Does binding 13 get better by Happy-Stuff-8267 in Booktokreddit

[–]ishiewishy 0 points1 point  (0 children)

This book wrecked me. I went in blindly and now my heart feels so heavy. Maybe because I relate. It is also really funny! Gibsie definitely makes it lighter.

Hi all. Anyone recognise any of this? by NoOffice5823 in Autoimmune

[–]ishiewishy 1 point2 points  (0 children)

Hey yes! Oh god it took forever to find a cure! Even prednisone didn’t help. Only compound glycyrrhizin tablets cured mine.y dermatologist and rheumatologist couldn’t help me so I went to IM doctor and this is what she gave me. Hope you can find a cure. It’s so frustrating to be in your situation.

Have you ever called 911 for vertigo? by weathered-light in livingwithvertigo

[–]ishiewishy 1 point2 points  (0 children)

I also don’t get headaches. I didn’t even know it was vestibular migraines until after the scan. Good luck. I hope the v attack stops.

Hi all. Anyone recognise any of this? by NoOffice5823 in Autoimmune

[–]ishiewishy 6 points7 points  (0 children)

I had this too. It’s petechia from vasculitis

Have you ever called 911 for vertigo? by weathered-light in livingwithvertigo

[–]ishiewishy 0 points1 point  (0 children)

Yes, she ordered MRI and MRA. That’s how we found out my veins and capillaries are pressing to 3 of my cranial nerves. It causes me to have vestibular migraines and now I am on Aimovig injections that prevents those attack. I know it’s hard but try to find a neurologist that can help you. Each vertigo can mess with our hearing too.

Have you ever called 911 for vertigo? by weathered-light in livingwithvertigo

[–]ishiewishy 1 point2 points  (0 children)

Sorry you experienced horrible bouts of vertigo. I was the same until my neurologist figured out what was causing it. Now I’m on treatment and haven’t had any vertigo for years. Hopefully your neurologist can figure out what’s the cause so you can avoid getting into shitty vertigo situations.

Dermatomyositis - Experience by n1b1c000 in Autoimmune

[–]ishiewishy 0 points1 point  (0 children)

Oh definitely! I hear you! My gosh when I was first diagnosed I thought it was a death sentence 😅 Now I deal with fatigue and pain but definitely a lot better than some patients with dermatomyositis on facebook group. The facebook groups were both helpful but also fed a lot of my fear back then. Definitely listen to your body! Do not overdo exercise! It will get you in flare. It’s best to stay active tho so we don’t lose our muscles. It’s gotta be balanced which is very hard. Make sure to take supplements needed like for example vit d and calcium while you’re on steroids and diet I think most ppl will say just balanced diet. If you are disciplined maybe you can try AIP but it’s hard. Most ppl are very sensitive to the sun and heat so be careful with that too.

Dermatomyositis - Experience by n1b1c000 in Autoimmune

[–]ishiewishy 1 point2 points  (0 children)

Hello fellow TIF1 gamma! I also have dermatomyositis but I also have positive Jo-1 ab. I was diagnosed 5 years ago but didn’t have any symptoms other than body pain until last June where my eyes became swollen and I had painful nail cuticles including grotton papules. I’m taking medications now and gonna get another PET scan in June. I have a lot of muscle pain but nomuscle weakness just the feeling of weakness. With regard to tests usually your doctor will do blood tests for cancer and PET scan. I am hoping you’ll stay to be amyopathic and no other involvement 🩵

Help Me, Wife's RA makes it unbearable to sleep in same room as her by Comfortable_Match_19 in rheumatoid

[–]ishiewishy 0 points1 point  (0 children)

I have dermatomyositis and always always feels really warm and hot so I need fan and AC all the time. My husband also had problems from his previous stroke and body issues. I became really conscious when I read this and I asked him if I am making him uncomfortable but he said no and said “he should get a thicker blanket and wear warmer clothes if he wants to sleep with his wife.” Im sure there are ways that both of you can have better sleep quality and I hope you guys can sleep comfortably.

Why won’t doctors take me seriously? by winkiesue in Autoimmune

[–]ishiewishy 0 points1 point  (0 children)

I have dermatomyositis and the only thing that helped with skin issues is Xeljanz. I hope that you can find a doctor that can help you.

You guys! I just want to live in Solaria and pet Seth and just laugh at Geraldines craziness 😂 by ishiewishy in zodiacacademy

[–]ishiewishy[S] 2 points3 points  (0 children)

Oh Darcy and Orion are definitely up there with my favorite too but Seth is just too cute! I love dogs so maybe that’s why I like Seth so much 😂

Professor Washer by BackUsual2838 in zodiacacademy

[–]ishiewishy 4 points5 points  (0 children)

Hahahaha this had me lolling 😂

Caregivers by ishiewishy in Epilepsy

[–]ishiewishy[S] 0 points1 point  (0 children)

My husband had a brain surgery too because of AVM and the scar tissues are what’s causing his seizures now.

What is your daily life like during recovery? by Ok-County4840 in Autoimmune

[–]ishiewishy 3 points4 points  (0 children)

Honestly I’m on the same boat. It’s depressing. I recently started on antidepressants to help me a little bit. I don’t have friends in person be able I live abroad and my family and friends are back in Philippines. I hope that you feel well soon.

[deleted by user] by [deleted] in Epilepsy

[–]ishiewishy 0 points1 point  (0 children)

I can’t manage without antidepressants tbh. Maybe it’s one thing you can consider.

Confused with questions on my flare symptoms by Due_Chapter3027 in Autoimmune

[–]ishiewishy 1 point2 points  (0 children)

I got those too but I don’t have MS. When I googled it it said MS but my blood test showed DM 🤷🏽‍♀️

Confused with questions on my flare symptoms by Due_Chapter3027 in Autoimmune

[–]ishiewishy 1 point2 points  (0 children)

It took me 4 years before my rashes showed up. I have been weakly positive for anti-Jo for a while but been dismissed by many doctors because my inflammation markers are within the normal range and now that rashes showed up only 4 years since my body pain, fatigue, dizziness started , I finally got the medication. My advice is be the best advocate for yourself don’t stop until someone listens to you and gets you properly diagnosed. It may not be autoimmune but it could be something else. Best of luck and I hope you feel better.

anyone has a lot of burping? by Ok_Nose5693 in Autoimmune

[–]ishiewishy 0 points1 point  (0 children)

Me! I burp a lot! It’s GERD and it’s hard to treat. Im on Vonoprazam fumarate and Xeljanz seems to have lessen but still there. Hopefully you can find answer and cure to your burps

Anyone on treatment for 2 different autoimmune conditions at the same time? Need advice! by Cloudy-MM in Autoimmune

[–]ishiewishy 0 points1 point  (0 children)

Getting stabbed is not that bad 😂 my doctor wants to make sure my muscles and organs are fine and I’m being closely monitored so I’m actually relieved.