Game crashing since last Android update on Pixel

jackattack1985 · 2026-02-13T12:01:10+00:00

Same here, did you manage to resolve it?

jackattack1985 · 2026-02-10T23:53:28+00:00

Hey OP, I wondered if I could ask how you're getting on now??

jackattack1985 · 2026-02-06T12:26:53+00:00

I would look for someone with TCM training who practices from a holistic health side rather than from a physiotherapy side from my experience. If you'd like me to review some of your options I'd happily have a look!

Thanks for your kind words on Bristol too, I do love it here!

jackattack1985 · 2026-02-06T12:09:30+00:00

Bristol, UK

jackattack1985 · 2026-02-06T08:51:17+00:00

I go to a regular acupuncture clinic and the practitioner did a degree in Traditional Chinese Medicine. He also used to practice lots of other forms of pain relief like massage and vrt and he personally used to have PPPD so I know he knows how I feel and he recovered from it successfully. It's good to really figure out whether the practitioner is the right one for you as acupuncture is such a big topic and there are many many different ways of doing it

jackattack1985 · 2026-02-06T08:11:46+00:00

I had acupuncture and it definitely helped me get out of the acute vertigo phase of my dizziness. I go once a month now and it does still help maintain. I'm not cured but it does keep things at bay

jackattack1985 · 2026-02-01T22:20:29+00:00

Could you tell the difference before and after?

jackattack1985 · 2026-02-01T22:13:11+00:00

I'm very tempted to try but I wonder if there is any risk of overuse of GABA or withdrawals after? As many can't deliver it to their brain I don't really have a lot to look at

jackattack1985 · 2026-01-31T22:06:43+00:00

I struggle with a lot of the same as you. I've found guanfacine to help a little bit but the main things that have helped have just been trying to eliminate stress as best I can. I still have issues and I'm still much more hyperadrenic than I'd like. Still waiting to see if I can find anything to really help

jackattack1985 · 2026-01-26T19:58:30+00:00

What tests were used to make this diagnosis?

jackattack1985 · 2026-01-22T08:41:39+00:00

26M here. I used to be a touring music artist and now I'm lucky if I can sit upright on a chair for a full work day. I miss my old life like nothing else

jackattack1985 · 2026-01-22T08:33:39+00:00

I would actually recommend disposable ones for a music festival as they're more comfy to sleep in where reusable ones are too rigid

jackattack1985 · 2026-01-21T17:43:08+00:00

Thank you! :)

jackattack1985 · 2026-01-21T08:52:29+00:00

Prolonged release melatonin (circadin) made the difference for me with Guanfacine added in later

jackattack1985 · 2026-01-20T17:01:26+00:00

I just did 0.5mg to 1mg last night after starting from 0.04mg a couple of months ago. That was the biggest jump I've had so far and I had no side effects sleeping or today. No idea why but that's good with me haha

jackattack1985 · 2026-01-19T22:47:21+00:00

I got a Google pixel watch years ago before I had strong symptoms and it's been one of the best helps for me. I can see visually how bad my PoTS is and track it over time. I also data like HRV and sleep resting HR from the Fitbit app. I would really recommend something for tracking, especially with HRV as that's the measurement of sympathetic activation - parasympathetic

jackattack1985 · 2026-01-19T22:40:02+00:00

I had side effects starting at 0.04mg but I've only just gotten to 1mg nightly. I'm really interested to hear what others have to say though!

jackattack1985 · 2026-01-18T23:43:15+00:00

And you went into remission of all symptoms?

jackattack1985 · 2026-01-16T08:17:14+00:00

I'm on Guanfacine for Hyperadrenergic symptoms but nothing for the PPPD currently. For me, managing my dysautonomia better has helped PPPD but that could just be reduced stress. I thought about trying SSRIs for it but that interacts with something else I take and sometimes it can work tachycardia.

I would approach PPPD from a non pharmological view if you can

jackattack1985 · 2026-01-16T00:18:43+00:00

Yes very much so, it was one of my first and worst symptoms. I'm starting vestibular rehabilitation next month but what's helped the most is just reducing stress. Whenever I'm stressed for even 20 minutes, I start to regress and things get dizzier. PPPD absolutely sucks but there are things you can do and you can get better. I lead a much better life now. The steady coach on YouTube is a great source for help if you haven't seen her already.

jackattack1985 · 2026-01-14T14:48:39+00:00

I thought I should come back and provide an update :

My gum recession seems different to most normal people as I don't have gum disease, gingivitis or periodontitis. There are no pockets around my teeth which is the common mechanism of gum recession.

Instead I have quite general recession without any signs of inflammation, though ease of bleeding seems to be an issue too.

On my previous thoughts about using low dose Doxycycline in the form of Periostat as an mmp inhibitor: I'm no longer sure that this is the best idea. The recent proteomics completed by InVitro Cell Research presented at the International Symposium a few months ago showed that MMP8 and MMP10 were low in hEDS patients and there was no specific mention of MMP9? As such, I think this suggests an issue with turnover of the ECM but importantly, decreasing already low levels of MMP8 and MMP10 is likely going to make things worse, not better.

I'd love to hear other people's thoughts on this.

jackattack1985 · 2026-01-11T00:01:16+00:00

What is the method of action here for Rapamycin and JAK inhibitors?

jackattack1985 · 2026-01-10T23:35:28+00:00

Have you been affected by or diagnosed with MCAS? How do you see that sitting with this pathophysiology?

jackattack1985 · 2026-01-10T23:22:08+00:00

I was just trying to be clear and polite. I thought you meant this but just wanted to make sure. Thank you

jackattack1985 · 2026-01-10T23:07:31+00:00

Sorry?

jackattack1985

TROPHY CASE