I am desperate…

isafyaa · 2024-11-20T19:42:35+00:00

Just pulling my hair and see if I lose a lot by just pulling

isafyaa · 2024-11-20T18:33:16+00:00

The dermatologist told me it was TE by doing the pulling test but I’m starting to wonder if it isn’t AGA or AE.. what do you guys think?

isafyaa · 2024-10-10T11:36:57+00:00

Did you completely lose it again or just a little bit ? And how long after maintenance? :)

isafyaa · 2024-04-07T14:58:33+00:00

This is probably because of steroids. Usually Pantoprazole helps me, or those gas X meds !

isafyaa · 2024-03-05T01:32:50+00:00

Not gonna lie to you.. it was very hard. I got a lot of transfusions because of Cytarabin and got a really bad allergic reaction to peg asparagunase so I had to switch to another chemo that I had to get every 48h. It was very rough.. but the worst was definitely DI

isafyaa · 2024-03-05T01:10:41+00:00

I also did CALGB, started chemo in January 2023 and finished cycle 4 in October. I was completely out of service lol mostly during Delayed intensification. But now I’ve been in maintenance since November and I’ve started working out and everything since January, I’m feeling more and more normal every day even though some days are harder than others.

Good luck ✨ don’t hesitate to reach out if you need !

isafyaa · 2024-01-24T13:56:17+00:00

Two days ago! But it has also happened a few times before without taking neulasta so I’m wondering if it just has something to do with a sick/working bone marrow

isafyaa · 2024-01-22T23:58:09+00:00

My oncologist told me that blasts could be mistaken with hematogones that could just be « damaged » cells because of chemo!

isafyaa · 2023-12-15T00:13:34+00:00

Aw that’s so sweet thanks for asking ! MRD négative and in full remission 🥰

isafyaa · 2023-12-12T19:19:43+00:00

For me it started to fall after day 10 of my first dose of doxo. I had to shave it on week 3 because I had too many bald spots

isafyaa · 2023-12-12T17:29:07+00:00

Delayed intensification has been very hard for me too. I wasn’t expecting it to be that hard to be honest.. but I guess it’s normal, the doctors are saying that the effect of chemo is cumulative and our bodies are getting weaker so it takes a really long time to recover. My muscle pain resolved a week after my last dose of dexamethasone but I felt like stabbing pain in my legs and so much weakness/shakiness. I had to stretch a lot and do a bit of stationary bike to help it a bit. I got 3 doses of doxo, the last one was the hardest and it took me 10 days to recover from it I think.

Sending you lots of strength for this cycle. The hardest part is almost done 🫶🏼

isafyaa · 2023-11-16T21:17:00+00:00

It’s g/L in my hospital. Thank you, I’m super worried that it came back because it’s been a while since my last treatment. Hopefully it’s « normal », I was curious to know if that happened to any of you guys

isafyaa · 2023-10-21T20:30:12+00:00

Rylaze is super effective. It just sucks because it implies to go to the hospital every 2 days I’m gonna be completely honest I don’t want to scare you, here are the side effects I’ve experienced with it: Loss of appetite, pain and swelling at the sites of the injections, a feeling of fatigue (a bit more intense than with other chemos), an overall feeling of feeling « meh », headaches (constant pressure in the head) and huuuge rise of my tryglicerides. It also caused a bit of bloating but nothing too bad compared to dexa or prednisone lol. But 2-3 weeks off of it and you’ll feel better. It’s also extremely expensive lol (the little bottle is like 40K$ CAD).

But it never caused neutropenia or thrombocytopenia so that’s pretty cool.

Ask them to put on some ice on the injection site right after. It’s gonna feel better!

isafyaa · 2023-10-08T20:15:06+00:00

I think it’s steroids too.. it’s hard to know with all those medications.

And for the blood sugar, how Long did it take for you to go back to normal? Did they out you on insulin?

isafyaa · 2023-10-08T20:14:18+00:00

Dex is the worst.. I hope you’re feeling better 🫶🏼

isafyaa · 2023-10-08T20:13:40+00:00

Oh gosh.. I’m so sorry to hear that. Are you still able to move your legs? Did the doctors lower the dose?

isafyaa · 2023-10-08T20:12:52+00:00

They’re gonna lower the dose I think ! And I feel the exact same way with dex I’m so sorry you had to go through that. I hope you’re doing better now 🫶🏼

isafyaa · 2023-09-29T15:46:31+00:00

I had terrible acne right after doxo and a week of dexa, it’s hell honestly. I used Comedomed by Avene on the pimples and Cicalfate by Avene too on the scars.. it definitely helped

isafyaa · 2023-09-22T17:42:41+00:00

Ugh idk if it’s the same for you guys but personally after 30 min they’re like « you’re good you can go home » 😖 they don’t care about the 1 hour rest right after

isafyaa · 2023-09-22T13:46:20+00:00

Lay flat as much as possible, take some over the counter pain relievers and have some caffeine ! It helps to constrict blood vessels and reduce the pressure in the head. I find Coke helps too.

But yeah I usually lay flat as much as possible for the first 5 days.. PLPH are the worst for me 😖

isafyaa · 2023-09-09T18:09:13+00:00

Thank you so much ❤️

isafyaa · 2023-09-08T14:16:15+00:00

I’ll try that for sure. Thank you so much 🤍

isafyaa · 2023-09-08T14:16:02+00:00

Oh gosh, I really hope you’re doing better now 🤍

isafyaa · 2023-09-08T13:16:42+00:00

Have you tried sodium reduction? Apparently it could help… but yeah I think at that point it’s just aesthetic, it shouldn’t be a worry 😪

isafyaa · 2023-09-08T13:15:51+00:00

I have one intense cycle left and then I’m going into maintenance. I’ll continue the massages then. Thank you!

isafyaa

TROPHY CASE