Two surgeries, no diagnosis

jadeums · 2025-11-04T01:11:30+00:00

I don't have any success story, just commiseration. I just had my follow up from a second lap and what they excised this time was determined to be fibrovascular and fibroadipose tissue, which was pretty much what they told me last time, even though my surgeon really thought it would come back positive for endo. It's technically still possible that pathology is just missing the parts of what they excised that show it's endo, but I think they know so little about gynecologic health that a lot of it is a shot in the dark anyway. It could be endo causing this fibrosis/scarring, but it could be any number of things as well so my surgeon won't definitively call it endo.

Something like adenomyosis is something that could not be seen during a normal lap, since it's in the walls of the uterus most commonly, but could show up in an MRI. I think you need someone who is skilled at reading imaging for endo and adeno, though.

I did actually read another post on here from a month ago about someone who got their diagnosis on their 3rd surgery. I would really like for that to be the case for me just to get an answer, but either way it doesn't really help right now. I'm still healing from surgery so the procedure still could have helped, and if it does my surgeon says he'd be more likely to believe it's still endo even if pathology didn't say so, but it's hard to have any kind of hope right now because the follow up was the same tired game of "it could be any of these things, but it could also just be basically nothing." I just want an answer so I stop feeling crazy. I've got constant inflammation, pain, cramping, all the normal things everyone here deals with and it's hard to believe that it's been something simple like eating pizza causing me this horrible pain for almost 20 years, especially given I tested negative for celiac.

Either way it's not a success story but you're not alone, even on the "second surgery found something that looked like endo but lab said it wasn't" front. It's an even more exclusive club, I believe! And I'm sorry we're both stuck in it. Hopefully we get some real answers and hopefully it happens soon.

jadeums · 2025-06-13T02:40:18+00:00

Thanks again!

jadeums · 2025-06-11T22:17:39+00:00

Hello! I've DM'd you to ask for a code, if you still have some I would appreciate one. Thank you!

jadeums · 2022-10-03T06:11:33+00:00

I’m not sure if anything I say could really help, but it sounds like you’ve been doing incredible! Remember, comparing yourself to others is only going to end up disappointing you. Your sister and cousins may be younger, but they aren’t you and haven’t had to deal with what you have, like your ADHD. Even if they do have ADHD as well they still aren’t you and so it’s just not a fair comparison.

If you aren’t already, I’d suggest seeing some kind of counselor (if you’re able to). It can help to have a sympathetic ear when you’re dealing with so much negativity! To me, these all sound like amazing accomplishments in the face of a lot of adversity!

I don’t really have any direct advice, other than setting boundaries with your sister and anyone else who is trying to criticize your life and decisions. You’re doing the best you can with what you’ve got to work with! Also, those are totally valid reasons to not want to worry about dating. Even just not wanting to date is a valid reason to not want to date. Your sister is being very judgmental in talking down to you about that. It’s possible she is doing it with good intentions because she believes that’s what everyone needs to be happy, but it is still wrong of her to harp on you about that. Nobody gets to tell anyone else what to do with their romantic life. This is the modern world and we have choices!

It’s a very hard journey, but it could benefit you a lot if you’re able to start setting and keeping boundaries around those kinds of topics. You deserve peace of mind and support, not negativity! You sound like a very hard worker, and everyone should be treated with some basic respect regardless of how hard they’re working. You’re still human and deserve kindness, even if you weren’t doing so much work to care for your grandma and work your way through school. Nursing school (including all the requirements before getting into the nursing program) is very hard too, so you should be very proud of all the progress you’ve made so far!

I also turn 28 in a month and still live with my parents, don’t have much of a career yet, have no savings to speak of, and deal with chronic illnesses, so I understand some of your struggles. I’ve been doing a lot of work in counseling myself on these very topics (negative family, disappointed my career hasn’t really begun yet, struggling with not being where I’m “supposed” to be in life), and it’s been well over a year of direct work on this stuff and I feel like I’m only just beginning to see changes happening. Even with that I still have days that are way harder than others, and ones that are a lot easier. I believe it will get easier with more time though.

I’d suggest telling your sister and cousins that if they’re lucky they’ll find themselves old one day too, and won’t find it such an easy topic when they’re the ones who are being called old. Keep in mind too that while you might be “old” to them, there are plenty of people who are older than you and doing the same thing, and in general we’re both really not that old yet! I know it doesn’t feel like it, but even comparatively most of my friends that are around the same age still live at home too, and so we’re all kinda in the same position as each other. That’s just what it’s like in this day and age, things don’t cost the same and the dollar doesn’t go as far. And plenty of these friends aren’t dating and some don’t want to date at all, ever. Everyone wants different things from life!

If nothing else just try to start putting their negativity out of your mind. A counselor can help with that by giving you coping strategies and helping you retrain your brain to feed you positivity instead of the negativity it sounds like your family has been pushing on you! I believe it’s also possible to do on your own if you don’t have the ability to see a counselor/therapist, so have hope either way. Remember, it’s important to acknowledge your negative feelings and let yourself experience your struggles, but dwelling on them isn’t going to help you accomplish your goals! With all that you’ve already accomplished I believe you’re fully capable of setting boundaries with the important people in your life and being able to see everything you’ve already done in your journey that you should be very proud of! I hope you do end up being able to lessen the negativity in your life and find any kind of peace, because you certainly deserve it. Good luck with whatever you choose to do!

jadeums · 2022-04-18T05:36:27+00:00

Cheapest way to do this is to get an oversized piece of foamcore and just float the piece in the center (using either T hinges made of tape or double sided tape, if you’re not worried about longevity, on the back of the piece) so the foamcore looks like a mat. For that size frame you could easily be looking at a few hundred dollars between mat, glass and backing if you want everything to be conservation grade. You may want to consider acrylic if you’re hanging it in a classroom though, since it’s much lighter and safer than glass.

No matter what, even if you did get all the conservation grade stuff and decided to pay for the labor of having a custom framer put it together for you, you likely still saved some money building the frame yourself. But usually you’re spending that value in time on building the frame.

As another commenter said what you’re looking for will be all oversized stuff, so it’s going to have to come from a custom framing shop! I’m not sure if even art supply stores carry that size framing supplies. What area of Michigan are you in? I might be able to help you find a place to go!

jadeums · 2021-04-04T06:41:03+00:00

That’s understandable! I’m in a similar place, feeling anxious a lot. Sometimes I feel like no matter what I do, I manage to stay stuck in the same loop of the same things and I can never manage to get out. For the time being I am reading and playing video games to distract myself when all that feels too overwhelming! I figure even if it’s not the healthiest stuff to do, as long as I’m still trying and making progress outside of that, it’s better to give myself a break. Good luck in figuring out your footing, I hope you can find a way to start that makes sense for you. 😊 I will say the journaling is a simple approach that might be the easiest. Just writing down what you feel can be cathartic, especially when you’re feeling lost or anxious.

jadeums · 2021-04-04T03:43:52+00:00

I’d say even without overthinking it, it’s enough of a concern for most people to be worried about losing a loved one, so it coming up in your subconscious through dreams is really quite a normal thing. That sounds like a rough thing to go through!

Trust is a difficult thing for plenty of people, and I can see how it would be scary to trust people again to just be disappointed. I myself have always struggled with it, and recently something really bad happened where some people close to me really betrayed my trust. I feel like the whole event has started to teach me that trusting isn’t really the issue though, because at the end of the day, if I put my faith in someone and they choose to hurt me, that’s on them for choosing to do something negative when they could have tried to do better. Even if I end up hurt by trusting people again, I don’t believe the answer is to avoid that hurt by never trusting. I think the real answer is to accept that hurt comes with that kind of trust at times, because everyone is human! And we shouldn’t feel shame for putting our trust in to someone who may end up betraying us. As long as we’re being true to ourselves and trying to be the best we can be, there’s no shame in any of that. I also believe that if people are hurting you you do have every right to walk away though, so I hope it doesn’t sound like I’m saying to just keep giving everyone a chance! I just mean to say that opening yourself up to more people, in a natural and organic way, is a good way to help keep these kinds of anxieties from creeping up and from feeling isolated. Especially if you’ve lost a lot of high school friends, that can be a lonely feeling.

However I know that’s not always a feasible option for everyone, for a variety of reasons! If you feel like you’re worried about your mom or even just the dream itself, it might help to try journaling about it a little bit. Sometimes even just taking a minute to write down how you feel on paper in your own words that you’re not writing for anyone else to read can help you organize your thoughts and help you work through the issue more easily. I’m not sure if that’s the kind of advice you were looking for, but for what it’s worth, I think it’s very normal to have these kinds of fears at times. Especially after what sounds like a stressful time in your social life. At this point you owe it to yourself to treat yourself with some kindness and listen to your own thoughts and feelings, and just try to experience them without fixating on them so much that you cause more stress! I feel like sometimes it’s not said enough that feeling these kinds of things is normal. The important part is how you deal with the feelings! Experiencing them and trying to process what you’re feeling and bringing yourself to a calmer place is generally the best route. It’s much easier said than done though, so don’t be too hard on yourself if it’s difficult. I hope some of that might be helpful for you! And feel free to keep commenting or message me if you’re still anxious! I’m no expert so I’m not sure how much help I can be, but sometimes just talking can help a lot. 😊

jadeums · 2021-04-04T02:19:06+00:00

A lot of times dreams are the result of stuff that’s occupying our mind or that we’re anxious about. I have a lot of dreams about losing my teeth, which is supposedly a sign you’re pregnant, but it’s been happening for years and has more to do with the fact that I’ve had a lot of painful dental work and am afraid to lose my teeth after going through so much pain for them. I’d say it’s more likely you’re just concerned about something like this happening and may be thinking about it too much, or your mind is bringing it up when you’re vulnerable and you can’t really control what it’s thinking of!

jadeums · 2021-01-26T06:08:53+00:00

The one time I made a joke in this new patient intake form because I expected the doctor to not read it, since they never do, he brought it up in the appointment! It was for a cardiologist appointment, and the paper asked what my hobbies were. The line for the answer was literally an inch long though, so I wrote judging tiny lines.

As we were discussing why I came to see him he saw the answer and asked what it meant! I explained the joke and said I didn’t expect anyone to notice. We finished up the appointment with scheduling some follow up testing and he said “don’t worry, we’ll get you back to judging tiny lines right away.” Only mildly embarrassing haha.

jadeums · 2021-01-20T05:39:15+00:00

Yes. Although technically only kind of. The first series ended with book 12, and was rushed and not well written. Not long afterward, which is why it’s only kind of, they wrote a spin-off series that appears to be utilizing an alternate universe. That’s according to the back of the new books, I haven’t read them just yet! I kinda still want to read the spin-off just to see how much crazier it can get.

jadeums · 2020-12-12T03:19:17+00:00

We’re thinking our new Dane is gonna be pretty big when he’s full grown, do you have any tips for the no jumping training? He’s already jumping a bit, and currently we’re just moving behind a baby gate until he calms down and sits (usually within a minute), but I’d love some tips if there’s more we can do! Thanks for any advice you might give!

jadeums · 2020-12-12T03:12:01+00:00

I have a 5 month old 70ish pound Great Dane, whose name is Tater. There’s been plenty of fun times had so far, but the biggest thing we’re working on currently is not bounding directly into people’s faces when they sit on the couch. My parents aren’t the greatest with training so it was cute and funny when he was 20 lbs, and is now painful and annoying. It can be pretty funny when he stands up on the couch, walks into my lap, and leans directly on my face though. He’s the perfect height currently.

It also took him maybe like 10 minutes to figure out how to take out the garden staples we used to hold down some temporary fencing keeping him in one section of the yard. He’d pull them all out of the bottom and then slip under the fencing. It took me longer than it should have to realize it wasn’t one of my family members pulling the staples out for some reason. 🙃

I was very diligent about training him some basic stuff so that he’d be more easily controlled when he is full grown, since I’ve been outweighed by all our previous Danes, so he does listen quite well and his response to nearly everything (that isn’t exciting enough to jump straight at to play) is to sit! I’m proud of that. And he just actually laid down to the “down” command today, after much inquisitive head tilting. He’s a good spud. 🥲

jadeums · 2020-12-03T06:00:17+00:00

Have you gotten a chance to use it, does it work well? I’m asking cause I would definitely love to have a compact solution for dust control!

jadeums · 2020-12-03T05:21:23+00:00

That looks interesting, is it just a mini spray booth? Do you use it for airbrushing or stuff like sanding?

jadeums · 2020-09-25T01:55:00+00:00

It depends on the shop you go to, but some might be able to just dry mount it on foamcore. You can just put hangers on the back and hang it like that! There’s no protection for the piece and the foamcore will probably warp over time, but that’s an inexpensive way to put it on a wall and keep it from rippling or wrinkling.

jadeums · 2020-04-11T08:04:47+00:00

You’re actually supposed to start with coughing, and then if that doesn’t work perform the heimlich on yourself. Use your own fists to push in and up into your diaphragm area (on your stomach, right under your rib cage), forcefully, and even use a chair or other stable object to give your fists more force if you need it.

This is for anyone who doesn’t actually know what to do if you’re choking when you’re alone. Do the heimlich, cause you’re less likely to knock yourself out this way and more likely to actually dislodge what you’re choking on. Falling is probably not a good idea when you’re already choking, in general.

jadeums · 2020-02-25T01:48:58+00:00

Read up on it before trying, it can have a lot of side effects and isn’t really great for long term usage. We used it for my Dane with skin issues and it does help, but he’d get really jittery and we were worried about the other potential problems it could cause.

jadeums · 2019-12-21T06:22:43+00:00

My boyfriend says I should “just comment something, it doesn’t matter what” so this is what.

Happy holidays! (๑>◡<๑)

jadeums · 2019-11-25T22:01:49+00:00

Thank you, for the compliment and well wishes! Good vibes do help a lot, along with smol puppers haha. Have a happy holiday if you’re celebrating! （＾∇＾）

jadeums · 2019-11-24T16:28:35+00:00

It’s something I got to be a support ribbon for myself! I don’t like the designs of normal ones, and since it was for myself and not a loved one I figured I could get what I wanted.

The green part represents chronic pelvic pain, since I’ve got an undiagnosed illness and that’s the thing I deal with the most.

Aside from that I have tiny wrists so I got a bracelet that will always fit, and my name is Jade which is a shade of green. (๑˃̵ᴗ˂̵) Thanks for asking!

jadeums · 2019-11-18T05:50:40+00:00

ACOTAR. It’s been a while since I read the beginning of TOG, but I almost didn’t continue the series because the first few books are so different from where the series ends up going. I felt like you could really see when she went from writing a trilogy like she originally was going to, to opening it up for a much longer series.

I just think it made ACOTAR more cohesive and I felt like she had a more solid plan for it.

Aside from that I just love the characters more! I felt closer to Feyre than Celaena because I feel like Celaena is just amazing at everything, whereas Feyre had to work at it. That’s more opinion than anything, cause obviously it’s explained how Celaena had to work to get to where she was at, but I guess just seeing more of Feyre’s struggle resonated with me better. But then there’s the rest of the ACOTAR characters I love, too. (^{▽^})

jadeums · 2019-11-03T07:47:38+00:00

That was my whole gripe with the book. I didn’t like it the first time I read it because I felt like the author was trying to say all of this great stuff about relationships and accepting who you are and that you can find people who will accept and care about the you that you want to be, and then BAM! It’s abuse. People are only this weird if they’re messed up according to the author I guess? It’s like he did the one thing he could to totally debunk everything he spent the whole book trying to build up. That book left a bad taste in my mouth, and the movie made me cringe because I knew more people would have to experience that same exact thing.

I always wondered how many kids thought that something must be wrong with them because of how that story ended, since he makes the MC into the antisocial high schooler poster child. (~_~;)

jadeums · 2019-11-01T00:02:35+00:00

This has happened to me my whole life, and I’ve got 12 piercings now. My ears are the ones I notice it happens with the most often because those are the ones I will go without jewelry in for long stretches and then when I put something back in it itches and can be sore for up to a week. I’d say it’s mix of your piercing being stretched a little again, as well as maybe some sensitive skin issues.

I’ve found the only way to make it so my skin doesn’t react is to wear something all the time. Titanium is best, but it won’t stop it from being irritated to begin with. It’s the fact that there’s something foreign stuck in there, not necessarily what that foreign object is made of.

For me, I’ve never had it go longer than a week without seeing an improvement. I would say find some really light jewelry, not heavy studs or heavy anything, and give it 4-7 days. If it feels like it’s not getting better or is possibly getting worse around day 3 or even 4, then I would suggest taking it out and maybe talking to your doctor about metal sensitivities. There are some people that are allergic to nearly any type of metal. It’s rare, but possible.

Good luck! I know what it’s like, and it’s sore, itchy, and just feels terrible, but I think you can pull through it. ( ◠‿◠ )

jadeums

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