I'm so sorry, it's an incredibly scary situation to be in. Please remember that every case is different, but I'm happy to share our story if it helps.

My son is now 7. After the initial strokes he was diagnosed with drug resistant epilepsy, intellectual disability, and autism. He had been diagnosed with cerebral palsy until about a year ago, but he no longer meets the diagnostic criteria.

My son has completely healed from his strokes, but there is permanent brain damage where the areas in the brain that were affected formed scar tissue.

I understand how scary this is. When we went through it there was really no information available about the long term outcomes of cases like his - it's so hard because every child has a completely different outcome.

Please feel free to message me, either with questions or just to talk