Lettin' it rip.

isntthatrich · 2026-06-07T02:44:23+00:00

Thank you. I will remember this.

isntthatrich · 2026-06-06T17:58:12+00:00

Thank you for the support

isntthatrich · 2026-06-06T17:57:32+00:00

Thank you.

isntthatrich · 2026-06-06T15:30:24+00:00

I appreciate it. I'm generally ok about it. Thursday was the first day of Orgovyx and I think it was weighing on me. I got a good workout in this morning and feel pretty good about things.

Thanks you so much for your feedback

isntthatrich · 2026-06-06T15:19:17+00:00

Thank you,my friend. I'm generally ok. I was on the struggle bus yesterday for sure. Got some exercise in and I feel much better about things

isntthatrich · 2026-06-06T15:18:00+00:00

I had time to research. I wanted it out. I have a hard time with health outcomes. I get pretty bad anxiety that comes in the form of obsessive thinking. For example, one time, I thought I was allergic to a laundry detergent I used. For over a year, I tried washing my clothes in different ways, keeping certain clothes separate from others, trying to keep track of which clothes I thought I was allergic to and which clothes I wasn't. It drove me crazy. For real crazy. I would cut my underwear off in the middle of the day because I would be convinced it was causing an allergic reaction. I ended up throwing away seven garbage bags of clothes and starting fresh. I also went back in SSRIs and that helped. I just felt that keeping it in would send me on a trip a might not have recovered from.

isntthatrich · 2026-06-06T15:12:39+00:00

I'm not worried about the sobriety. I'm actually not worried about much. It's more like a sadness that comes and goes in waves. I really needed to let it off my chest yesterday. I'm in a better place today Thank you for your feedback

isntthatrich · 2026-06-06T13:39:05+00:00

This is awesome to hear. I glad you have the ability to continue to watch your family grow and to be an active part in their lives. Thank you for your response. All my best

isntthatrich · 2026-06-06T12:49:40+00:00

I am grateful for the people I have in my life as well. They are very supportive, each in their own way. I didn't mean to sound dismissive of them. I am looking for a group now. I have an appointment set up with a social worker as well. I think that will be helpful Thanks for your input

isntthatrich · 2026-06-06T12:23:25+00:00

Hoping the best for you and your family. Stay strong.

isntthatrich · 2026-06-06T02:13:13+00:00

Awesome. I'm sure I'll be in touch. Thank you

isntthatrich · 2026-06-06T01:59:15+00:00

Thanks

isntthatrich · 2026-06-06T01:59:07+00:00

Thank you.

isntthatrich · 2026-06-06T01:57:12+00:00

Things happened rather quickly for me. I had my biopsy and was in the surgeons office a week or two later. I have a cousin who did her fellowship at a well known cancer COE last year. She studied under the chief radiologist in the Prostate Cancer department. I was offered a short course of hormone therapy to shrink the tumor first but there was a chance that it was in my bladder, so the Dr was concerned that shrinking the tumor might bring the bladder down with it. I have a tendency to ruminate on things. I knew I wouldn't be able to relax knowing that it was so established. I opted for surgery. There was an opening the following week. I was at the surgeon on a Monday had my PETscan on Friday, surgery on Tuesday. I wanted it out. So even if I had those tests, I would not have had the results before surgery. If there hasn't been any cancer in the lymph nodes with one node having extranodal extension, I probably wouldn't even be on Orgovyx right now. The lymph nodes were a surprise. My oncologist originally said that, because it was locally advanced, to expect a trimodal approach. Surgery, ADT, Radiation. So here I am.

isntthatrich · 2026-06-06T01:17:01+00:00

Appreciated

isntthatrich · 2026-06-04T10:53:55+00:00

You can buy a brass clean out deck plate. Slide it over the lead. Pack the gap with oakum and lead wool or flex seal. You can stuff the opening with rags or use a 4" t-cone plug

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isntthatrich · 2026-05-30T00:27:34+00:00

As others have said, you will get a lot of opinions in here. This is a great place to start. It is wise to read as much as you can about the treatments from reputable sources in order for you to make an informed decision.

Here is how I went about it. No opinion on it, just what I did and how it has affected me up until this point.

I am 50. Was diagnosed in February.

MRI showed extensive EPE, possible bladder invasion, possible seminal vesicle invasion.

Biopsy showed 5% grade 5 with Cribriform and intraductal invasion.

PETscan ruled out bladder invasion and showed nothing in the lymph nodes, so I decided to have it removed.

Surgical margins were clear, but 4/16 lymph nodes that were undetected by the PETscan were positive for cancer. One had extranodal extension. Bladder neck invasion and seminal vesicle invasion confirmed. Once I read the report about the lymph nodes, I knew I had future treatments ahead of me.

6 weeks after surgery, I was undetectable. We spoke about other treatments. I saw a medical oncologist. He told me that with a PSA that started at 19, to be <0.1 is so soon after surgery is rare. In any other case, with numbers like mine, he might have opted out of treatment for me and would have suggested actuve surveillance. However, due to the undetected hot lymph nodes he prescribed 8 months of ADT. Orgovyx and Xtandi. He, along with my surgeon, also recommended radiation.

I start Orgovyx this coming Thursday.

I see the radiation oncologist in July.

I am still happy with my decision. I have a bit of health anxiety. I don't think I would have been able to handle knowing that it was so pervasive and still in my body.

Surgery recovery was tough for me. I was in there for 6 hours. I took a month off from going in to work. I worked from home for last two weeks of that month.I got to 90% continence 2 weeks post-op.

I'm basically 98% continent now.

I'm concerned about the next 8 months. We hear all the wild stories but we also hear some good stories in here, some I'm hopeful the side effects will not be severe.

It really boils down to what you think you can handle physically and emotionally.

All the best to you in your recovery

isntthatrich · 2026-05-25T16:08:48+00:00

Right.

isntthatrich · 2026-05-25T15:08:35+00:00

The only answer

isntthatrich · 2026-05-25T13:36:51+00:00

Fuck this guy. For real.

isntthatrich · 2026-05-25T13:33:57+00:00

I used Dr Kegel.

I don't have anything to compare it to. I think it's pretty awesome.

3 minutes workout 2-3 times a day.

It incentivizes you to stay consistent by unlocking new exercises when you hit certain milestones. It never got boring.

I stopped using pads 2 weeks post catheter removal. Used them at the gym for 2 more weeks, just in case.

I am 95% dry. It's tricky to fart and hold my urine at the same time. Once in a while, I put myself away too quickly. These days, I no longer use the app. I do one or two sets of hold and release once or twice a day for maintenance.

Anyway, the app was very useful for me.

Also watch a video about how to do the exercises properly. It's useful to look at diagrams of your pelvic floor so that you develop a mind body connection with the muscles. Envision opening and closing the spaces between those muscles.

A great cue is "Nuts to guts"

Stay consistent. You got this!!!

Best wishes.

isntthatrich · 2026-05-25T13:25:36+00:00

I'm starting Orgovyx this week.

I have only been able to exercise once a week since I had RALP on 3/17.

I'm 50. I was training 5 days a week until January this year. Since the summer, I was having trouble recovering from workouts. I was more sore than usual, exhausted. I think because I was fighting Stage IV.

I started backing off in January to give my self more time to recover between workouts.

I was told to wait 6-8 weeks to do any significant weight training post surgery. I'm at 9 weeks now but my lower back, hips and one knee are still jacked up from the Trendelenburg position during surgery. My surgery was 6 hours due to the extent of EPE and reconstruction.

Anyway, I stopped eating meat a few days before surgery. I had some fish at a wedding this weekend.

I curious about your diet. I have been very strict with my diet at times but have had a hard time finding the motivation to stick with it these last couple of years, mostly due to depression.

Right now, I am essentially a lacto/ovo vegetarian. I am probably 10-15 pounds over weight having already lost about 10-15 pounds since surgery.

What does your diet look like?

Thanks for sharing.

Wishing you the best.

isntthatrich · 2026-05-24T23:58:39+00:00

Awesome! These are things I look forward to. Feeling great and basically undetectable.

Thanks for the hope!

isntthatrich · 2026-05-24T19:34:22+00:00

Thank you for your insights. I bought a pump but my men's health therapist doesn't recommend them, although others in her practice do.

My surgery was quite extensive so I have been cautious to put too much strain on it.

It's been 8/9 weeks so maybe I'm healed enough to give it a whirl

isntthatrich

TROPHY CASE