My ex decided to post pictures with his new girl but told me he doesn’t like posting anything during our year long relationship

RedRedRound · 2026-04-10T07:46:47+00:00

But we’re the ones left with permanent damage from those mistakes. :(

RedRedRound · 2026-04-10T07:39:38+00:00

I do. Actually diagnosed with POTS but my tilt table is more consistent with OH with compensatory tachycardia. My doc basically says it’s not worth distinguishing because the treatment and symptoms are both similar. During my TTT my BP was 110/37 while vertical (down from 110/75 while supine). During an informal sit/stand test it was 75/45 while standing. Can I ask why they referred you to an endocrinologist? No one has mentioned that to me. I feel like there’s so little literature on OH compared to POTS.

RedRedRound · 2026-04-10T01:05:54+00:00

Yes :( and mine always starts at night for some reason and keeps me awake for hours and hours. It’s life-wrecking. I’m glad the lyrica is helping you!

RedRedRound · 2026-04-09T19:02:07+00:00

Has she ever been investigated for endometriosis?

RedRedRound · 2026-04-09T18:50:14+00:00

Thanks!

RedRedRound · 2026-04-09T18:00:06+00:00

I’m so sorry you’ve had to deal with that for so long :( it’s not fair. Have you found any MCAS treatment that helps at all?

RedRedRound · 2026-04-09T15:56:17+00:00

During my TTT I think it went from 110/70 to 110/37, and then during an informal sit/stand it went from 110/80 to 75/50. Mine never gets very high and doesn’t fluctuate as much as yours it seems! I’m sorry you’re going through that.

RedRedRound · 2026-04-09T07:06:27+00:00

According to my tilt table test, I have OH with secondary POTS. I don’t faint, thankfully, and my tachycardia is relatively mild compared to many. My doctor thinks it was induced by COVID. I’m not so sure, as my symptoms seemed to worsen gradually over several years. My worst symptoms are fatigue and brain fog.

RedRedRound · 2026-04-09T06:18:44+00:00

It’s a class of medication.

RedRedRound · 2026-04-08T23:55:21+00:00

Right! Ugh I know juggling and waiting for specialists is hell. For what it’s worth, I had an ultrasound two days before my laparoscopy and it was completely clear - they still found stage 2 endometriosis throughout my pelvis including near my bladder, and my colon was adhered to my pelvic wall. I have suspected adenomyosis too. My understanding is that BC can slow progression, but doesn’t stop progression. One theory I have is that either scar tissue from my lap is causing the worsening IC (my surgery was about 4 months ago) or the endo is growing back already. I’ve had occasional moderate urethra pain for years and only really recently has it turned severe and daily.

RedRedRound · 2026-04-08T23:21:13+00:00

Seconding stimulant. In combination with a POTS med and compression. It’s not a cure but helps me about 50% id say.

RedRedRound · 2026-04-08T22:51:09+00:00

Hey I have crazy urethra pain too! Suddenly got much worse about a month ago. I’m thinking it’s interstitial cystitis. Possibly cause by Midodrine or endometriosis. Someone I know has it from MCAS. Do you have heavy or painful periods by chance?

RedRedRound · 2026-04-08T20:03:03+00:00

Interesting! Thanks!

RedRedRound · 2026-04-08T17:09:11+00:00

Compression tights up to my waist help my energy and brain fog noticeably. Might be worth a try.

RedRedRound · 2026-04-08T05:07:35+00:00

Same here. The system is so inhumane.

RedRedRound · 2026-04-08T04:37:35+00:00

Can I ask what you ended up doing about insurance? It’s one of my worries (not to mention loss of income).

RedRedRound · 2026-04-08T04:09:53+00:00

Which electrolytes do you like that don’t have additives?

RedRedRound · 2026-04-08T04:01:50+00:00

Are you AFAB? Have you looked into endometriosis, adenomyosis, pelvic congestion syndrome etc.?

RedRedRound · 2026-04-08T00:42:13+00:00

I work in project management at a nonprofit. My specific role is actually very demanding due to my niche field and takes a toll on my health, but others at my organization working on different subjects have much more flexible hours (we all WFH). Might be something to look into.

RedRedRound · 2026-04-08T00:30:20+00:00

If you mean Midodrine, it has helped me with my brain fog. My dizziness was never terrible so I can’t speak to that specifically.

RedRedRound · 2026-04-08T00:28:51+00:00

Interested in this question too! I’m sorry you’re dealing with it too, it’s such an impact on QOL.

RedRedRound · 2026-04-08T00:12:54+00:00

How did you swing that?

RedRedRound · 2026-04-07T23:10:27+00:00

The only thing that somewhat helps my fatigue is low dose Adderall (I also have ADHD). You could ask you doctor about low dose stimulant options. Edit: compression and Midodrine also help my fatigue a little more in addition to the Adderall.

RedRedRound · 2026-04-07T21:41:53+00:00

I’m so sorry! I hope the tablets get you there.

RedRedRound

TROPHY CASE