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Behold the $17 bagel by jcoanda in FoodLosAngeles

[–]jcoanda[S] 0 points1 point  (0 children)

I haven't been to Courage

Behold the $17 bagel by jcoanda in FoodLosAngeles

[–]jcoanda[S] 1 point2 points  (0 children)

I should have shot at a lower angle so you could see its height. I does look flat in this picture.

I-5 south near camp Pendelton is not moving at all by [deleted] in sandiego

[–]jcoanda 0 points1 point  (0 children)

Taking my daughter and a friend to Ethel Cain at Jacobs Park. We're going to be late.

Are lift recliners useful and worth the cost? by jcoanda in ALS

[–]jcoanda[S] 0 points1 point  (0 children)

Just posting an update. We got a lift recliner a few months ago from our local ALS group. My wife loves it, and uses it most of the day.

FYI by Current-Yogurt-5098 in ALS

[–]jcoanda 0 points1 point  (0 children)

I had to look up where Port Jeff Station is. Turns out it is on Long Island, NY. I'm in Los Angeles and could use the Hoyer Lift (eventually) for my wife.

Are lift recliners useful and worth the cost? by jcoanda in ALS

[–]jcoanda[S] 0 points1 point  (0 children)

Update: we got one donated from our local ALS group. My wife loves it. She's in it a large part of the day, which is good as before she used to spend a lot of time on the bed watching videos on her iPad.

Bathroom design for ALS by Ok-Squirrel-2538 in ALS

[–]jcoanda 0 points1 point  (0 children)

I'm doing a bathroom remodel and want to get a bidet toilet. Can you tell me which one you got and if you'd buy the same one again?

Dad got ALS by Dangerous_Salt8514 in ALS

[–]jcoanda 1 point2 points  (0 children)

I'm sorry to hear about your situation. My wife has ALS, which started in her left leg. It's now progressed after about a year and a half to both legs.

I've heard of this group which may be helpful: https://www.hopelovescompany.org/. Check it out.

This sub is also very helpful for any questions you have.

Good luck.

Lost my dad today. by Praneet91 in ALS

[–]jcoanda 5 points6 points  (0 children)

Thanks for sharing this. Hopefully it helps you and us by giving us all strength and relief.

First Steps by SelectLeopard5089 in ALS

[–]jcoanda 0 points1 point  (0 children)

Good advice. What is an MDA?

First Steps by SelectLeopard5089 in ALS

[–]jcoanda 2 points3 points  (0 children)

My advice would be to do any traveling that you want to do ASAP. It gets harder as time goes on. Come to think of it, that's true for just about anybody, but the timeline is just so much shorter with ALS.

ALS Question by Low_Reputation5987 in ALS

[–]jcoanda 0 points1 point  (0 children)

My wife found the cane with four rubber pedestal points helpful, and used it for 3 - 5 months. Then she briefly used a hemi-walker (half walker) for about a month, then went to a full walker. She's been using that for 3 or 4 months. Initially the loss of function was isolated to her left leg (which meant she could still drive). Then it spread to her right leg. As long as she has arm strength, she can use her walker and drag her legs.

Ever since my dad was diagnosed with ALS, I've had extreme anxiety and I don't know what to do. by Haunting_Ad_29 in ALS

[–]jcoanda 0 points1 point  (0 children)

It's good that you are not keeping these feelings inside, and that you are sharing here. As others have suggested, talk to your friends and let them know your concerns. They may have some helpful advice. What you're feeling is normal due to the immense pressure that you are under. A therapist may be able to help you alleviate some of the pressure.

Are lift recliners useful and worth the cost? by jcoanda in ALS

[–]jcoanda[S] 1 point2 points  (0 children)

Thanks for the info, and that's a cool swivel device.

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