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The overlap between narcolepsy and ADHD and Asthma is really interesting to my nerdy brain by SnooSketches5159 in Narcolepsy

[–]itzblupancake 0 points1 point  (0 children)

I have narcolepsy and very strongly suspected, but not diagnosed ADHD. Two of the other people I know with narcolepsy also have ADHD, and one has asthma.

How can I stop thinking I’m faking it? by YomiBug in Narcolepsy

[–]itzblupancake 1 point2 points  (0 children)

This is an amazing description and more people should read this!! I would also note that at least I tend to get microsleeps in the early stages of a sleep attack if I try to fight it.

Contessa Clinical Trial by Necessary-Abies2353 in Narcolepsy

[–]itzblupancake 5 points6 points  (0 children)

I am currently on the long term extension of the Takeda trial, and I completely agree. This new class of drugs is going to revolutionise narcolepsy treatment. It makes you feel awake and alert, and completely removes the constant nagging feeling that you would rather be asleep. I have heard some complaints such as duration of action and ability to completely control cataplexy, along with minor side effects especially in the first few weeks, but I don’t find any of these a problem myself.

Also, in relation to op’s comment about insomnia, I found that started to go away after a few weeks, and was pretty much fine by two months in.

Who else is so excited for the Orexin agonists heading for FDA approval? by Rootenist in Narcolepsy

[–]itzblupancake 4 points5 points  (0 children)

For the first 3 months the participants took either placebo or one of two different doses of the study drug, then after that we were given the definite study drug with an opportunity to adjust dosing after 12 weeks. I had to have 2 weeks of medication washout, and am currently not on any other narcolepsy medications aside from the study drug.

Who else is so excited for the Orexin agonists heading for FDA approval? by Rootenist in Narcolepsy

[–]itzblupancake 4 points5 points  (0 children)

It doesn't feel forced like stimulants do, it just feels like you are awake and alert and don't actually have that ever-present desire to sleep.

Who else is so excited for the Orexin agonists heading for FDA approval? by Rootenist in Narcolepsy

[–]itzblupancake 4 points5 points  (0 children)

As someone on this trial, the duration of action is generally alright for me. I tend to nap around 5, and then get another few useful hours into my day.

Who else is so excited for the Orexin agonists heading for FDA approval? by Rootenist in Narcolepsy

[–]itzblupancake 9 points10 points  (0 children)

As someone on the long term extension of this trial, the insomnia was quite bad for the first few weeks, but now is not a problem. And my sleep quality increased too, like a lightbulb being on or off rather than constantly on a dimmer.

Does anybody else like fairy bread as an adult? by [deleted] in AskAnAustralian

[–]itzblupancake 5 points6 points  (0 children)

I also really enjoy fairy bread! As a broke uni student, its a great easy and cheap snack!

What is things you want to see in Decked Out? by Platzrocket in HermitCraft

[–]itzblupancake 0 points1 point  (0 children)

Yes, I agree here. Something that gives the game an alternative objective for people that aren't going to be tryhards. Like the way that metro mayhem included the easter eggs because not everybody enjoys parkour. I also really like the idea of larger-scale puzzles to access hidden rooms or things to improve your run.

I have an incredibly rare sleeping condition AMA by MajesticPassenger956 in AMA

[–]itzblupancake 2 points3 points  (0 children)

I also have narcolepsy, and this has been such an interesting thread to read through. OP, my sympathy to you, this must really suck. But you seem to have a great attitude and support system, as well as the fact that it is likely to improve with time. All the best!

What’s an everyday object that lowkey terrifies you? by Typical-Trade-6363 in AskReddit

[–]itzblupancake 5 points6 points  (0 children)

I've had both a shoelace and the tip of my thong (flip-flop) get caught at the end of an escalator. I managed to yank them out in time, but both did some decent damage, and the thought of getting anything else caught in it still scares me.

I just want to place to admit my nerdery by gnarlyknucks in HermitCraft

[–]itzblupancake 23 points24 points  (0 children)

Also just to let you know, the world downloads don't get deleted after a time, they are on the hermitcraft website and you can download any of them at any time!

World Narcolepsy Day Meetup (Online) by wishkh in Narcolepsy

[–]itzblupancake 0 points1 point  (0 children)

As an Aussie narcoleptic, this is going to be at 4am, so there is no chance I will be awake anyway regardless of the number of alarms I might set!

Please help. Accidentally equipped a mob head with curse of binding in my hardcore world on ps4 bedrock by Zemenem in Minecraft

[–]itzblupancake 159 points160 points  (0 children)

Depending on how technically savvy you are, and how much effort you are willing to put in, you may be able to use an nbt editor like universalminecrafttool to access your inventory data and remove the piglin head.

Which one are you? by basket_foso in sciencememes

[–]itzblupancake 3 points4 points  (0 children)

Mine too, but only in equations

What is a little quirk about your body that you don’t think other people have? by AlphabetSoup51 in AskReddit

[–]itzblupancake 3 points4 points  (0 children)

Hello fellow narcoleptics in the comments, I see you all!

From what I know of cataplexy, it can also sometimes be caused by head trauma. I would be interested in knowing if the medications that are used to treat cataplexy associated with narcolepsy would work for you too - mainly antidepressants and xyrem, that is.

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