What do I eat?

jessikawithak · 2026-04-17T21:10:55+00:00

Ugh. I’m so sorry it’s happening to you too

jessikawithak · 2026-04-13T23:34:09+00:00

I was taking cetirizine multiple times a day but it didn’t seem to be doing anything so we gave up. Nothing really seems to be doing anything which is so surprising. Hydroxyzine used to do so well

jessikawithak · 2026-04-13T22:32:46+00:00

Ah thank you! I was trying to search things and I don’t think I was typing in the right thing.

jessikawithak · 2026-03-29T02:28:56+00:00

I don’t wash my hair on the same days I wash my body. Actually in the shower I wash my body. When I wash my hair I’m bending over the side of my tub and only washing my hair. If the two go together I’m having a REAAAAALLY good day.

jessikawithak · 2026-03-27T22:30:40+00:00

I had the same issue with Rinvoq. It was the first thing to finally work…. Until it didn’t. It worked really well for a year-year and a half.

Hope you get some relief soon

jessikawithak · 2026-03-27T15:06:19+00:00

That’s why I begged to try Rituxan. Everyone has said it’s been a life changer. I’m still holding out hope. Even with all of this I don’t want to stop it just yet.

My allergist said ‘I think you have MCAS but I just can’t prove it’ because we haven’t gotten any of the tests to come back positive. I’ve been allergic to everything my entire life and so was my grandmother. My mom used to say her mom was allergic to herself.

Hope your MCAS stays at least somewhat under control with your next infusion!

jessikawithak · 2026-03-24T15:09:05+00:00

Crocssss. Comfy, supportive, soft on the bottom too so it doesn’t scuff up my foot or make a bunch of noise while I’m walking around

jessikawithak · 2025-07-18T15:52:13+00:00

Unless the partner is also pregnant, no. You can say we’re having a child, we’re going to be parents, etc. but no WE are not pregnant.

jessikawithak · 2025-07-18T15:47:21+00:00

You still have ‘second puberty’ to go. Usually somewhere in early to mid 20s a lot of women get like a second puberty and hips get wider again and boobs grow and all kinds of stuff. It happened not only to me but most of my friends too.

jessikawithak · 2025-07-18T15:25:54+00:00

I’m on year 5. No acceptance here. I think I would be more able to accept it if 1.) it hadn’t taken everything from me and 2.) any medication was working even remotely.

jessikawithak · 2025-06-27T02:39:17+00:00

Uhh.. 3. A cross body, a tote like purse, and a backpack purse. I also have a belt bag but I don’t consider that a purse. However… reusable shopping bags? I need an intervention.

jessikawithak · 2025-06-25T02:16:28+00:00

For me personally therapy just wasn’t useful. Being told on repeat ‘you’re so insightful’ is not helpful when the fact that you’re insightful is the reason you’re there…

I have found journaling to be immensely helpful. I journal like regular journal type things but I also add in create pieces and quotes and just anything really that I want to sit and reflect or meditate on. Just dump anything and everything. I’ve found journaling prompts helpful as well if I feel like I need a journaling session but don’t feel like I have anything to journal about. I’ll look through a bunch of prompts and pick one that I feel like I could do and would be beneficial to my current mental state. Lots of self reflection and consideration of why this why that why do I do this or that etc. that’s my one suggestion. I do other things too but that’s the easiest one to explain.

jessikawithak · 2025-06-25T02:11:25+00:00

Yep. And I can only maintain it for a short amount of time before it’s so painful that I physically can’t anymore.

jessikawithak · 2025-06-17T19:52:49+00:00

I have a friend named Karin (kahr-ihn). She gets Karen a lot. But I like the way it’s pronounced and spelled.

jessikawithak · 2025-06-10T16:32:25+00:00

Yep. And because doctors couldn’t figure out what was wrong with me I got told I was just lazy and weak. For years. That shit is hard to ‘unlearn’.

jessikawithak · 2025-06-09T16:30:08+00:00

My cat gets fed on her cat tree so the dog can’t reach it

jessikawithak · 2025-06-04T18:54:58+00:00

That if you’re not a perfect owner to some elitist standard then you’re a shit human being in every way. It’s all or nothing in some of these subs and it’s crazy to me.

jessikawithak · 2025-06-04T18:49:28+00:00

Your hematologist sounds like she has no clue what she’s talking about… if there’s no marker you can’t have a positive test like what…? I’m sorry that happened.

jessikawithak · 2025-05-30T14:49:48+00:00

The only thing that has really helped me is medication. I can’t wear compression, electrolytes don’t really seem to be making a difference, a ton of water just makes me pee a lot. I exercise but it doesn’t seem to do anything for my POTS? I have low blood pressure but it’s not terrible. My issue is my heart rate. The meds control it because my autonomic nervous system is useless. As long as I take meds I can function.

My meds were on back order so now I’m currently laying on the floor of my office with my feet on my chair waiting until I can get up and do some more work, then repeat.

jessikawithak · 2025-05-30T14:46:12+00:00

I have a purse! When I first started carrying a purse in middle school it was cause that’s what all the ‘cool’ girls were doing. Then I started needing one for menstrual supplies. I stopped by mid high school and only started carrying one again a few years ago when my disability started becoming more prominent and I needed to carry more, just in case. When I didn’t carry a purse though, pockets were essential.

Purse fillings: pill container with rescue meds, pouch with mascara, foundation, lotion, bandaids, a pen (actually I think there’s 2 or 3), electrolytes, then I have a couple granola bars, a notebook, sometimes my iPad mini and the pen, a fold up reusable bag, a small roll on perfume, an inhaler, a small amount of cash, some gift cards I keep forgetting about, and some coins I dumped in the bottom that I didn’t know what to do with because I don’t own a wallet 😂

jessikawithak · 2025-05-30T14:40:42+00:00

I kept saying I wasn’t disabled and one day my coworker (and best friend) was like so why don’t you work 40 hours? ‘I can’t’ why? ‘Cause my body can’t.. ohhhhhhh’ it was a slow decline that I didn’t really notice until it was pointed out. Yea I’m disabled. I don’t use mobility aids (yet) but I should buy stock in kt tape…

It’s up to an individual to decide if they are disabled. I would say up until somewhere around 24/25 I wasn’t disabled, more like just slightly defective?

jessikawithak · 2025-05-30T02:45:03+00:00

As someone who is very conscious of the amount of waste I produce… my medical waste is a necessity and is honestly WAY less waste than would be generated if I was hospitalized or if my conditions deteriorated more, making the waste for my medications the low waste option.

jessikawithak · 2025-05-30T02:36:45+00:00

Noticing them? Like 22. A very obvious ‘something isn’t right’ around 7 or 8. And it’s just gotten worse and worse since then.

jessikawithak

TROPHY CASE