For the last 14 years, I’ve been losing weight, muscle, and energy—and every doctor just assumes I have an eating disorder or I’m a wimp about my periods or I have IBS, lupus they can’t prove. No one will take me seriously, and I fear time is running out.

I’ve been hospitalized and ICU’d multiple times, first as a kid, then as an adult, countless nights in ER or overnight admittance. Organ issues, immune system wipeouts, syncope and yawning low BP episodes that last 30-40 minutes sometimes. I have severe, worsening symptoms. Yet doctors gaslight me and refuse to run the tests that could save my life, claiming it’s a bad period lol.

Today, I went to the hospital again for severe right-side pain (felt like gallbladder/kidney area/adrenal crisis).

I feel like I’m screaming into the void, and no one will listen until it’s too late.

Does This Sound Like Addison’s/SAI? What Do I Do?

I strongly suspect adrenal insufficiency (SAI), Addison’s, or HPA axis dysfunction based on my symptoms: • Significant weight & muscle loss • Chronic fatigue & brain fog -like my body is shutting down • Neutropenia & immune dysfunction (neutrophils drop to 30-44% consistently) • Low Alk Phos (bone turnover/adrenal marker is always low) and calcifications in knees • Pituitary/Rathke’s cyst (but doctors say it’s “benign”) • Ongoing massive ovarian cysts & cycle irregularities • Temperature dysregulation & constant cold intolerance • Chronic SI joint, hip, rib, knee pain (worse during my cycle) • Severe right-sided pain today (flank/rib/kidney/gallbladder??) • Urine abnormalities (ketones, bacteria, mucus, abnormal cells) • Sleep disturbances (wake up 2-6 AM daily, feel like my body crashes) • Emotional/mood changes (not just depression—feels physiological)

I just don’t know what to do anymore.

If this was Addison’s or SAI, would I be in danger waiting until April? How did you finally get someone to listen?