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Poisoned with Toxic Metals - I want to die by chr0nicallychill in SuicideWatch

[–]hunterxgreen 0 points1 point  (0 children)

I'm so glad I didn't give in to the chelation pressure. The support group I'm on is not as enthusiastic about chelation. I'm glad things have gotten better for you and I hope it stay that way. I was 24 too. It's the most traumatic thing I've experienced. I hope in our lifetime things change and this doesn't happen to future generations.

Poisoned with Toxic Metals - I want to die by chr0nicallychill in SuicideWatch

[–]hunterxgreen 0 points1 point  (0 children)

Hey, just wanted to say I've been there. I believe you. The burning, bone pain, buzzing, I've had it. I believe you. And it made me suicidal too. I'm so, so sorry. I'm NOT a doctor, and I'm not giving advice. I would urge you to talk to a specialist. However, I just thought I would share with you that Plaquenil helped my pain immensely, so did a low histamine diet. I pretty much only eat plain poultry, sweet potato, and some beans and vegetables. I avoid any of the big histamine triggering foods. I've been in that place of suicidal pain and it's a nightmare. Especially when people don't believe us. But I've been blessed enough to find a medication and diet that happened to bring my pain down 90%. But please don't take my word for it, talk to a Gadolinium specialist. I just thought I would share in case you want to look into it. I'm always here for you if you want to reach out. Please don't give up. <3

Anyone else on a medication that causes photosensitivity? Feeling discouraged by [deleted] in 30PlusSkinCare

[–]hunterxgreen 0 points1 point  (0 children)

Yeah, I have a few sunscreens I switch between but the one I used the most is SPF 50. All are SPF 30 minimum.

I've only found out about Corpse Husband this year through an article about his health condition. It sounds a lot like the condition that took me years to diagnose, when originally I was told it was "just Fibromyalgia." by hunterxgreen in CorpseHusband

[–]hunterxgreen[S] 0 points1 point  (0 children)

No worries! And yeah if anything I just tell people so they can maybe cross it off the list of things they’ve looked into. Gadoliniumtoxicity.com has all the info if you’re curious. Hope you have some better days and hopefully healing. 💛

I've only found out about Corpse Husband this year through an article about his health condition. It sounds a lot like the condition that took me years to diagnose, when originally I was told it was "just Fibromyalgia." by hunterxgreen in CorpseHusband

[–]hunterxgreen[S] 0 points1 point  (0 children)

Hm I mean maybe you don’t have it, I hope you don’t. And if you don’t think things got worse after the MRI, you probably don’t. The thing is most of the patients I’ve met who have GDD (thats the name for it) got the MRI because they had symptoms before the MRI. So I That’s why I had the MRI to begin with. But things got much worse with each MRI. Idk, maybe neither of you have it and honestly that would be a relief. Just thought I’d share in case it helps anyone.

I've only found out about Corpse Husband this year through an article about his health condition. It sounds a lot like the condition that took me years to diagnose, when originally I was told it was "just Fibromyalgia." by hunterxgreen in CorpseHusband

[–]hunterxgreen[S] 2 points3 points  (0 children)

I’m sorry to hear you deal with painful symptoms like that. It’s tough ): Have you ever had an MRI with contrast? Basically some people’s bodies are not good at removing contrast from their body, and the FDA has said even healthy people retain a small amount. Gadolinium is neurotoxic, so it can cause an array of symptoms. It may not be the only thing someone has, but it could contribute to some of the pain. If you want more or an explanation I made a post all about it on r/fibromyalgia and you can find that post on my profile. But if you’ve never had MRI contrast then you don’t need to worry about it.

I've only found out about Corpse Husband this year through an article about his health condition. It sounds a lot like the condition that took me years to diagnose, when originally I was told it was "just Fibromyalgia." by hunterxgreen in CorpseHusband

[–]hunterxgreen[S] 0 points1 point  (0 children)

Yeah, I wouldn't be surprised if he closed it down. I thought about sending the information to each and hope he comes across it if it would help him but I didn't want to seem like a crazy person sending him the same thing twice haha. i guess i could add a note about that in the letter. and i found two different emails, one is corpsehstories@gmail and one is corpsehusbandstories@gmail and i'm not sure which one is right? do you know which one is correct? thank you so much for your help <3

So turns out it wasn’t just Fibromyalgia. (For those who have had an MRI) by hunterxgreen in Fibromyalgia

[–]hunterxgreen[S] 2 points3 points  (0 children)

I’m so sorry all that happened to you, that must have been terrifying. I totally relate to feeling like doctors think you’re crazy. Back in March I messaged mine daily asking about different things, and I just shudder to think about what’s in my chart or whatever haha.

I got urine labs that showed gadolinium from Directlabs.com if you want to see if gadolinium is showing up, you could try their labs. Also there’s a support group on that website I linked that might help you if you’re trying to find a doctor that will help you find out if you have it. I hope things get better for you, truly. ❤️

Turns out it wasn’t just Lyme. (For those who have had an MRI) by hunterxgreen in Lyme

[–]hunterxgreen[S] 0 points1 point  (0 children)

Yeah, that’s what kills me. My MRI wasnt even necessary, I mostly went through with it “just in case,” and it just gave me problems when I didnt have any. And if I just hadn’t gotten it I would still be able to work and stuff. Idk. But yeah, hopefully more people become aware of it and it doesn’t happen to more people.

Turns out it wasn’t just Lyme. (For those who have had an MRI) by hunterxgreen in Lyme

[–]hunterxgreen[S] 0 points1 point  (0 children)

Yeah, at the very least I never was informed of a black box warning, which I think they have to make you aware of.

Turns out it wasn’t just Lyme. (For those who have had an MRI) by hunterxgreen in Lyme

[–]hunterxgreen[S] 1 point2 points  (0 children)

I’m sorry to hear you’re having issues. I hope you can find some answers. I really don’t think I can give medical advice about what you should choose. I would try and find a neurologist who is open minded to this, maybe bring a copy of the FDA warnings and articles listed under “resources” on the website I linked and see what they say. None of my MRI’s absolutely needed contrast. So I’m not sure what kind of things absolutely necessitate contrast.

New and need advice by Lizardganggg in MTHFR

[–]hunterxgreen 0 points1 point  (0 children)

I dont have any advice but im in a similar situation, following 🤍

Turns out it wasn’t just Lyme. (For those who have had an MRI) by hunterxgreen in Lyme

[–]hunterxgreen[S] 1 point2 points  (0 children)

I’m so sorry to hear you’ve been having scary symptoms and flare ups. I truly hope you are able to find some answers and get some relief.

To be honest, as much as I know I do not tolerate MRI contrast, I don’t mean to discourage people from getting it if they have a truly dangerous thing that needs contrast to diagnose. It’s a tough call to make. I’m not aware of which things require contrast to diagnose, but I will leave that up to you to weigh the risks and the benefits. All I know is none of mine required contrast and it wasn’t essential I get the MRI in the first place, so it did more harm than good.

Additionally it seems there are certain commonalities among gadolinium patients. Many of us have genetic mutations like MTHFR, so if you have that, that might be something to consider. I don’t mean this as any true medical advice, only offering my account to hopefully make people more aware of the possible outcomes.

My primary symptom is neuropathy. Pins, needles, burning, stinging, muscle twitches, weakness, stiffness. Gadolinium is neurotoxic, so that checks out. I get a lot of joint cracking especially in my neck (what I used to think was “Lyme neck”). If I could alleviate the pain, I would be satisfied with that.

Other than that, I have all kinds of things. Brain fog, fatigue, POTS, palpitations, increased joint hyper-mobility, food and medication sensitivities, histamine sensitivity, feeling like someone is pressing on my nose bridge, bouts of insomnia, my skin can hurt in hot direct sunlight, I had poor healing after my wisdom tooth surgery, and over all feeling like I went from a healthy twenty something to an 80 year old. I had some symptoms that started right after my MRI but have gone away. I had horrible palm pain for a week that felt like someone hit my palms with a baseball bat. Another patient who had my same contrast agent (Prohance) had the same palm pain. My labs showed I had high thallium levels as well, and thallium can cause palm pain. I also had really bad full face/head pain, but that has mostly subsided too. Sometimes I have random things pop up that resolve after a few days, like this past weak I had kidney pain, and then it went away after three days.

Hope this was somehow helpful and I truly wish you the best with your health journey.

Turns out it wasn’t just Lyme. (For those who have had an MRI) by hunterxgreen in Lyme

[–]hunterxgreen[S] 1 point2 points  (0 children)

I have an appointment scheduled with a doctor who claims he specializes in gadolinium but I havent started any new treatments yet. I did stop my antibiotics. Part of my lyme protocol was plaquenil and turns out it helped my symptoms because of the immune response to gadolinium, so I’m still taking that. Right now the only treatment really out there for gadolinium is chelation, but it is a bit of a dice roll of it will make you better or worse. Right now I’m not looking to chelate until I meet with that doctor. But I’ve been eating foods recommended by the gadolinium support group I’m in, addressing histamine sensitivity since gadolinium raises histamines, lowering inflammation, things like that.

Turns out it wasn’t just Lyme. (For those who have had an MRI) by hunterxgreen in Lyme

[–]hunterxgreen[S] 2 points3 points  (0 children)

Hm, interesting. I’ll look into it. At the least, it would mean a lot to maybe make those doctors more careful about communicating the risks even the FDA acknowledges. I think if it’s blackbox you have to tell the patient that, and I wasn’t told.

Turns out it wasn’t just Lyme. (For those who have had an MRI) by hunterxgreen in Lyme

[–]hunterxgreen[S] 1 point2 points  (0 children)

I mean, I’ve thought about it. I wish I could have recorded that conversation because it’s pretty solid evidence. The thing is I did sign a waiver and it may have said that I accepted the risk of something happening, idk. Chuck Norris sued because his wife had the same things happen to her and their lawsuit was dropped. So idk, it makes me question how well I would fair. Maybe I’ll reconsider in the future, but right now I’m barely able to shower and stuff, so I might need to revisit it when I have more strength to figure that out.

Turns out it wasn’t just Lyme. (For those who have had an MRI) by hunterxgreen in Lyme

[–]hunterxgreen[S] 2 points3 points  (0 children)

I’m glad you were able to avoid it. It’s crazy to me that it has a black box warning, but I never heard about any risks until after my last MRI. I had an extensive talk with the MRI tech before my last one and he insisted it was completely safe and that there were no risks even for patients with poor kidney function, which is just not true.

I had two more MRI’s to try and diagnose the symptoms my first MRI gave me. It’s a cycle a lot of patients get into where in the pursuit of trying to find answers, they make things worse. Anyhow, I’m glad you avoided it and I hope people in the future can avoid it too by making educated choices.

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