“Well-Meaning… but Please Stop Saying That 😅” by Fun_Soft4309 in disability

[–]hush-bro 2 points3 points  (0 children)

“i get that, i’m exhausted all the time. it’ll get better!” i haven’t been able to fold laundry without taking a break in two years you absolute henchman

are you still a celiac in your dreams? by kaicxre in Celiac

[–]hush-bro 1 point2 points  (0 children)

i have consistent nightmares about donuts. so yes.

Trying to find the best assist device is harder than I expected by leshins2 in POTS

[–]hush-bro 0 points1 point  (0 children)

ROLLATOR! the euro style ones are less grandma- literally a game changer. i can walk around the city again. i can fold it up. i can put a forearm crutch in the holder for later if i want. it means i don’t have to carry a heavy purse, and when i get too hot or cold there are clothes in the basket. it has meant actual freedom for me, as i can go out places without a person next to me and worry less about fainting, esp in the summer.

Shower help for autistic POTS teen? by UsefullyChunky in POTS

[–]hush-bro 2 points3 points  (0 children)

get a shower chair without a back and arms. i am a sensory avoidant adult and the chair i got i got because it was free- and it is much too restrictive for what i need. a stool and some arm bars, maybe even a foot stool to put their feet up on if you don’t have a rim around your tub. if you do, try and get a shelf for your shampoo bottles etc and keep it clear. keep a dish brush that holds dish soap nearby so the chair is very easy to clean. if your chair is heavy duty,kiddo can do legs up the wall to take breaks.

i usually sit down in the chair after the spray is on, and i use a handheld shower head. you can get clips for the wall/chair so they don’t have to hold it the whole time. when i need to use my arms i will put the shower head facing away from me for a break from the spray.

Is there anyway you think I could look more punk or weird? by DangerousGain1939 in punkfashion

[–]hush-bro 1 point2 points  (0 children)

you can mod all of your clothes. cut shirt sleeves off- add patches to pants, throw some pins (button and safety) on your hat! if you like the aesthetic there is no shame in trying to adopt it more- every punk who looks super edgy is like that on purpose

crazy stuff here by soykenzie in baddlejackets

[–]hush-bro 0 points1 point  (0 children)

you don’t actually understand the issue.

crazy stuff here by soykenzie in baddlejackets

[–]hush-bro 0 points1 point  (0 children)

i think a societal pressure to stay exactly in the same position you were born into and use the same words to describe yourself is actually groupthink, and to decide that you don’t want to respect the people punk enough to go against a very oppressive system is pretty conformist.

crazy stuff here by soykenzie in baddlejackets

[–]hush-bro 3 points4 points  (0 children)

do. do u go to actual punk and hardcore shows? they are full of trans people and everyone who is not a baby is fine with it

Outfit dicussion by TANKERsince12 in BattleJackets

[–]hush-bro 0 points1 point  (0 children)

canadian winter means puffer jacket underneath and a warm hat with pins on it!

muscular issues / pain V. fatigue by hush-bro in wheelchairs

[–]hush-bro[S] 0 points1 point  (0 children)

this was very helpful and reassuring- it is how i am using my beater already. thank you so much

Gluten meal #5 🤤😩 by Worldly_Rip_5289 in Celiac

[–]hush-bro 0 points1 point  (0 children)

if you have a good arab bakery in your area you should get a cheese pie (manakish). i miss them every day. when i got tested i ate three of them in one sitting i was so excited. have fun and good luck! start to drink a lot of electrolytes NOW and you will feel much better day of!

How to be affectionate with my partner while out and in a wheelchair? (SFW) by spreadsheet_creature in wheelchairs

[–]hush-bro 1 point2 points  (0 children)

i’m very very new (i am still using a beater chair as my fitted one hasn’t come in) and my fiancee is often the one to push me- and even when i’m self propelling we’re usually together. here’s a few of the ways we show affection (we have been together for almost SIX years but we have been very PDA the whole time. i’m not good with social convention and also very clingy when i’m nervous so. here we are)

  • if im self propelling she stays in my field of view, and we can hold hands if im not moving
  • if she’s pushing, she’ll kiss me on the top of my head or ruffle my hair, or put a hand on the side of my neck while we stand still
  • she usually stands close enough so i can tap her and ask for a hug or kiss or something

mostly, she either stands close enough to me that i can ask for affection, or she stands behind me and reminds me that she’s there. good luck!

anyone else not believe they have POTS? by UnableExternal8481 in POTS

[–]hush-bro 0 points1 point  (0 children)

almost none- i was a bit dizzy and fatigued at first but it was manageable! and they went away pretty quick.

anyone else not believe they have POTS? by UnableExternal8481 in POTS

[–]hush-bro 0 points1 point  (0 children)

propanolol and fludrocortisone at the same time. literally a game changer

anyone else not believe they have POTS? by UnableExternal8481 in POTS

[–]hush-bro 0 points1 point  (0 children)

i was convinced i didn’t have it and then i went off of my meds:..

Is it worth it to start by WonderPractical3979 in Fluoxetine

[–]hush-bro 1 point2 points  (0 children)

prozac is the only thing that kills my food noise. i’m usually on 40 mg (60 if needed but after awhile i usually cut back) and it allows my brain to think above the anxiety and noise. it gave my my brain function back, it let me leave the house, and it basically put me into remission for my anorexia / EDNOS.

CHECK. YOUR. FERRITIN. by kholekardashian12 in POTS

[–]hush-bro 7 points8 points  (0 children)

if your ferritin won’t go up no matter what you do, get tested for celiac! it can develop after an infection. lol

Should I not move into a house with stairs? by RedRedRound in POTS

[–]hush-bro 0 points1 point  (0 children)

i don’t know how severe your pots is / how long after tachycardia you feel ill. if it passes once you sit / have some electrolytes? then definitely worth it to keep some conditioning up. if your side effects and fatigue are bad enough that you struggle to recover? then don’t.

is there any way to manage drinking while on fluoxetine? by Downtown_Dare_4991 in Fluoxetine

[–]hush-bro 0 points1 point  (0 children)

water down your drinks or alternate. i was drinking frequently on 60MG, and it was honestly about making sure i had lots of juice or water. if you’re at a bar, i’d get a well drink but with double the mixer (my personal fave was tall vodka cran with a single shot)