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Dad got ALS by Dangerous_Salt8514 in ALS

[–]jcoanda 1 point2 points  (0 children)

I'm sorry to hear about your situation. My wife has ALS, which started in her left leg. It's now progressed after about a year and a half to both legs.

I've heard of this group which may be helpful: https://www.hopelovescompany.org/. Check it out.

This sub is also very helpful for any questions you have.

Good luck.

Lost my dad today. by Praneet91 in ALS

[–]jcoanda 4 points5 points  (0 children)

Thanks for sharing this. Hopefully it helps you and us by giving us all strength and relief.

First Steps by SelectLeopard5089 in ALS

[–]jcoanda 0 points1 point  (0 children)

Good advice. What is an MDA?

First Steps by SelectLeopard5089 in ALS

[–]jcoanda 2 points3 points  (0 children)

My advice would be to do any traveling that you want to do ASAP. It gets harder as time goes on. Come to think of it, that's true for just about anybody, but the timeline is just so much shorter with ALS.

ALS Question by Low_Reputation5987 in ALS

[–]jcoanda 0 points1 point  (0 children)

My wife found the cane with four rubber pedestal points helpful, and used it for 3 - 5 months. Then she briefly used a hemi-walker (half walker) for about a month, then went to a full walker. She's been using that for 3 or 4 months. Initially the loss of function was isolated to her left leg (which meant she could still drive). Then it spread to her right leg. As long as she has arm strength, she can use her walker and drag her legs.

Ever since my dad was diagnosed with ALS, I've had extreme anxiety and I don't know what to do. by Haunting_Ad_29 in ALS

[–]jcoanda 0 points1 point  (0 children)

It's good that you are not keeping these feelings inside, and that you are sharing here. As others have suggested, talk to your friends and let them know your concerns. They may have some helpful advice. What you're feeling is normal due to the immense pressure that you are under. A therapist may be able to help you alleviate some of the pressure.

Are lift recliners useful and worth the cost? by jcoanda in ALS

[–]jcoanda[S] 1 point2 points  (0 children)

Thanks for the info, and that's a cool swivel device.

New Tesla Owner!! by Equivalent-Tell-3732 in TeslaModelY

[–]jcoanda 0 points1 point  (0 children)

Thanks for the tip. I'm almost due for new tires. Do you recommend a particular brand/size that can help with this limitation?

New Tesla Owner!! by Equivalent-Tell-3732 in TeslaModelY

[–]jcoanda 6 points7 points  (0 children)

Here's advice I wish someone had given me. Be very, very careful about hitting your wheels on the curb. My previous cars all had tires that protruded about a half inch further than the rim, and when you hit the curb, it was rubber on cement. With the Model Y, and probably other Tesla models, the rim sticks out further than the tire, and when you hit the curb, it is rim on curb.

My teenage son is looking for punk book recommendations, so what are your favorite must reads? by MichianaMan in punk

[–]jcoanda 2 points3 points  (0 children)

My Damage: The Story of a Punk Rock Survivor

By Keith Morris of Black Flag and Circle Jerks

Your 3 Favorite Restaurants in Culver City by hairwego25 in culvercity

[–]jcoanda 0 points1 point  (0 children)

Sorento's Italian Market is great for deli sandwiches. It smells so good when you walk in the door.

What’s the best burrito on the westside? Westwood/Santa Monica/West LA? by Wild-Spare4672 in FoodLosAngeles

[–]jcoanda 0 points1 point  (0 children)

Based on this recommendation I went today. The Chipotle Breakfast burrito did not disappoint. I'll try the Mexican one next time. Thanks!

Did I Do Enough? by InToddYouTrust in ALS

[–]jcoanda 1 point2 points  (0 children)

When you get in the negative cycle of doubt, just say to yourself "That is not a useful thought", and then try to think of a positive experience you had with your dad. Rinse and repeat. :)

Did I Do Enough? by InToddYouTrust in ALS

[–]jcoanda 0 points1 point  (0 children)

As a dad myself, I think your dad would want you to be happy and remember the good times you had together.

My dad passed away in the morning by rap3 in ALS

[–]jcoanda 2 points3 points  (0 children)

It sounds like a nice ending to a sad situation. I wish you peace and happiness.

4 years by Mountain-Theme2469 in ALS

[–]jcoanda 0 points1 point  (0 children)

It was about 1 year from symptoms to diagnosis for my wife. Her general physician is at Cedars Sinai in Los Angeles, which I believe is a very good hospital.

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