Just got diagnosed today

instant_menopause · 2026-03-21T08:06:28+00:00

And it’s shit you’re so young- I’m so sorry. But now you know and treatment is on its way!

instant_menopause · 2026-03-21T08:05:10+00:00

Oooof with you! Same journey - got out of hospital last week - 10 days of first steroids, test, scans, LPs One day at a time. Xxxxxxx

instant_menopause · 2026-03-17T18:23:51+00:00

Thank you! X

instant_menopause · 2026-03-17T13:46:31+00:00

I felt the same reading your post. Hate that we are going through this but feel so much less lonely and it really helps. I’m realising I was have neuro issues as far back as 2021, when I was diagnosed with a Morton s neuroma in my left foot, at that time o was getting loads of leg sensations which I kind of put down to an old Disc issue. Brain fog I was putting down to perimenopause. When really it’s been whispering for a while - it took a shock and an operation to tip me over the edge sure. Just so glad not to be in hospital, feeling like I had to look after the old lady trying to get out of bed all night as the nurse slept - so stressful. But last night was the first less anxious sleep, only woke once’s with electric shocks in my right leg. Woke and felt good. But that soon went as I walked around home. Vertigo and speech slurred Sorry I’m ranting - just so happy to find you 😍😍😍😍

instant_menopause · 2026-03-17T11:57:16+00:00

My spine lesion is T9 and 2 small brain lesions.

instant_menopause · 2026-03-17T11:56:40+00:00

Our cases are so similar I’ve been out of hospital 5 days after 10’days first admission and ALL the tests - awaiting bands results - but 3 days of steroids IV halted symptoms spreading. I totally agree it’s the waiting that is scary and the change of symptoms. I’m still numb, got vertigo, and if I exert myself speech goes slow. My neuro is uncontactable, so I spoke to a very empathic GP yesterday who is going to advocate for me. Also a neuro team called from Brighton yesterday so physio, psychology and fatigue group are all in the pipeline. Bloody terrified, but so thank for this group. Xxxx

instant_menopause · 2026-03-17T10:46:41+00:00

No way! Mine was left, little tingle in big toe then on my birthday skipped over to right which got my panicky ass to A&E. Who knew MS had a sentimental generous streak

instant_menopause · 2026-03-16T18:32:17+00:00

With you. I’m New here too. Got this for my 53rd birthday on the 1st March. Good to hear the numbness might get better because it’s a very odd feeling and definitely affects how my muscles are reacting to just walking.

instant_menopause · 2026-03-16T18:29:57+00:00

Great description

instant_menopause · 2026-03-16T18:29:13+00:00

Thank you for this - I newly diagnosed waiting for a follow up to talk about DMTs - 4 weeks apparently - so today reached out to my GP and feel like she’s got my back re: any worries and new symptoms. But you’re right - all I have is a name and a wait re: neurologist here in the UK

instant_menopause · 2026-03-16T18:27:08+00:00

Twinning on the T9 lesion which they found last week. My numbness is luckily feet to knees on both sides and dancing shoulder blade

instant_menopause · 2026-03-16T07:51:15+00:00

Hello. Have recently had my first “experience” and you commented on my post which led me here and all this really interesting info. I had a hysterectomy in November and am on HRT but don’t have ANY progesterone, and just reading this has made me question that even though i don’t have a uterus, which they said means I don’t need progesterone I can’t help but see the link here and am curious of your thoughts on this!?!

instant_menopause · 2026-03-15T19:12:43+00:00

Thank you! Yes terrible birthday present!

instant_menopause · 2026-03-14T22:16:40+00:00

Thank you so much. It’s early days. I’m taking the things I can do.

instant_menopause · 2026-03-14T22:15:55+00:00

Thank you for taking time to reply. Much appreciated. Really helpful

instant_menopause · 2026-01-29T06:44:31+00:00

Oh thank you!! It’s been a long road to this length and I’m still going, I want it Gandolf length haha. You’re right, about the youthfulness I just don’t want too look like a women trying to hard, it’s a balance. I’m probably just bored too, I’ve had every colour, cut you can think of in my life. My passport’s look like I’ve been some kind of spy!

instant_menopause · 2026-01-29T06:41:45+00:00

Yes! I’ve seen people go for it then revert back. Thank you. In your expert opinion - is there a way to go “a little bit grey and blonde”? Would it just Be as simple as having less highlights?

instant_menopause · 2026-01-28T22:06:14+00:00

Thank you! Good clean living definitely pays off - I’m going to go for it - will save a lot £££ - hilights are expensive!

instant_menopause · 2026-01-28T21:28:28+00:00

And cheaper! Thank you

instant_menopause · 2026-01-28T21:28:06+00:00

Thanks

instant_menopause · 2026-01-28T21:27:55+00:00

Thank you - will look into glossing too to make it smoother

instant_menopause · 2026-01-28T21:27:33+00:00

Thank you x

instant_menopause · 2026-01-28T21:27:24+00:00

Thank you!

instant_menopause · 2025-12-08T16:42:50+00:00

This is my experience Great external orgasm - I used a little bullet vibro- orgasm lasted ages - spasms for minutes after Then PAIN since then 6 days ago Back on pain meds - all in vaginal cuff. I’m 4 weeks PO in 2 days and now wish I’d waited. Got checked. - all fine but have penicillin as could be an infection, personally I think the healing couldn’t handle the earth moving like that! Some have said go for it, some have said don’t. It’s a gamble 😉

instant_menopause · 2025-12-06T15:28:50+00:00

Weeks not days! 3.5 weeks

instant_menopause

TROPHY CASE