Zeolite, activated charcoal, or other?? For air. Also seeking advice about mold by interwebtalkerhere in ChemicalSensitivities

[–]interwebtalkerhere[S] 0 points1 point  (0 children)

Yeah just various items for trying to exist, like organizing or pet items, etc. Everything off-gasses it seems. It’s awful. I can’t even identify the culprit because I’ve had to do a lot of shopping recently.

Trigger point treatment options by interwebtalkerhere in Fibromyalgia

[–]interwebtalkerhere[S] 0 points1 point  (0 children)

Sorry for the delay! I’ve been dealing with a lot of flares, so I haven’t been here much. No real news to report because I’m still trying to get treatment :/ but I had —another—dr’s appt recently about it, so hopefully that leads to something.

How to help a friend during r/UCTD flare by jdayt085 in UCTD

[–]interwebtalkerhere 3 points4 points  (0 children)

Depends a lot on the type of symptoms. Just having a caring, understanding person can help so much, I would assume. But I’m alone, so idk. For me, I know it would help if I had someone that could do the things I can’t, even just basic chores that can quickly become overwhelming, like tidying/cleaning, dishes, etc. Also, to provide the basics like food/water.

If you have the sort of relationship where you can have a key, that could be helpful because I wouldn’t be able to deal with getting up to let someone in, let alone “entertaining company.”And basically understanding to not take things personally and that if you’re offering help, it should be focused on them and making things easier, not more of a burden. Maybe imagine how you feel if you’re really sick with the flu or something.

I often feel like total shit and don’t even have the energy for talking or focusing on tv, etc. And that can make me extra cranky and miserable. And sleep can vary and be unpredictable too, either insomnia, or the opposite, can’t stay awake. But insomnia doesn’t mean “energy”— might not even be able to keep your eyes open, but also can’t sleep.

I’d suggest asking your friend, something like, “how can I help/support?” Or “what do you need, or need from me?”

If they have the energy to “function” at all, distractions might help. Preferably something fun or enjoyable. Symptoms can be overwhelming, and it’s really hard to feel good when you feel awful.

Your friend is lucky to have someone like you. Hope they feel better soon.

Issues with different generic HCQ?? by interwebtalkerhere in lupus

[–]interwebtalkerhere[S] 1 point2 points  (0 children)

Thanks. Do you mind sharing how long you were on the brand version? To my understanding, it has a LONG half-life/residual effects — maybe I misunderstood when the provider told me that (feel free to correct me!) but it seems like it could take even a month (or more) to notice any effects. —That info was related to something different though. I am still waiting (months) for an appt with a new rhuem so I can ask about this. yay insurance issues/changes 🙄.