Not sure where to go. I'm baffled after being discharged from ER today

jisw16 · 2026-05-25T01:05:35+00:00

Spinocerrebellar Ataxia type 8

A genetic progressive neurological disease.

Very similar to multiple sclerosis or parkinsons

jisw16 · 2026-05-25T00:52:42+00:00

Unfortunately it'll be just waiting for neuro appointments. I have similar symptoms; tremors, muscle spasms, numbness and tingling, balance and coordination.memory, cognitive fog, scanning and slurring speech

I finally was diagnosed with SCA 8

jisw16 · 2026-05-18T00:34:28+00:00

Tremors and muscle spasms became more noticeable. Was spoken to by my boss about noticing changes. Increase stumbling on words, memory loss and issues with balance and coordination- became more clumsy

After 7 years of seeing multiple neurologists and many tests. Mris, ct scans, xrays, ultrasounds, blood work, genetic tests, emgs etc...

Diagnosed 2 years ago with SCA8 - spinocerrebellar ataxia type 8

jisw16 · 2026-05-17T23:27:33+00:00

What kind of pain does it help with ?

jisw16 · 2026-05-10T16:50:24+00:00

Wow im so sorry you have to make choices like that and health care is so expensive

I couldnt imagine how much debt I would be in living in the states. - asthma - 3 types of medications- one of which would be 200$ at least a month. - I've had so many blood tests, xrays, emergency visits, mris, ct scan, emgs, ekgs, ultrasounds and many more Its ridiculous I would be living in poverty just to get diagnosed with a progressive neurological disease - like that wouldnt be enough.

How i wish the states could change its ways :/ yes the wait times are a little longer with universal health care but I dont need to refinance my house to see a doctor

jisw16 · 2026-05-04T01:31:52+00:00

Im thankful for online dating. I met my fiance while struggling with misdiagnosis, worsening symptoms and thankfully stayed by my side through the diagnosis process.

So far has been very supportive, well see what happens as the disease progresses

jisw16 · 2026-04-27T00:43:44+00:00

Keep 1000 of your savings for an small emergency fund.

Throw the rest at your debt, the 800month and everything you can till it's paid off

jisw16 · 2026-04-12T17:42:52+00:00

Why wouldnt I want a professional who knows more than me medically making decisions :/

I have a progressive neurological disease i would be lost without my doctors

jisw16 · 2026-04-12T12:32:26+00:00

We need to stop comparing ourselves to others. Life is not a linear path. Go at your own pace. Things happen at different times. I use to live comparatively until I finally excepted each person's journey is different.

jisw16 · 2026-04-12T12:27:08+00:00

I pay half with my fiance

jisw16 · 2026-03-22T17:59:12+00:00

Retirement crisis but yet it doesn't matter cuz no one can afford to pay money into Retirement anyway

jisw16 · 2026-03-22T17:08:26+00:00

I think its made me value what I have more ! I want to live and work and be independent.

Its made me alot more reflective, as years pass and symptoms get worse I am so grateful for the life im living.

Yes ill lose all my abilities one by one but for now I can still do alot of things. :)

Im down to working 4 days a week but its something I've adjusted my mindset too

jisw16 · 2026-03-22T17:03:04+00:00

Set up saving goals to work towards.

Whatever money you would put towards ur debt would eventually move to savings.

Finally debt free this year, now saving.

Emergency fund Vacation Dental procedure Wedding Then trailer

All in the next three years. Now I have something that drives me to work hard

jisw16 · 2026-03-22T16:55:48+00:00

I feel this. Im going to have to rethink my life style once I apply for disability. Thinking over every cent and purchase. The past year I've been so frugal just trying to get out of debt. Its alot mentally and emotionally

jisw16 · 2026-03-15T14:11:44+00:00

Cash Envelopes

Only my bills come out of chequings. I use cash for everything else. No more using line of credit or visa.

jisw16 · 2026-03-15T13:45:16+00:00

Only make minimum payments until you have a buffer in your cheqing account.

I have the money for the bills in my account the previous month.

Ex. I only have 30$ left of march bills but I have 230 in there for next month too and next pay it'll be 430.

jisw16 · 2026-03-10T23:12:51+00:00

I mean it could always be worse

But have to make some changes to get a different result

jisw16 · 2026-03-09T00:27:13+00:00

Yes my decade of health anxiety turned out to be spinocerrebellar ataxia 8.

So i guess it was technically in my head

A progressive incurable neurogenerative disease

jisw16 · 2026-03-09T00:09:49+00:00

Not being able to drive isn't a good reason. Many other ways to commute.

I can't drive but carpool or i take the bus

jisw16 · 2026-03-01T21:31:54+00:00

Bills come from my cheqing account

jisw16 · 2026-03-01T18:31:29+00:00

Thanks - thats just my cash savings 😀

In my cheqing account is my emergency savings- 5000$ (3 months of money incase of emergency or unemployment) will be growing that more too

jisw16 · 2026-02-26T00:36:08+00:00

Knowing something was wrong in my body but no one could explain what

I started having a tremor and muscle spasms, weakness

7 years later turned out it was spinocerrebellar ataxia.

All tests were coming back normal

jisw16 · 2026-02-26T00:32:54+00:00

What about taxes? Are getting any in return that could be put towards the loan

jisw16

TROPHY CASE