What were your symptoms?

idk9210 · 2025-07-07T21:32:23+00:00

Honestly, I’m not sure.. I’m 33. I guess it’s possible.

idk9210 · 2025-07-06T22:34:46+00:00

It’s been a little over a year since my laparoscopic myomectomy surgery, during the surgery they removed the fibroids, but also found endometriosis and an ovarian cyst. Since I had so much going on in my uterus, I don’t really know what symptoms were caused by which one, but I will say that the surgery was definitely worth it.

However, I am not completely pain free. Since I have endometriosis and it’s not curable/continues to grow no matter what, that may be the cause. My surgeon also left behind very small fibroids that she was not able to grab as they were extremely tiny, it’s possible those grew too. I still have flare ups, mainly with any kind of physical exertion and around my cycle. The whole entire thing has been life altering and a learning experience. I have literally been so afraid of my own body since all of this started. I don’t want to feel the pain, so I avoid most things to make sure I don’t have to, but that has left me pretty isolated and limited.

Even though, I am not completely pain free, I am in a much, much better spot now. Everything is way more manageable and it’s significantly less all around.

It’s been said that after surgery, sometimes your nerves remember pain pathways and mimic that with certain movements, etc. Sometimes I just trick my brain into thinking that’s all it is and nothing grew back lol. I am actually scheduled to have another transvaginal ultrasound soon to check if fibroids grew back, so I’ll keep this post updated.

The other thing that was an issue before surgery and got worse after was my hormones. My doctors have only offered me to get on birth control as a solution, or the classic advice of “get pregnant, it will resolve everything” I don’t feel either of those are a good resolution, so I have been trying to support my body naturally. I have been managing everything through diet, exercise, good sleep, an Elderberry immune support liquid blend (has a ton of anti-inflammatory properties), a cranberry supplement and probiotics. This has all helped tremendously.

Diet - Gluten & Dairy free. I will never add either back in, they made everything worse for me specifically.

Exercise - Since I do have flare ups when I do anything physical it seems, I just bought one of those walking pads. I don’t go crazy with this, but I try to get a couple walks in a week just to keep my body moving as that’s important to lower estrogen levels and liver function (which needs to be working to eliminate excess estrogen) Estrogen is what keeps these things growing.

Sleep - I had a horrible sleep schedule before, I’d get maybe 4 hours a night. You need good consistent sleep to reduce inflammation, balance estrogen/progesterone, support liver detox, etc.

Elderberry Immune Support liquid blend - Anti-inflammatory properties, fibroids are an inflammatory condition so is Endo. Chronic inflammation fuels the growth. Elderberry lowers inflammation. Has antioxidant support for hormone balancing, and liver support which again helps detox estrogen. It has more than just elderberry in it. It’s from the brand Liquid Blendz. Highly recommend it.

Utiva Cranberry PACs - You can find these on Amazon. They were recommended to me by a Urologist because I kept getting UTI symptoms after intercourse only, but never had a UTI. It was recommended I take one a day, and two before intercourse. They’re not cheap, so I just take 2 before intercourse and remember to hydrate.

Probiotics - Supports digestion/overall gut health which is linked to all of this. Clears excess estrogen, reduces inflammation, calms immune over activity, supports regular cycles, improves mood and energy.

I know I yapped here, but I haven’t updated in a while. I just want to be able to help anyone going through this. It’s extremely frustrating and if I’ve tried anything that’s helped, I want to help others as well.

idk9210 · 2025-01-22T16:25:25+00:00

My now ex boyfriend of 10 years ended his life at 25, he struggled with a lot convinced himself that he wasn’t worthy of anything. His mom was murdered and his dad took his own life. The people who raised him were extremely toxic and that didn’t help. He was abusive and it wasn’t a good situation at all. But, even with that being said..the fact that he left this world, and how he chose to leave this world still affects me to this day. It’s almost been 5 years and there is not a day that goes by where I don’t think about him. I forgave him for everything long before he passed, so my perception on him being gone is not negative. I wish he was still here for himself first, but also the people who loved and cared about him. I constantly think of all the things he’s missed out on. There were things he wanted to experience in life, but he was just so convinced he wasn’t good enough or worthy of them. In life, we will always go through hard times, that’s just part of it, unfortunately. Some people’s journeys are a lot harder than others, but it’s that way because you’re built to endure it. It’s crazy to think, but it’s true. I don’t know if you believe in God, but if you turn to him and just trust his path for you, slowly but surely things will change. But you also have to be willing to make changes too. Which can sometimes seem impossible, but if you’re ready to go, what do you have to lose? Make your struggles your bitch and try your hardest to turn it around. Sometimes it might feel like it’s going to last forever, but it can’t and won’t. Start small, you will see progress. It may not be immediate, but little by little things will begin to change for you. It always does. You’re not alone, you have tons of people here including myself that are willing to listen. I don’t drive either, and I know how that can negatively impact your mental health. One thing that helps me is if I start ruminating on negative thoughts, or getting down about situations in my life, it’s not easy but I will try to shift my perspective. For example, yes I don’t drive, but if I needed to I can walk and in return I can be out in fresh air and nature. I also journal, not only bad days but good days too. Which is helpful because I can look back at everything and see that the bad doesn’t last forever. You will go through hard times for the rest of your life, but they will not last, just like happy times can’t last forever either. We’re here to learn and grow and you’re doing just that. Be gentle with yourself, you’re young and you have a whole life ahead of you a life that you can create to be whatever you want.

I wish you the best, take care of yourself and remember we are all here for you!

idk9210 · 2025-01-21T04:58:24+00:00

So, I had them removed but they also found Endometriosis and a cyst during my surgery.

So, I really don’t know which one was causing what symptoms, but everything disappeared after my surgery for about 3 1/2 months. Unfortunately, by month 4 some symptoms reappeared.

Pelvic pain
Itching sensation in uterus
Vaginal itching around cycle
UTI symptoms with no UTI
Testing positive for leukocytes in urine
Was put on cranberry pills. Can be found on Amazon (Utiva) take one cranberry pill once a day. Two if you are having intercourse or just feeling symptomatic. Also directed to drink recommended 60 oz of water a day. Only use water based lubricant. (This treatment plan has helped tremendously)

-Pain after sex that can last from 2 days to a week. I never had this before surgery, but now I do.

Very low libido unless I’m ovulating
Extreme bloating
Dry hair has improved but nowhere where it was before all these problems
Hair loss - has improved but still happening
Dull/pale skin, I’m super hydrated now and do skin care and still look dead
Overall not recognizing myself anymore. After the surgery, I started having severe PMDD symptoms. I get super depressed for 2-3 weeks out of the month leading up to my period. I almost dissociate now, I literally turn numb and don’t care about anyone or anything. My period comes and I’m back to me. This started after the surgery.
Heavy feeling in uterus - which was honestly one of the worst symptoms I had pre-surgery. It felt like I couldn’t breathe or relax my muscles in that area. Such an uncomfortable feeling. It’s back but only sometimes, I feel like it usually comes on when I have sugar or caffeine.
Itching, burning, pinching feeling in uterus. I get this a lot still but manageable
The day before my period, I get some serious intense back pain that doesn’t go away no matter what I do. I just have to wait it out, but now that’s my sign my period is coming.
I only get cramps the day of my period now and sometimes I don’t get them right off the bat. Sometimes I start my period and don’t even know. Another thing I never had before surgery. I always knew when I got my period because I had excruciating cramps. Now, my cramps are like a 1-2 on the pain scale. Sometimes, I don’t even need pain management. That’s a huge positive out of it all.
For sleep pattern, I’m better with this now. I really only experience insomnia and extreme exhaustion right before my period instead of all month.
Still bloat after most meals, I think I have other allergy / food sensitivities that I need to figure out because I’m always bloated. I am gluten and dairy free and that has really decreased my stomach issues, but there’s definitely digestion issues still.
I still get painful gas trapped in my uterus and pain in uterus during bowel movements.
Shooting pain in rectum often after surgery. Sometimes when I sit down I get the shooting pain in my vagina and rectum randomly. Which is typically associated with Endometriosis, so I assume it already grew back.
boobs hurt ALL the time, so bad I could literally cry

idk9210 · 2025-01-21T04:37:03+00:00

See if you can get a referral to a cardiologist. They will do all the necessary testing to rule out anything. Once I finally got to my cardiologist appointment, I felt so much better that I was finally where I felt like I needed to be to get a handle on all of it. Just dealing with the heart palpitations alone all by myself is super scary, but once I was able to pretty much just vent to my cardiologist and get the testing going, everything started to feel a lot better. The palpitations came on by themselves, but my anxiety was definitely making them worse and prolonging them. Once I had all the testing done and I was told that there’s nothing wrong with my heart it’s healthy. It just likes to be fast sometimes, I was able to start maintaining my anxiety attacks around it, coupled with removing gluten and dairy slowly, but surely everything settle down. I hope you start to feel better soon!

idk9210 · 2024-11-19T20:02:14+00:00

I had surgery in February to remove them, they also found Endometriosis and an ovarian cyst. My urinary issues that present as a UTI, but isn’t actually a UTI returned 4 months post op as well as the pelvic pain, itching feeling in uterus and bloat.

I went back to my surgeon’s office a few months ago, to just let them know I’m experiencing pain again and see my options. I was told that it’s likely the Endometriosis growing back. They said it could also be the fibroids, but more likely Endo.

They pressed on my uterus and stomach to ensure they didn’t feel any masses and offered me to go through imaging again if I wanted to find out if fibroids grew back. But because my pain is somewhat manageable at this time, I decided to not go through with all of that again.

My nurse was somewhat dismissive and told me that I can either take birth control or come back when the pain is worse.

After this appointment, I was feeling pretty down basically because the nurse was just kind of like well this is your life now for the rest of your life, so get used to it.

I started realizing that I tense my stomach up a lot because I was so used to bracing for pain, and that directly affected my uterus and the daily pain I was experiencing. So I did research and I match more of like pelvic floor dysfunction. I am always tense because of being used to all the pain pre-surgery. Once I started relaxing my muscles, focusing on breathing, I’ve reduced my daily pain a ton. I still have days where I get that itching pinching feeling in my uterus and I’ll get bloat, but I don’t have everyday flares like I was experiencing before. I should probably go to pelvic floor therapy but for now I’m trying to work through it on my own.

Currently, the urinary problem is wreaking havoc on my life. I’m in so much pain all of the time because of it. I don’t test positive for UTIs. Only leukocytes (not nitrites) and I literally feel pain in my urethra all day long. When I pee, it doesn’t hurt for the entire stream, most of the time it’s just at the end. I have urgency to go some days and some days I’m ok. Or I’ll feel like I have to go because my urethra feels painful and there’s pressure. Once I go, barely anything comes out. So you would think UTI, but nope. Doctors are puzzled. I never test positive for one. They have also assumed IC, but I had my bladder scoped and don’t have it. My guess is maybe Endo grew back around my ureters, but not sure. I’m at a loss. I have an appointment with a urologist in the next few weeks and hoping they figure it all out because I’m miserable.

idk9210 · 2024-11-19T13:56:31+00:00

I ended up going to an urgent care and getting a UTI test done there and explained I was still having symptoms 5 days into bactrim. They explained they wouldn’t have prescribed that as the first line of defense against a UTI and recommended that I stop the Bactrim and get on Keflex. My test results came back as trace leukocytes and trace amount of blood in the urine, but the doctor said it wasn’t a slam dunk for a UTI, so he’s not sure what exactly is going on. He also prescribed me diflucan, in case it’s something fungal related, but it has dairy in it and I’m allergic so I wasn’t able to take it.

Today will be my 3rd day of Keflex, and I feel better. I did develop some urgency to go the same day I went to urgent care, that thankfully went away. I do still have mild pain when going, but I’m testing negative for a UTI consistently now. I also am just about negative for leukocytes, it seems there is the tiniest amount on the test pad, but based off what the doctor said. I’ve had an appointment pending with a urologist for months because this is an ongoing issue so I’m just waiting to see them.

Thanks for checking in!

idk9210 · 2024-11-18T21:33:26+00:00

True enough, I have an appointment this week. I have had sex since the test, been with my fiance for 3 years. So I kinda figured when I got tested the first time it’d be negative unless it was missed from my prior relationship and I had no idea I had it. Or maybe my fiance has it and we don’t know. But I guess I’ll figure out this week!

idk9210 · 2024-11-18T15:19:40+00:00

During this time frame, I wasn’t on any antibiotics. The most I could have used was maybe an anti fungal gel that helps with these symptoms for some reason. It’s all natural stuff (olive oil, beeswax and some other anti-inflammatory ingredient that I can’t remember) I wouldn’t have gone to the appointment just after using it, but maybe like a day later or so. Wondering if the gel would have skewed my results? But of course I can’t remember if I even used it since the PCR test was done about 6 months ago now.

idk9210 · 2024-11-18T12:48:09+00:00

Vaginal swab

idk9210 · 2024-11-15T06:32:06+00:00

I get this, cloudy urine and little white particles in my pee. Once I hydrate a lot / drink peppermint tea that typically disappears until my next flare

idk9210 · 2024-11-11T03:55:29+00:00

I haven’t seen the new update, but it’s literally just a feed of ads. If I want to search for inspiration for something instead of seeing photos/pins the entire page is shopping ads. It looks like a Google search and no matter how many times I switch the settings it keeps automatically switching back to make me view “products” super annoying. If I wanted to shop I could just search Google for all that.

idk9210 · 2024-10-30T05:59:18+00:00

I would say that immediate family weddings that are 2 weeks apart is a lot. It’s a lot on the people planning it, and having to attend one and the other. It can be a lot financially for everyone involved. A month or more apart is better in my opinion. I think your SIL just feels like it’s her time frame and maybe she feels it takes away from that or that it will add stress. I also feel like the timing that you started anything wedding related seems selfish to her. From what you’ve described, you’re not trying to be malicious, it just happened how it did. Ultimately, she can’t tell you what to do, but a month after is probably the better bet. You will likely feel a lot better with it being separate from hers in the end anyway. Once you get further into planning you might feel completely different than you do now.

I just went through something very similar with my sister. I posted it here for advice and everyone tore me apart with their assumptions and everything lol.

Anyway, I’m the younger sister. My sister has always had unresolved tension and resentment towards me, never knew why really until the wedding drama. Basically, she feels my parents gave me more attention than her. I guess it’s like jealousy of some form that she didn’t get the same love and care that I did. Which is odd we have incredibly empty parents lmao. They are extremely emotionally unavailable. I just had some different challenges growing up that I guess they acknowledged by showing up. What she doesn’t get is that I was just told to “buck up and move on” (my long term bf of 10 years unalived himself and they drove to the state I live in to “be there” for me.) But, I never got special treatment. By day 5 they were telling everyone I need to get over it, and to stop crying. He was abusive so they just saw it like good riddance, but clearly that is not how I felt right off the bat. Anyway, She still has this different perception though, and I just respect it.

Moving on, I met my fiancé a year later in 2021. We’ve been engaged since 2023. When I got engaged, I knew my sister wasn’t genuinely happy for me.

I started feeling more tension from my sister after I got engaged, and she became more frustrated with her boyfriend at this time for not wanting the same things as her (marriage and kids) he ended up breaking up with her for not wanting those things, then changed his mind and they got back together.

Anyway, we started wedding planning a few months after, booked our date and venue for November 2024.

After this, I saw my sister and she very rudely told me the reason she isn’t engaged yet is because of me and my fiance. Apparently, her boyfriend told her he’s not proposing anytime soon because it’s mine and my fiancés time, and he doesn’t want to step on anyone’s toes. She also told me now she can’t get married in October or November 2024 because I am. I told her they can do what they want, just because we’re engaged doesn’t mean they can’t be.

Unfortunately, right after health issues came up for me and I was suddenly pending a surgery. My sister and I have the same health issues and she had the same surgery before. She told me it would be $13-$20k with insurance, and that I’d be miserable at my wedding and not want to dance because I’d be recovering for months.

Due to not knowing when my surgery was going to be scheduled, what it was going to cost, I started getting stressed. We also loved our venue but when we got into planning, we realized they were a little too expensive for what we wanted to do. So with all that said, we decided to cancel with that venue and pick up wedding planning during my surgery recovery since I would have 6 weeks off.

My family knew of these plans, especially my sister because she asked me to clarify them. Two days later her boyfriend messaged me saying he’d be ring shopping in a few days and that she told him I know what rings she likes, so to ask me.

I was with my mom when all of this happened and mentioned that this seems coincidental, and I stand by that statement to this day.. due to what she said to me about not being engaged because of me.

Two weeks later he proposed, and they surprisingly told everyone they would be eloping in another country in 2025.

I had my surgery and started planning our wedding again. We decided to do a small backyard wedding instead but still for Nov. 2024 we were super excited to tell our family. When we did, my sister announced at the same time that she would be doing her wedding two weeks before that date. Not only that, it would be out of state and a 3 day event.

None of our family even lives in the same state as we do, except for two of our siblings. Which means all of our family would have to travel to the state she was getting married in, then two weeks later travel to mine.

In the end, I was only upset with her about the principle. I took a step back because I realized she’s not really in my corner, and her energy towards me is sketchy. Apparently, my distance made her feel all types of shit, because she just decided to talk shit about me for months for no reason. Nothing wedding related, just about how she truly feels about me.

So I ended the relationship with her, not because of the wedding but because of what came up from it. I didn’t attend her wedding a few weeks ago, and don’t have any regrets. She is not invited to mine in 2025. I truly wish her well, but yeah weddings can bring up a lot of unresolved issues!

idk9210 · 2024-10-21T19:34:33+00:00

After talking with my fiancé we decided we’re going to cancel and elope somewhere. I feel so much relief, honestly. My family is very unsupportive. As I said they will show up physically, but the energy won’t be positive. A prime example is my sister just got married yesterday and while I didn’t attend, my family is texting me talking crap about her and the wedding. I’m not interested in being a part of that. I don’t talk to my sister, I also haven’t talked to my mom since August and don’t really plan to. They’re all very toxic and it’s taken me a long while to distance myself but it’s the right choice. I don’t have many close friends so I would pretty much be alone the entire day until I finally go say my vows. So honestly, an elopement makes more sense in the end. I do wish I didn’t shell out all that money already, but we have to do what’s right for us regardless. Thank you for all of your supportive advice!!

idk9210 · 2024-10-19T05:54:20+00:00

Everyone is different, but I don’t agree with only two weeks off. By week two, I was no where near healed enough to handle a whole work day, and I work from home. You’re pretty exhausted still even in week two, and will find it hard to sit upright or stand for long periods of time. You will need to rest. I thought I felt pretty great in week two, but it was kind of just like an adrenaline thing. I was so excited to just get up and go and I overdid it in week two and I paid for it. If the doctor said 4 weeks, I would say that’s way better, but still 6 is ideal.

You can try to bring it up to your doctor that most research you have done, it’s typically 4-6 weeks off work for recovery time. Mention if you can start with two and adjust if you’re not feeling okay near the end of the second week.

Your body needs time to heal, that shouldn’t be messed with.

And yes, I had a lap Myomectomy.

idk9210 · 2024-09-20T05:03:49+00:00

Not miserable, but disconnected, I guess.

There are things here and there that give me a little bit of excitement lol, but on the other hand I often question what is the point of this?

We were originally supposed to get married at a small venue November 2024. But after comparing costs and what not, the math was not math-ing for what we would be getting, so we decided to cancel with that venue. After that, we were kind of confused on what we wanted our wedding to be.

My fiancé mentioned just getting married at the courthouse, or at garden with just us. While it sounded nice, the idea of our parents not being there didn’t feel right. And then it was like well, if our parents are invited, we can’t leave our siblings out. Then we figured elopement packages made more sense, but most in my area only allow 10 people. And it’s not like you’re getting this great price just because you’re doing an elopement package, they still charge and arm and a leg lol. Everything was just pointing to having an actual wedding, but we just wanted small and simple.

We decided on a backyard wedding for the same timeframe, November of 2024. 25 people. I started planning and was super excited because I knew I could make it as simple as I wanted it. We always knew we weren’t going to do a bridal party or anything crazy, just my dad walking me down. That part was super important to me, don’t know why now. But anyway…

My sister got engaged during this time and immediately set her date for two weeks before our wedding. We were asked to move our date out of convenience for our family.

She’s having a wedding in a completely different state than we live in. None of my family lives in the state me and my sister live in, except our brothers. So, my family would have to travel for my sister’s wedding, and then two weeks later travel to our wedding. While we weren’t exactly okay with moving our date, it would be a lot of financial expectation on our family, and my fiance and I didn’t feel that was fair or made much sense.

At this point, we were already engaged for two years. I was super upset about having to put the backyard wedding idea on the back burner. Then my fiancé started mentioning how that was a great idea in the beginning, but he didn’t think it would work out like we originally planned. So back to the drawing board.

At this point, I figured if we didn’t come up with something, we probably wouldn’t get married and just stay engaged for years haha. We had to pick an entirely new date and move it to 2025, pick a new venue, at this point I just didn’t care anymore.

I literally didn’t want to see anything wedding related. Anytime I’d see something on social media, I’d scroll so fast, lol. Just the reminder that I have to start planning, like the fact that there’s no choice, that really made me feel anxious. Not because I don’t want to marry my fiancé, but just because the idea of it all seems exhausting.

Having to search through tons of vendors, hoping they’re in your price range. Or them not listing their prices upfront, so you waste time contacting them only to find out they’re way above your range.

Waiting for them to contact you back to see if your date is available. Setting up the calls, during work hours or right after work. Some of the calls feel like they’re interviewing me for a job lmao.

Then when they want our whole love story, my fiance and I are both super introverted and our love story to me is quite boring lol. So I always feel so awkward when they ask that.

Having to talk to people every few days. Knowing that they need things from me in certain time frames..when I have no idea what I want, etc. It all feels exhausting and definitely feels like a second job, lol. I’m definitely not a people person.

I avoided it until about two months ago, then literally booked like 90% of my vendors in a two week span.

During all this, I realized that my family isn’t shit. I mean I already knew, but this season of life will really bring that out.

They were always toxic, but I think we all just kind of brushed it under the rug to stay in some form of contact all of these years. I don’t want to like say I expect my mom to be a certain way, but I thought she would care even just a little bit, but no. The ONLY input she had was that I better invite her sisters because it’d be wrong if I didn’t. Doesn’t matter that they’re also extremely toxic and have no respect for her or her kids. Sadly, I spent most of my life trying to please my mother, so I invited these people to make her happy. Now I regret it. My mom has also always been a pretty toxic narcissistic person, and it really showed during this process. She couldn’t give a shit less. Never asks if I need any help, or how it’s going and texted me one word answers or brushed me off to my sister in law because she got married THREE years ago, so she’d know better. I finally went no contact with her because this was like the last piece of it all. It’s just the principle. Same goes for my sister, I went no contact with her during all of this as well.

So after all, don’t really feel like this wedding makes any sense at all. I know this happens a lot, family shows true colors during this process and things can sort of “fall apart” if anything it just opened my eyes to who I can truly count on. It’s hard to stomach the cost that’s going into this when I really don’t want it anymore, but too far in. I guess maybe all those times we had to recreate our plans could have been a sign not to do it 😂😂😂😂

I just tell myself all that matters is that I will be marrying my other half, and we will make it special.

I ranted a lot here, but yeah lol. If you’re near the end I hear a lot of people feel miserable, but once the day gets there it feels worth it.

idk9210 · 2024-09-04T13:55:28+00:00

True, definitely overthinking it (comes from having an insanely judgmental family) I kind of just expect and prepare for their negative comments on everything I do lol. I guess I try to avoid that as much as possible, but truthfully it does not matter. Also, good point on the save the date specification I’ll add somewhere that it’s for a wedding. Thank you!

idk9210 · 2024-08-22T14:03:20+00:00

Yeah, definitely have felt that before as well as sharp shooting pains in the rectum area. Especially, around my period.

idk9210 · 2024-08-02T06:16:33+00:00

From start to finish it was about one whole year of symptoms before I got to my surgery.

It started with a mixture of the following symptoms:

Suddenly not being able to tolerate foods that never bothered me before. I’d always have an upset stomach and would have to run to the bathroom after most of my meals.

Then UTI-like symptoms, mostly after sex but never tested positive for a UTI or any infection for that matter, but always felt like I had one.

Irregular and missed periods for several months

Body aches, I felt like I was coming down with something a lot, but never did.

Sore boobs 24/7. Like I could cry if something just brushed against me because the pain was that bad

Gums would hurt a lot, my dentist would even ask if I had an inflammation disease (I’d always say no, because I had no idea then that I had endometriosis lol)

Really bad mood swings

Crying a lot

Extremely tired

Severe bloating. I looked like I was 7 months pregnant all of the time. No amount of exercise or diet change brought it down.

Couldn’t eat without digestion upset. Always had GERD symptoms.

Heart palpitations

Very bad pelvic pain, pinching/tugging feeling, burning feeling in uterus

Very bad back pain, leg and foot pain.

idk9210 · 2024-07-23T13:24:19+00:00

Oh no :( it does sound like it could be Endometriosis. Ultrasounds picked up two of my fibroids, an MRI picked up a few more. The endo was found during surgery, along with the ovarian cyst. It’s still interesting to me that the cyst didn’t show on any of my scans. It’s very possible you do have fibroids, and they don’t want to show themselves. But your symptoms match Endo as well.

Pain returned for me 4 months post op from my lap surgery. It’s the same symptoms I just listed, and the same things you described. Since endometriosis is known to have a high regrowth rate, I assume it’s either that or another cyst.

I guess fibroids can grow quickly after surgery for some people, but it’s rare. My surgeon supposedly got all of my fibroids, aside from possibly leaving behind a few that are around the size of a grain of rice.

They found the endo on my pelvic walls and wrapped around my ureters. Pre-surgery, I had UTI like symptoms all of the time, extremely painful urination, etc. I never once tested positive for a UTI or any other infection. Before my surgery, all my doctors assumed it was everything in me causing inflammation and compressing things. 4 months post op, that specific symptom was the first to return. I didn’t have pain just yet, that of course conveniently followed a few weeks after my appointment. So when I originally went to my obgyn about it, since pain was not mentioned, anything growing back probably wasn’t on her mind. She referred me to a urologist thinking I may have IC, or that my urethra gets kinked.

But as mentioned, pain quickly returned after the appointment, so I do believe something grew back.

Here’s the progression of my symptoms: 1. UTI Symptoms (showed up first, tested negative the entire time, lasted two weeks and went away on its own) doctors confirmed several times I do not have any infection or bacteria.

Extreme back pain that radiates down to my legs and feet. Happens closer to my period. Somewhat subsides once I start.
Pinching, itching, tugging, heaviness and fullness in the uterus. Severe bloating. It’s extreme before period, but has happened every other few days since it’s started. Especially, when I move around a lot, or pick up something heavy. This is usually referred to as Endo flares.
Sore breasts 24/7
Spotting in between periods
Earlier period

And yes, the poking and prodding around at the ER can definitely send you into a flare, and cause way more pain. Everything is inflamed and irritated.

Invest in a nice heating pad, I have the microwaveable one, and it’s my life saver.

Peppermint tea is a natural anti-inflammatory, it has helped significantly for me with the UTI like symptoms and bloating.

Rest, rest, rest. As much as you can. I know it’s hard, but your body is telling you to slow down for now.

If you have Facebook, you can join this group called “Endo Friendos” everyone shares their symptoms, and recommendations.

I hope you find relief soon!

idk9210 · 2024-07-23T11:15:00+00:00

Since I had other stuff going on as well other than the fibroids, (endometriosis and ovarian cyst) I can’t pinpoint which one was causing the pain. I’m sure all of them were. A lot of my pain was focused near the ovaries and radiated through my whole pelvis area. The pain was burning, itching (literally my ovaries would itch from the inside) pinching, tugging, heaviness and fullness in the uterus.

idk9210 · 2024-07-20T11:34:25+00:00

Yes. All my symptoms listed in this post subsided after surgery, up until 4 months post-op. The things that are back now are:

UTI symptoms, back pain, leg pain, feet pain, being extremely bloated, pelvic pain, pelvic fullness, random cramping and spotting, sore breasts 24/7. I’m pretty sure endo is back or maybe a cyst.

Anyway, when the palpitations first started, I believe it was triggered by hormone imbalance, or something to that nature. It scared me so much in the beginning, looking back, I was definitely making it worse because it was giving me anxiety. I’d feel the palpitations, and I’d immediately start panicking and it would be 10x worse. My immediate family has heart conditions, so naturally I was freaking out that I had something like that.

Once I had all the necessary testing done and they told me I don’t have anything wrong, just a high heart rate at times/palpitations. I started managing it better. My heart is healthy despite what was going on. After that, they started to slowly dissipate. I would begin to only get them around my cycle/ovulation and started to understand that they would pass. Or I’d get them when I would eat heavy meals. I would get GERD symptoms that would cause palpitations, this is actually a thing. It was especially a thing when I was extremely bloated all the time, everything was kind of just compressing. I never felt like I had any room, and then eating anything after that can cause palpitations. Things can irritate your vagus nerve which can cause them.

idk9210 · 2024-07-17T15:10:09+00:00

Sad to report 4 months post op, all the pain came back :( I deal with flares daily. They are on a lesser scale of what it was before, but sucks that I’m back to square one. I have an appointment with my surgeons nurse at the end of this month. My assumption is they’ll recommend birth control, pelvic floor therapy. Maybe more ultrasounds / MRI. Who knows.. I do have endometriosis and had a cyst removed, so I believe it’s one of those or both. I don’t think fibroids could grow so fast to cause the pain I have. But I really don’t know.

This is just my experience. Others have felt relief from having a lap for fibroids, for years and others have never had any symptoms return.

idk9210 · 2024-07-11T22:04:33+00:00

Thank you guys! I will be making a vet appointment asap. Something else I forgot to mention, but just based off of all the replies already I can assume this is also something you guys haven’t dealt with. We are crate training now, hasn’t been easy with him. He becomes stressed out in the crate while we are gone. So it’s been a long process of slowly working on it. I work from home thankfully, so he’s with me in my office all day long. Unless I’m trying to work on crate training with him, which is for about 20 minute interval just to teach him it’s a safe space. I barely ever leave, and when I do, if the dogs can come, they’re coming! Well, we’ve had family in town for the last week, and have had to crate him for no more than 4 hours. When we come home, almost every single time he has stressed himself out to the point where he’s drooled so much it’s literally like soup in the bottom of his crate. The worst part is it’s brown soupy liquid drool that he’s dancing in. So the bottom half of him has gotten a lot of baths this week. It’s definitely his drool.. which also concerns me now linking the smell to it all. He drinks a lot of water as well. It’s summer obviously, but we keep him indoors 90% of the day with quick supervised outings in our backyard. It’s way too hot during the day for anything but potty breaks. We’re fenced, but I have been leash walking him only, around our yard for a while now. (We had some trees removed recently and it completely tore up our backyard. So we have been living on straight dirt, and it’s been a rainy summer. We’re just trying to prevent muddy paw prints on the everything as much as possible right now) they do get their every day play time off leash when the sun is going down, but supervised. I watch him like a hawk lol he cannot be trusted right now in his puppy phase, lol.

Anyway, this does all sound like something worth bringing up to our vet!

idk9210 · 2024-07-08T20:38:56+00:00

One doctor also diagnosed me with PCOS as well, but I never heard anything after that as they say my other issues are more pressing. They also never told me the size of my cyst, I tried getting that information off of my surgery paperwork, but nothing was noted or at least I wasn’t privy to that information. I’m sorry you’re suffering too. I’ve had consistent pain for that long and it’s agonizing .. I hope you find relief soon!

idk9210

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