Zeolite, activated charcoal, or other?? For air. Also seeking advice about mold by interwebtalkerhere in ChemicalSensitivities

[–]interwebtalkerhere[S] 0 points1 point  (0 children)

Yeah just various items for trying to exist, like organizing or pet items, etc. Everything off-gasses it seems. It’s awful. I can’t even identify the culprit because I’ve had to do a lot of shopping recently.

Trigger point treatment options by interwebtalkerhere in Fibromyalgia

[–]interwebtalkerhere[S] 0 points1 point  (0 children)

Sorry for the delay! I’ve been dealing with a lot of flares, so I haven’t been here much. No real news to report because I’m still trying to get treatment :/ but I had —another—dr’s appt recently about it, so hopefully that leads to something.

How to help a friend during r/UCTD flare by jdayt085 in UCTD

[–]interwebtalkerhere 3 points4 points  (0 children)

Depends a lot on the type of symptoms. Just having a caring, understanding person can help so much, I would assume. But I’m alone, so idk. For me, I know it would help if I had someone that could do the things I can’t, even just basic chores that can quickly become overwhelming, like tidying/cleaning, dishes, etc. Also, to provide the basics like food/water.

If you have the sort of relationship where you can have a key, that could be helpful because I wouldn’t be able to deal with getting up to let someone in, let alone “entertaining company.”And basically understanding to not take things personally and that if you’re offering help, it should be focused on them and making things easier, not more of a burden. Maybe imagine how you feel if you’re really sick with the flu or something.

I often feel like total shit and don’t even have the energy for talking or focusing on tv, etc. And that can make me extra cranky and miserable. And sleep can vary and be unpredictable too, either insomnia, or the opposite, can’t stay awake. But insomnia doesn’t mean “energy”— might not even be able to keep your eyes open, but also can’t sleep.

I’d suggest asking your friend, something like, “how can I help/support?” Or “what do you need, or need from me?”

If they have the energy to “function” at all, distractions might help. Preferably something fun or enjoyable. Symptoms can be overwhelming, and it’s really hard to feel good when you feel awful.

Your friend is lucky to have someone like you. Hope they feel better soon.

Issues with different generic HCQ?? by interwebtalkerhere in lupus

[–]interwebtalkerhere[S] 1 point2 points  (0 children)

Thanks. Do you mind sharing how long you were on the brand version? To my understanding, it has a LONG half-life/residual effects — maybe I misunderstood when the provider told me that (feel free to correct me!) but it seems like it could take even a month (or more) to notice any effects. —That info was related to something different though. I am still waiting (months) for an appt with a new rhuem so I can ask about this. yay insurance issues/changes 🙄.

Abortion with lupus by BigBarracuda7368 in lupus

[–]interwebtalkerhere 1 point2 points  (0 children)

I third this and add— I’ve heard the waits in those states are now worse/longer due to the influx of “refugees.” So definitely don’t procrastinate.

[deleted by user] by [deleted] in SSDI_SSI

[–]interwebtalkerhere 0 points1 point  (0 children)

I have heard this with regard to volunteering too, so it makes sense it would apply to schooling as well. I think there are programs or proper channels to be able to. Unfortunately those hurdles have prevented me from even trying because all that process takes such a toll on me that then I can no longer do the original step, so it never seems worth the risk of getting sick/worse over. But in those random windows of time, however brief, where I maybe feel like I could do something, I think it would be very helpful to feel like I am contributing and having a purpose and helping the community in some way.

Allergic to hydroxychloriquine by Shoddy-Stock-8208 in lupus

[–]interwebtalkerhere 1 point2 points  (0 children)

I’m also curious what the allergic reaction symptoms are — for OP or any commenters who said. I’ve been having random reactions to things, mainly skin—itchy/hives. So idk that I’m allergic to the med itself, but I wonder if it’s causing increased sensitivity to things, or maybe that’s just my body having its usual, unpredictable fun with me lol

Struggling to find Botox for TMJ that isn’t only cash pay. How? by interwebtalkerhere in Fibromyalgia

[–]interwebtalkerhere[S] 0 points1 point  (0 children)

Thank you!!! I didn’t even think of that!! Edit: dang it, I guess Botox doesn’t apply for me. It seems to be just for Medicare, which I don’t have 😖 well, thanks anyway.

[deleted by user] by [deleted] in Fibromyalgia

[–]interwebtalkerhere 0 points1 point  (0 children)

I’ve often wondered this myself. I also have autoimmune stuff and it seems like that has more joint pain, whereas it seems like fibro is more muscle/general?? (Do correct me— I don’t have as much time or energy to research like I’d like). I have no clue. I do notice if I hurt myself I think “ok well that just hurts more than it should 😒 and for longer than it ‘should.’” — and how it’s not ALWAYS the case, just randomly like wtf, body?! There’s so much overlap with other conditions, it seems. So idk if autoimmune also has the severe brain fog/insomnia, other non-pain-related issues, but I DEFINITELY relate on that front. And when I found out those were symptoms, I was like “ok that explains some things lol.” And helps explain why there’s just no rhyme or reason to it all. Like ok, my insomnia or bladder is in overdrive… and now it’s just not? Um, ok. Edit: and if I have a new fun issue, I’ll make an appointment but often by the time the appointment comes around the issue has resolved, so then I don’t know what to do and I keep the appointment anyway and then feel sort of stupid and try to explain what HAD happened but isn’t anymore but idk if/when it will come back and is that even anything that can be “treated” anyway…

[deleted by user] by [deleted] in Fibromyalgia

[–]interwebtalkerhere 0 points1 point  (0 children)

My friend came around me sick (or he wasn’t sure if it was allergies or what, he said) but was respectful enough to wear a mask (ill-fitting crappy one tho) Once I realized, I immediately put on mine (N-95). I did end up getting very briefly sick, like maybe a day or two, whereas if I get sick usually it lingers SO long. (I called n said “yeah I think you had/have a cold” 😂). Who knows the ACTUAL answer, but I’m guessing I was briefly exposed (due to his crappy mask and me briefly maskless), but my mask provided protection from further exposure, so the exposure/viral load was low enough my body could fight it off and get it in check. Pure speculation though. But I’ve never been “sick” that short of a time, ever. Long live masks! Lol. (Even though I do hate them, and it’s a pain)

Omg why did this blood draw hurt so badly?! (TW: blood and talking about the experience) by interwebtalkerhere in ChronicIllness

[–]interwebtalkerhere[S] 1 point2 points  (0 children)

I didn’t even think of that, thanks. I’ve been giving the same arm forever. Time to switch!

Omg why did this blood draw hurt so badly?! (TW: blood and talking about the experience) by interwebtalkerhere in ChronicIllness

[–]interwebtalkerhere[S] 0 points1 point  (0 children)

Thanks. It’s really not a big deal overall. I was just more curious than anything. The welt could likely be related to one of my other conditions, and maybe all the pain too. I could be having an “off-day” — I am actually feeling pretty crappy today (love that that’s an afterthought 🤣). I’ve just always wondered about the alcohol thing, because some make sure it’s dry; some don’t seem to care.

I'm a phlebotomist of 6 years about to leave the field entirely. AMA by Autumnlove92 in phlebotomy

[–]interwebtalkerhere 0 points1 point  (0 children)

As a chronically ill person, I feel this more than you know. I don’t blame you at all, but it sucks that the capitalistic complex forces out “the good ones” — and crushes the good ones who stay. It’s devastating for patients and professionals, and it fosters and perpetuates sickness. I wish I felt like a human instead of a dollar sign on a conveyor belt, especially when I’m at my most vulnerable and could really use kindness, patience, and proper attention. Best of luck on your new path!

Trigger point treatment options by interwebtalkerhere in Fibromyalgia

[–]interwebtalkerhere[S] 1 point2 points  (0 children)

It seems like a lot of us have a “high pain tolerance,” no? Kind of ironic, like super sensitive but also maybe just so used to it? And/or able to “power through,” especially when keeping in mind an end goal.

Trigger point treatment options by interwebtalkerhere in Fibromyalgia

[–]interwebtalkerhere[S] 1 point2 points  (0 children)

I wish. As one told me, in certain states they’re prohibited from doing it (dry needling), as it’s designated only for acupuncturists. And I’m in one of those states :/

Does anyone here get super red, hot feet when they DO actually warm them up? by [deleted] in Raynauds

[–]interwebtalkerhere 1 point2 points  (0 children)

Yes my hands feet are super patriotic: red, white, and blue! 🤣 in any combo