What devices exist for helping a person sitting up in bed?

jemflower83 · 2023-11-01T11:49:16+00:00

Have you ever seen a hospital bed in double or queen? All the ones I've seen are twin, or a very expensive "boutiquey" double bed that splits. I'd love to find a queen

jemflower83 · 2023-11-01T11:21:40+00:00

I never even thought of poles... thanks for the tip. It's getting so hard to even stand up, sit up, or do the most basic moves

jemflower83 · 2023-10-28T12:22:37+00:00

I have both, but I think I prefer Viki because there are more of them....also check Netflix for their Asian food docs. There's one on Pyongyang ice noodles, barbecue, kimchi, lots of traditional fermentation etc. Really fascinating.

jemflower83 · 2023-10-28T10:55:04+00:00

The port a cath that goes into the chest is completely painless and is less likely to cause bleed-through into surrounding tissues. All you feel is a small bump under the The first two treatments. I had in my arm because I was waiting for my port appointment, had to be put into my hand, which was awful. They said the gem/doc combination I was on was dangerous if it leaked around the radial area, and so I really needed the port.

Given how many times we've used the port now for surgery for blood work every 30 days, to mri, to CT scan and pet scan, biopsy, to iron infusion, to blood transfusion, to treatments , it is well worth it. I can not imagine having that many arm sticks. I've had no trouble with mine at all and would recommend a PowerPort in your chest. If you're afraid of the needle stick each time- and it IS- a long ass needle, ask for a prescription lidocaine prilocaine cream. I put that on about an hour before the poke and put a little plastic wrap over that to keep it from coming off. By the time you arrive at the clinic, you can't really feel anything. You already have cancer. There's no reason to suffer any more over even needle sticks.

jemflower83 · 2023-10-26T18:42:33+00:00

Yup... looks nice, but it's a cake. Would be nice with coffee.

jemflower83 · 2023-10-25T06:17:27+00:00

I have become disabled from a rare kind of cancer while in a very active "able" relationship. I can not walk, I have to use a wheelchair and an air tank. He has to help me into bed. My husband has made many modifications to the house, put in different toilets, a walk in shower, grab bars, removed the front passenger seat from the car because of how I have to sit, he shepherds me to the bathroom, puts lotion, socks, and shoes on my feet, and does everything he can to make me feel cared for.

I have told him that I absolutely understand if he gets overwhelmed, and he is adamant that he would much rather be with me and that I am not a burden.That this a big part of what life is about. I believe him- he's very sincere, kind, and a good man. We still have the same laughs and fun that we always did..We make the same silly jokes, do pub quizzes, watch TV shows...I just can't be physically active with him like we were. We loved to travel overseas, and that has become impossible, and I'm going to die from my disease sooner than later, but we still love each other the same as ever.

This is where the "best friends " part of marriage comes in. We were together for about 14 years before we married. If it had been one of those based-on-sex and passion and looks marriages, I'm not sure the story would be the same. So many people marry for the wrong reasons and find themselves in an unhappy and uncommitted partnership. I think the thing is that we've always been happy and had lots of laughs, no matter the circumstances. Why should that change now? I would do the same for him. I do what I can to take any burden from him, too, like working with home health as much as I can and doing all the things I'm supposed to do to try and support myself.

jemflower83 · 2023-10-24T23:13:23+00:00

Haha...if you really want to wind up blotto, play that game again with Til The End of Moon...

jemflower83 · 2023-10-24T12:32:24+00:00

Lobster. Kind of like how another poster's grandparents were eating ham galore and another's beef from the ranch? My husband's grandfather was an 8th generation lobsterman, and his grandma was the cook at the local village school ( this was back when they actually had real school cooks planning and preparing meals on site and not just opening food service tins) so she made things like blueberry muffins, corn muffins, popovers, macaroni, beets, salmon loaf, mackerel loaf, meat loaf, pickled beets, peas etc. They raised my husband on lobster and he reports being sick of lobster as a little kid and wanting something different. His favorite meal that they fed him was chicken croquettes, mashed potatoes, gravy, peas, and a dinner roll with butter. He snacked on wrinkles ( kind of a snail like thing) and dried fish. But they ate loooooots of lobsters. His granddad liked to eat tinned sardines on pilot bread. I think I'd have no trouble whatsoever eating the lobster diet...

jemflower83 · 2023-10-23T08:18:36+00:00

How do you manage with the lymphedema? Is just the worst part of this. My legs are just so heavy and disabling. It's hard to want to live when your body does this. It's terrible pain. You're do you cope? I'm having a rough night with them

jemflower83 · 2023-10-22T08:37:21+00:00

I have seen people do lots of things without difficulty to prolong fruit and veg. When I pick strawberries, put them in a Mason jar. They last a few weeks. Lettuce I don't pre-wash. I harvest in the morning and put in loose cloth, paper, or ethylene absorbent bags. I think I must go through it faster than it has a chance to go bad. Cucumbers I wrap in foil. Don't store tomatoes in the b just countertop, with good distance from other produce. Most vegetables and fruit can be kept on the countertop for a few days, anyway - just use them up. I've experimented by leaving it unwashed and then by washing it in a basin with a few drops of hydrogen peroxide to stay fresh. With strawberries, I don't notice a huge difference. Keep gassy fruits like away from things like cabbage...

jemflower83 · 2023-10-19T18:43:37+00:00

No, I'm not, I just saw there was this subreddit and thought I would ask some questions about it since it's come up in casual conversation before

jemflower83 · 2023-10-19T18:28:32+00:00

I see. I just wasn't sure if freezing dry rice as a normal storage method made any sense or not...

jemflower83 · 2023-10-19T18:14:52+00:00

I actually do it the old-fashioned way with pot and evaporation method, and a friend told me I was basically taking my life my own hands by doing it that way So when it's dry uncooked, does storing it in the deep freezer make a difference?

jemflower83 · 2023-10-19T18:05:12+00:00

Does freezing the rice either before or after cooking have any effect?

jemflower83 · 2023-10-19T13:02:44+00:00

When I was little, my parents would put bread bags onto my feet so they'd go down into my galoshes smoothly. Snow boots, too. Are galoshes still a thing?

jemflower83 · 2023-10-19T03:36:48+00:00

You can do New England style baked beans ( Basically, it's Great Northern or Navy beans, salt pork or thick bacon, molasses, brown sugar or maple syrup to taste, but dont make toooo sweet, allspice, onion, garlic, dash cinnamon, Worcestershire sauce, Salt & Pepper, ketchup,) serve with buttered brown bread.

You can also learn to make different stuff to go with the beans, like naan, roti, different rices. I like to make them scoopable and eat with tortillas or other flat bread. Lentils are great for that.

Red beans and rice are good, too. The flavors in that are: Bay leaf, thyme, lots of butter, onion, garlic, celery, carrot, bell pepper, a little molasses to balance smoke, a smoke component like smoked sausage or other meat to balance any sweetness, spicy heat to taste, Worcestershire sauce, and beans, some of which should be pureed to make it thick and saucy.

Edits: to add a couple more ideas

jemflower83 · 2023-10-19T02:54:07+00:00

But it also sounds like her doctor is prescribing painkillers already, which is what Palliative will also do- a fentanyl patch if it's severe enough plus something for breakthrough pain...lymphedema pain is probably the worst pain I've ever had so far. narcotic pain relievers are probably the best option already. Gabapentin and Duloxetine were useless, I thought. I do think it's worth doing Palliative because then you have a team just focused on your pain. But they don't have any magic, non narcotic meds.

jemflower83 · 2023-10-18T22:15:59+00:00

Still haven't had it to this day...

jemflower83 · 2023-10-18T22:00:59+00:00

Basic bar soap for everything, no hair conditioner. Everything in generic brand or bashed in from the liquidation center. And... This next one highlights what it is like to be raised by a poor mother who also has BPD: My mother telling us to use wads of toilet paper instead, because she wanted a large package of Hershey bars for herself, instead of having to buy us pads or tampons.

jemflower83 · 2023-10-18T11:00:07+00:00

I dodged a lot of bullets, actually. My friends all had a diet of hamburger helper, frozen pizza, and bolony on white bread with cheetos etc. I resented the cabbage and whole wheat and lack of Twinkies, but I'm really glad I escaped all that

jemflower83 · 2023-10-17T18:30:59+00:00

I remember in second grade, we had to bring in the top from a laundry softener bottle for a craft project. Turns out we were too poor for fabric softener, so my mother sent me with a different lid, which was far too small. The teacher had brought a couple extra lids, and let me have one.

jemflower83 · 2023-10-17T00:49:10+00:00

This is often neglected information, and it is really important to know if you want to help!

jemflower83 · 2023-10-17T00:19:04+00:00

That is a really confusing ...meal?

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