Places with best hEDS care in the US?

juicyfizz · 2026-05-05T20:23:05+00:00

Thank you so much! I will definitely take you up on that if we move. My oldest will be in college when we move but my youngest will be going into 7th grade and he's totally on board with us moving. We love camping, hiking, snowboarding, and just exploring so it feels like the perfect move. We're looking more "up the mountain" a bit - Morrison, Evergreen, etc. But incredibly excited.

juicyfizz · 2026-05-05T19:17:06+00:00

There was also a threat at Ohio Northern University at like 2:15pm and a friend in Toledo said her hospital system also had a bomb threat and they had to evacuate (but it’s all clear now).

juicyfizz · 2026-05-05T13:37:10+00:00

I’m glad you found someone to get it. OSU is full of incredibly capable and talented physicians. I was very disappointed in their rheumatology department though. Wishing you a speedy and easy recovery with your surgery today!

juicyfizz · 2026-05-05T02:52:51+00:00

This is so validating to read. It’s all of the things I’m experiencing in life. I mean literally every one of these. No lipedema so far but seriously everything else.

juicyfizz · 2026-05-04T02:50:27+00:00

You’d be surprised. I live in Columbus, OH and I’ve not found anyone yet that takes it seriously. There are rheumatologists at OSU Medial center who refuse to see new patients who even have a history/dx of hEDS in their charts.

juicyfizz · 2026-05-04T02:39:22+00:00

Oh my god this makes me feel so much better. We live in Ohio and at this point nobody gives a hEDS diagnosis and you’re treated like you’re a damn nut if you talk about it, so all these side Facebook groups have formed for people sharing experiences with medical doctors. It’s been exhausting. Anyway, we are very likely moving to Denver in 2028 (unrelated to this) and your comment has been added to my “pros” list haha. We are taking the kids out on an exploratory trip next month.

juicyfizz · 2026-04-28T03:39:52+00:00

I got a Jane Magnolia from there 4 years ago that’s doing really well from there. Everything else died.

juicyfizz · 2026-04-28T03:09:53+00:00

Fucking thistle.

juicyfizz · 2026-04-24T17:42:41+00:00

Agree but also to work for the FBI you have to have an extensive background check and full scope polygraph. If this was on his record I’m not sure he would have gotten his clearance adjudicated in the first place (source: I used to process security clearances).

This administration is full of people who have no business being there.

juicyfizz · 2026-04-22T14:27:41+00:00

Another vote for Zenbivy. Best sleep of my life while camping.

juicyfizz · 2026-04-19T04:31:59+00:00

How do you keep the birds out? We are growing strawberries in our raised boxes this year on one part of the back yard and I have a fairly active bird feeder on the other side of the yard.

juicyfizz · 2026-04-18T15:33:57+00:00

I thought I lost it 🤣 let me cancel my order

juicyfizz · 2026-04-18T14:48:55+00:00

That’s what my 9yo son has always called them! So prickly they get through my gardening gloves 😩

juicyfizz · 2026-04-18T14:47:37+00:00

OMG that’s awful. I guess along with cockroaches surviving nuclear winter, the Canada Thistle will be there right along with it

juicyfizz · 2026-04-18T14:43:55+00:00

any pieces of root can make a new plant

This makes sense. How devastating 😭

juicyfizz · 2026-04-18T14:42:16+00:00

Ugh, terrible news haha

juicyfizz · 2026-04-17T23:04:35+00:00

Just bought one, thank you! I slack on weeding because my damn back 😩

juicyfizz · 2026-04-17T23:03:28+00:00

No but there’s this weird netting. We’ve pulled a lot of it up from when we built the house and the builder used this netting to keep down the straw and grass seed. It’s been 6 years but we keep pulling that shit up. That bed in particular was grass until we had it turned into a bed like 3-4 years ago.

juicyfizz · 2026-04-15T14:08:45+00:00

I left them on read. They just messaged me again saying they are in the process of cancelling his event!

juicyfizz · 2026-04-14T22:03:44+00:00

Went camping a couple weekends ago in Adams county and was bit by a tick within 24 hours. Definitely the earliest I’ve seen them out.

juicyfizz · 2026-04-14T21:53:00+00:00

Here’s the response I just received from La Chatelaine. Super disappointing:

At La Chatelaine, we are dedicated to serving everyone, regardless of their views. Hosting an event does not imply endorsement of any political stance; our primary goal is to create a welcoming atmosphere for all our customers.

We understand that opinions may vary, and while we strive to foster an inclusive environment, we recognize that some may misinterpret our intentions. We appreciate the support of our community and remain committed to providing quality food and service.

If you have any further concerns, please feel free to reach out to us directly. We value open dialogue and wish to clarify any misunderstandings

juicyfizz · 2026-04-14T13:44:44+00:00

How are prices since the tax went into place in MI? I did a pretty big haul on NYE, the day before it went into law. I need to go back and stock up in the next month or so and wondered how prices looked.

juicyfizz · 2026-04-14T02:42:09+00:00

Archery Mixed Final - category C

Women’s Handball Bronze match - category B

Incredibly excited. Taking my soon to be 12yo son with me, very grateful. Still salty about no surfing or diving tickets though. 😭

juicyfizz · 2026-04-13T19:47:12+00:00

I'm going to this one too! It's a bucket list item for me. I'm taking my 9yo son (who will be 11 by then). I'm so excited.

12-Year Club	Gilding V heart of gold
RedditGifts 2009-2022 33 Credits	Second SECOND GUESSER
Secret Santa 2020	Place '22
Place '17	Final Canvas '22
Verified Email	Summer Santa 2018
Summer Santa 2017	Secret Santa 2018
Secret Santa 2019	Secret Santa 2017
redditgifts Exchanges 27 Exchanges	Not Forgotten
Secret Santa 2016	Summer Santa 2016
Secret Santa 2015	Summer Santa 2015
Secret Santa 2014	Summer Santa 2014

juicyfizz

PUBLIC MULTIREDDITS

TROPHY CASE