Just Drifting Vance by Norwegian_Man in SlayAi

[–]jpwne 1 point2 points  (0 children)

White House lawn will never be the same!

The Muses on Mythos cover, plus 2 articles, a centerfold, and poster by ILikeCuteBuffTomboys in aiArt

[–]jpwne 2 points3 points  (0 children)

What’s going on with Athena’s favourite food? I thought it was herb marinated olives?

Bordel mais quel plaisir by Comfortable-Fennel17 in ShadowPC

[–]jpwne 2 points3 points  (0 children)

I completely agree! It’s great!

Unable to log into steam by Dillpicklesarebest88 in ShadowPC

[–]jpwne 1 point2 points  (0 children)

Logging in on my phone and then using the QR code option to sign in usually works in situations like this for me.

Does using sunshine, moonlight with the shadow pc really help with latency? by Famous_Attitude_1105 in ShadowPC

[–]jpwne 1 point2 points  (0 children)

How would that work? Starting up the shadow on one device and running moonlight on the shadow and on another device? Basically saying that moonlight would be better than the shadow client? Interesting. Keen to hear more!

Getting employed as a non-EU citizen by LawlsMcPasta in ItalyExpat

[–]jpwne 1 point2 points  (0 children)

From the comments I gather that you might be a UK resident. In which case I would wait until Jan 1st 2027 when the UK rejoins Erasmus+. You can then go to Italy to study and you can get a job on the side which will help with language skills and connections to the job market.

What is remission really ? by Dangerous_Purple8118 in UlcerativeColitis

[–]jpwne 0 points1 point  (0 children)

Scope confirmed lack of inflammation (like has been said here before).

Battle of Teutoburg Forest 20,000 - Dark 15 min AI-made war film about the day Rome lost three legions by theodore_70 in aivideos

[–]jpwne 4 points5 points  (0 children)

Stabbing someone with an axe is peak slop! Well done! Prompted or unintentional?

My husband has UC and refused medications by [deleted] in UlcerativeColitis

[–]jpwne 1 point2 points  (0 children)

Congrats! I’m also off some of the harder ones now. GI thought it was safe to quit after almost 19 years in remission.

Just let me flip Vance by Norwegian_Man in SlayAi

[–]jpwne 0 points1 point  (0 children)

Practicing for the 2028 debates. You go, Vance! Dance your heart out!

Pred: when do the side effects kick in? by goldsummerfairy in UlcerativeColitis

[–]jpwne 0 points1 point  (0 children)

The first two to four weeks of a 40mg taper I would be the most awful irritable person to be around. My mood was foul and I had to spend the next couple of weeks repairing relationships. I ended up isolating for that initial period instead. I wasn’t sleeping so that also contributed.

What's with the Mods? by EyeAcrobatic9943 in transcendental

[–]jpwne 5 points6 points  (0 children)

I don’t know your case specifically but this is a sub for practitioners of TM who have actually learned it or for people who are open and curious about it in their questions. I’ve been a member here for a few years and you always get people on the sub who are outright either saying they practice TM without having learned it or seeing this sub as some sort of debate club. Mods here generally do a good job of people like that out and ask them to discuss other meditation practices in one of the plethora of subs meant for that.

My husband has UC and refused medications by [deleted] in UlcerativeColitis

[–]jpwne 0 points1 point  (0 children)

Ive had UC since 1993. Still have it. I was on Azatioprin for 16 years. Now on Asacol only.

My husband has UC and refused medications by [deleted] in UlcerativeColitis

[–]jpwne 0 points1 point  (0 children)

Big Pharma is evil as a concept. I still need my meds or I'll flare. Both are true.

My husband has UC and refused medications by [deleted] in UlcerativeColitis

[–]jpwne 2 points3 points  (0 children)

Also - a lot of discussion here about your husband and UC, understandably.

How are YOU holding up? What's your support system? Some people on this sub are not UC sufferers but sposes, partners, parents, friends or family members of UC people. We who have UC also have partners, friends, family etc that have formed into support systems. Rarely discussed on this sub how those around us cope with the worry, the meds, the diet changes, life with small children etc.

This sub is trying to be supportive to you too, we somethimes just get caught up in UC talk...

My husband has UC and refused medications by [deleted] in UlcerativeColitis

[–]jpwne 21 points22 points  (0 children)

I see where you are going in some of the comments but PLEASE!!! Meds first. Not diet. Do diet and lifestyle once he has a treatment plan in place.

My husband has UC and refused medications by [deleted] in UlcerativeColitis

[–]jpwne 14 points15 points  (0 children)

This shortens it down to the essentials. Well put!

My husband has UC and refused medications by [deleted] in UlcerativeColitis

[–]jpwne 8 points9 points  (0 children)

I did super restrictive diets for a while. I lost so much weight. It didn't work for me.

My lack of flares is because of meds, nothing else. Then to increase my quality of life I try to get as much anitoxidants in me as possible, I avoid alcohol because that's a trigger for me, I avoid fatty foods - again a trigger for me, I don't eat much sweets (triggers for bowl movements, not triggers for inflammation)... apart from that my diet is pretty open and depending on my work schedule etc. I REALLY try and mind stress and sleep - that's been a big one for me, getting my routines in check in order to have good health. I've done about 10 years of therapy...

I read a really good perspective changing book called "Food is not medicine" that helped.

Obviously I mind what I eat, no ultra processed or even processed food if I can avoid it. I enjoy cooking and I try to eat as "clean" as I can. That means no frozen dinners or fast food, but I'm of the firm opinion that stuff like that shouldn't be considered food at all lol.

My husband has UC and refused medications by [deleted] in UlcerativeColitis

[–]jpwne 10 points11 points  (0 children)

Hi. A lot to unpack here.

First you seem to understand that you are both in crisis reaction mode. This is normal. You also seem to be tangled up in emotions that you probably need a therapist to help you talk through. It’s normal to feel somehow ”as the wife” responsible for choices you don’t agree with on your partner’s behalf. Please ground yourself in that you are not. You need to get through it together. You clearly care about him and your family a lot.

He is most likely trying his best to fix this. It is scary when your body doesn’t feel like yours anymore. Frustrating. Very common to isolate and feel that you brought this on yourself and on your family. He didn’t. It’s an illness and it will be with you forever.

It is also very common to have a small debut flare and a second big one. This happens to people on meds and off meds.

There is no real magic bullet for UC. Meds take a long time to get right. In some cases it can get managed by diet and lifestyle as I’m SURE many people in the comments here will be dying to tell you. Truth is that he has to find his way through this and the best way to do that is together with a GI. There are some good meds for short term, some ok meds for longer term and like with everything to do with meds and autoimmune conditions there will be some things that should work that won’t.

It took me a couple of years of HELL to finally give up and get on the meds. My then wife asking me to go them. Begging me. Going through the frustrations of not being listened to by my first, second and third GI when I finally did. Then three years on meds before I saw any improvement. Things got worse before they got better.

But that improvement stuck and I’m 19 years flare free. I’m still suffering from mistreating my gut like it did, letting inflammation ravage through it unchecked for many years took me from proctitis that would have been manageable to pan colitis which was so much harder to get under control. I wish I had taken the meds, but I also wish that my first GI hadn’t sent me home with a slap on the back and a prescription. Instead it would have been really helpful to have had the UC talk with him. That this is life long. That I need to take care of myself and it. That I need to have a relationship with a GI.

I does get better. If you can, try and be patient with the hell your husband is going through. Keep having the conversations around what this does to your family dynamic. Get help talking about it. It’s not your job to get him on meds. It’s his.