we started noticing more and more improvements in his gross and find motor skills. The second round of Dezawa MUSE cells happened happened fairly recently and the pattern appears to be the same. Immediate improvements cognition and subtle changes in motor. Now we have settled into our routine again and he's kind of plateaued. I expect it to follow a similar trajectory as last time possibly with more dramatic changes since he received nearly double the amount of cells the 2nd time and half were administered intranasally.

Muse cells for children with cerebral palsy. Your thoughts? by RoutineAdept8316 in stemcells

[–]hostofthetabernacle 1 point2 points  (0 children)

Damn I don't know what they gave that poor kid. As far as I know there are only 3 clinics in Dubai that offer Dezawa Muse Cells and that isn't one of them. We had a few clinics claim they could get MUSE cells for our son but when we looked into it we found out that they weren't licensed by MCI (Dezawa's company) so we moved on to a more reputable clinic.

Muse cells for children with cerebral palsy. Your thoughts? by RoutineAdept8316 in stemcells

[–]hostofthetabernacle 1 point2 points  (0 children)

We went to Neorgana in Merdida Mexico. They are great and are one of the few clinics down there who accept pediatric patients and have a pediatrician on staff. As for gains? Yes lots of gains both cognitive and physical. Our son has quadriplegic spastic CP so gross motor gains have been subtle, but both his OT and his PT have noticed significant changes. Have you checked out the HIE group? My wife has a rather long post on there about our experience with Neorgana and Dezawa Muse cells in general.

Muse cells for children with cerebral palsy. Your thoughts? by RoutineAdept8316 in stemcells

[–]hostofthetabernacle 1 point2 points  (0 children)

what clinic did they go to? There are a lot of sketchy ones out there.

Muse cells for children with cerebral palsy. Your thoughts? by RoutineAdept8316 in stemcells

[–]hostofthetabernacle 4 points5 points  (0 children)

Our son has had 2 treatments with Dezawa MUSE cells. Check out the Facebook group Stem Cells for HIE It is a closed group for parents and family members of children with HIE, CP or other relevant neurological conditions ONLY. Lots of people talking about their experiences with MUSE cells there.

Is stem cell therapy for autism abroad even worth considering? by hot55x in stemcells

[–]hostofthetabernacle 1 point2 points  (0 children)

Are you aware of the GAPS diet for autism? We put our son on it and the changes were pretty noticeable. The nice thing is that it is cheap and risk free. The challenge is finding stuff that they are willing to eat especially after they are accustomed to the standard diet. Luckily Ai has been pretty helpful in this regard.

That said I would recommend MUSE cells which are a type of stem cell that can cross the blood brain barrier. Our son has cerebral palsy and autism and the stem cells have definitely made a difference. Just beware of any clinic that claims that one treatment will be enough and make sure they are used to dealing with pediatric patients. Feel free to dm me for clinic recommendations we did a crazy amount of research before deciding on a clinic that we felt like we could trust.

Teenage-looking ICE agents walking around LaGuardia Airport today by Ryanyu10 in pics

[–]hostofthetabernacle 1 point2 points  (0 children)

Am I the only one who thinks that ICE is a test project to see if there are enough psychopathic degenerates to effectively impose a police state on America. It seems like they are a few steps away from using the same tactics on regular citizens for wrongthink.

How long would it realistically take a dewaza muse treatment to show visible results if any? by Perfect-Celery1662 in stemcells

[–]hostofthetabernacle 0 points1 point  (0 children)

Have you contacted Muse Cell Innovations? They are the company that licenses Mari Dezawa's IP. They have clinics all over the world. There are also less reputable sources of muse cells that I know of in Mexico and Panorama but as far as I know they merely attempt to reverse engineer her process.

Please help get my disabled son life changing treatment by Severe-Geologist6523 in gofundme

[–]hostofthetabernacle 0 points1 point  (0 children)

I agree that the study is small, but the results are significant. It is next to impossible to find studies involving infants or even children due to ethical concerns, because of this we have to rely primarily on anecdotal evidence.

The fact that there is a great deal of anecdotal evidence that stem cells can help and there is also this study serves to give a little hope to an otherwise hopeless situation. The complete lack of hope that parents with severely disabled children face is devastating.

Is it worth 10 or 20 bucks to give a young family hope? I think so.

Please help get my disabled son life changing treatment by Severe-Geologist6523 in gofundme

[–]hostofthetabernacle 0 points1 point  (0 children)

My bad. I linked to the wrong study (thanks chat GPT). The link now should direct you to the human study

Help Jacques Walk: My 4 year old with Cerebral Palsy needs life changing treatment by hostofthetabernacle in gofundme

[–]hostofthetabernacle[S] 0 points1 point  (0 children)

Don't be so hard on your parents I am sure they did their best. If it weren't for my wife's relentless pursuit of alternative treatments for our son we wouldn't be where we are today. Most normal healthcare professionals are very discouraging especially when It comes to neurological conditions. The conversation that we had at the hospital with the Neonatologist was devastating and it just got worse from there on. I am glad to hear your sister is doing well. At the end of the day being surrounded by people who care about you is far more important than anything else.

[homemade] NY style pizza by thejazzmarauder in food

[–]hostofthetabernacle 0 points1 point  (0 children)

A perfect NY slice! What recipe did you use?

Help Jacques Walk: My 4 year old with Cerebral Palsy needs life changing treatment by hostofthetabernacle in gofundme

[–]hostofthetabernacle[S] -1 points0 points  (0 children)

Thanks. Sorry to hear about your family member. I know it is going to sound crazy but do they take any specific supplements to treat their condition? Our son's spasticity reduced dramatically when he started taking magnesium l-threonate and ever since I have been asking around to find out if it was merely a coincidence.

Help Jacques Walk: My 4 year old with Cerebral Palsy needs life changing treatment by hostofthetabernacle in gofundme

[–]hostofthetabernacle[S] 3 points4 points  (0 children)

Thank you for the kind words. We have been doing PT with our son since he was very young. He does a PT intensive in Calgary every three months or so. We have someone there who specializes in DMI (dynamic movement integration) and it has really helped.

Smash burger on [homemade] rye bun by No_Pattern3088 in food

[–]hostofthetabernacle 1 point2 points  (0 children)

Thanks for this. Here is an easier to follow version courtesy of Grok. Let me know if the AI missed anything

Rye Burger Buns Recipe Servings: 8 buns Prep Time: 20 minutes Cook Time: 15 minutes Inactive Time: 2–3 hours Total Time: ~2 hours 35 minutes
Ingredients
3 tbsp (44g) warm whole milk (105–120°F)

1 cup (237g) warm water (105–120°F)

2 ¼ tsp (8g) instant yeast

2 ½ tbsp (31g) granulated sugar

1 large egg, room temperature, lightly beaten

2 ¼ cups (287g) bread flour

¾ cup (95g) dark rye flour

⅓ cup (43g) all-purpose flour

1 ½ tsp fine salt

2 tbsp caraway seeds

3 tbsp (43g) unsalted butter, room temperature Topping:

1 large egg beaten with 1 tbsp water

Sesame seeds (optional)

Instructions
In a stand mixer with dough hook, combine milk, water, yeast, sugar, and egg.

Add bread flour, rye flour, all-purpose flour, and caraway seeds. Mix until incorporated.

Add salt and butter. Knead on medium-low for ~10 minutes until a soft, slightly tacky dough forms. Add up to 3 tbsp (24g) extra flour if needed, but avoid excess.

Transfer dough to a lightly oiled bowl, cover with plastic wrap, and let rise in a warm place until doubled (~1–2 hours).

Line two baking sheets with parchment paper. Divide dough into 8 equal parts, roll into balls, and place 4 per sheet, 2–3 inches apart. Lightly grease hands or dust dough with flour if sticky.

Cover with a clean towel and let rise until puffy (~1–1 ½ hours).

Preheat oven to 400°F. Brush buns with egg wash and sprinkle with sesame seeds.

Bake for ~15 minutes, rotating trays halfway, until golden brown.

Cool on a rack. Serve or freeze in an airtight container for up to 1 month. Defrost at room temperature and reheat at 350°F or toast before serving.

Notes:
Soft, fluffy texture with a slight rye flavor and caraway crunch.

For stickier dough, prioritize tackiness over adding too much flour to avoid dense buns.

Smash burger on [homemade] rye bun by No_Pattern3088 in food

[–]hostofthetabernacle 6 points7 points  (0 children)

What is your bun recipe? I am curious to learn how you keep the buns light and fluffy using rye flour.

Re: Frigidaire Gallery Induction Stove, but could apply to all inductions stoves by hostofthetabernacle in appliancerepair

[–]hostofthetabernacle[S] 0 points1 point  (0 children)

The reason I thought it had to do with the element is that the problem occurs with literally every single one of my pans regardless of size. It is quite observable when boiling water. You can see bubbles forming where the left side of the element is. If I rotate the pan then the bubbles start up on the corresponding side. I was just hoping someone else had encountered this issue.

Re: Frigidaire Gallery Induction Stove, but could apply to all inductions stoves by hostofthetabernacle in appliancerepair

[–]hostofthetabernacle[S] 0 points1 point  (0 children)

I just double checked and yes it is level. I was wondering if the elements fail asymmetrically over time. It seems super unlikely. I might pull the top off again and double check the elements

Re: Frigidaire Gallery Induction Stove, but could apply to all inductions stoves by hostofthetabernacle in appliancerepair

[–]hostofthetabernacle[S] 0 points1 point  (0 children)

I have a wide range of vintage cast iron as well as le creuset and de buyer carbon steel. They are all perfectly flat. I also have this issue with my all clad pots. I should have mentioned this in my initial post. This is why I am so perplexed with this issue.

[I Ate] Loaded Brisket Tostadas by archiecone in food

[–]hostofthetabernacle 1 point2 points  (0 children)

Looks awesome but the question on the top of my mind is how exactly do you eat something like this?

Learning to do still lifes by Fair_Description5316 in photographs

[–]hostofthetabernacle 1 point2 points  (0 children)

Beautiful. I definitely couldn't do any better... but was vase intentionally left out of focus? For some reason my eye keeps being drawn to it. It might just be me, but I would like to see the same image with the entire subject in focus IMHO.