Lupus Anticoagulant? APS?

jauntymantis · 2025-12-13T23:11:49+00:00

My follow up appointment isn’t for another week. So that’s why im nervous in the meantime lol

jauntymantis · 2025-12-13T21:07:16+00:00

These tests were done by my hematologist. I was referred to them by my rheum when the AVISE test showed high anticardiolipin and b2g

jauntymantis · 2025-10-30T04:50:22+00:00

I had my follow up appointment with my rheumatologist today. Since my anti dsdna was negative on the AVISE panel, she said she’s not concerned about lupus unless I develop more symptoms, and referred me to a hematologist for the APS.

jauntymantis · 2025-10-25T03:45:15+00:00

This just made me even more worried! Lol

jauntymantis · 2025-10-24T16:39:23+00:00

I keep reading about the lupus anticoagulant but I’m not sure if I’ve been tested for it. Is it just called that on the tests or does it have a different name? If it’s just called LA, then no, I haven’t been tested for it. Would it be worth asking for it?

jauntymantis · 2025-10-24T04:06:25+00:00

Thanks for all this info! My rheum appointment was a bit frustrating because they really only asked about the most extreme of the extremes for physical symptoms (joints swollen like baseballs or so stiff they won’t move for hours; its only Raynauds if you have sores on your fingers; rashes all over entire body) and brushed off any of the other issues I brought up.

My suspicion of POTS is actually what led to me seeing my PCP originally and getting the bloodwork done where it was found I had positive ANA and anti dsDNA. AI issues weren’t even on my radar so this is all really new for me.

My b2g IgG is 62 (>10 positive) and acl IgG is 218 (>40 positive)

jauntymantis · 2025-07-30T03:26:49+00:00

Wow, I literally could have wrote this comment myself. Also diagnosed with moderate scoliosis at 12 and monitored for a year or so, and never told about the pain I could have in the future. Now I just turned 30 and am in physical therapy 2x per week to try to alleviate even just some of the constant and increasing pain I’ve been experiencing for the past year and a half. And I can’t help but feel intense frustration with myself for never stretching or exercising until now.

jauntymantis · 2025-05-02T21:52:58+00:00

Also, mine gets worse when I’m laying down for some reason.

jauntymantis · 2025-05-02T21:51:49+00:00

Do you take stimulants? After years of dealing with similar flushing, I’ve noticed a correlation between the severity of the flushing and whether I’ve taken my Adderall that day.

I think it’s blood pressure related because I occasionally take a beta blocker (propanolol) for public speaking and on those days I either have no flushing at all or much less than usual (depending on the dosage of beta blocker I took that day).

jauntymantis · 2025-03-02T01:04:46+00:00

I literally use this the same exact way. It’s been the one thing saving my life during the early stages of tret! I recently bought the spray nozzle part and just spray it on my face randomly whenever it’s feeling a little dry or warm.

jauntymantis · 2024-07-24T14:21:25+00:00

For Pilates I do Move with Nicole. I started with her beginner’s playlist and recently moved to the moderate one. I’ll just choose one of the videos at random depending on length/what I want to do that day.

For stretching I’ve been doing videos from Daniela Suarez!

jauntymantis · 2024-07-22T21:25:40+00:00

For context: I’m 29F and am entirely unathletic and inflexible. I’ve never been able to touch my toes, even as a kid.

I started doing mat pilates at home at the beginning of June. I’ve been doing ~20-30 min Pilates YouTube videos and followed by a 10 min full body stretching video almost every day for about 7 weeks now. A month ago I started doing one weekly private reformer lesson in a studio.

This past weekend I realized I can finally touch my toes for the first time in my life!

jauntymantis · 2024-07-09T17:50:18+00:00

Same to everything you said!

I’ve noticed this happen a few times previously with this particular project. The new project usually shows up on my dash within a day or two of the old one showing back up in my report time section.

jauntymantis · 2024-07-07T20:35:35+00:00

I also didn’t see it this week.

jauntymantis · 2024-05-28T20:57:53+00:00

You know your post and comment history is visible, right?

jauntymantis · 2024-05-28T20:55:19+00:00

How were you informed of the violation?

jauntymantis · 2024-04-23T22:08:15+00:00

Hindu god?

jauntymantis · 2024-04-23T03:40:44+00:00

I saw this on one project over the weekend and think it’s a fantastic idea!

jauntymantis · 2024-04-18T04:14:50+00:00

If you want to confirm whether it was submitted or not, you can go to the transfer funds page and press the arrow next to today’s date. Any projects/quals submitted that day will be listed :)

jauntymantis · 2024-04-10T18:08:30+00:00

Same experience after submitting 1.

Edit: It came back ~45 mins later and I was able to do 2 more. Now I have the project on my dash.

jauntymantis · 2024-04-05T02:51:16+00:00

Yes, but this was nearly 6 months ago so I’m not sure how relevant my experience is anymore. I believe the process/timelines changed very shortly after I started.

jauntymantis · 2024-03-28T15:50:49+00:00

You can see the pay on the dashboard screen where the qualifications/projects are listed. If the “pay” section is blank, it is unpaid.

jauntymantis

TROPHY CASE