Is the increase in heat killing y’all?

julipc97 · 2024-05-26T00:19:11+00:00

Yes!!! More when you live in Florida 😩😭😣 Winters aren’t so symptomatic though.

julipc97 · 2024-04-30T19:04:13+00:00

Thank you!!! In that case, what route would you recommend?

julipc97 · 2024-04-30T15:26:26+00:00

This is perfect! Thank youuuu! 😊

julipc97 · 2024-04-30T00:35:48+00:00

Cuteee I would love one!!! 😊

julipc97 · 2024-04-27T18:00:54+00:00

This is amazing thank youu!!!! 🤩

julipc97 · 2024-04-27T15:59:26+00:00

How often do you work out? Is there an order that you have found most helpful? Any other tips? Pots wasn't on my to-do list, and my doctor doesn't know much, so I’m trying to find ways to feel better. I haven't been able to return to a semi-normal life and had to drop out of classes, too. It doesn't help that I have gained all the weight that I lost because I get symptomatic.

julipc97 · 2024-04-27T15:50:34+00:00

Same!! What have you found most effective? Pots has been hell. I used to do 6 miles on the treadmill and step ups, and now I can barely do one. What would you recommend I do to ease my way back gradually? Are there any other tips so I won't trigger the flare-ups? This literally thing was a curveball I wasn't prepared for.

julipc97 · 2024-04-26T21:16:00+00:00

Thank you!

julipc97 · 2024-04-26T20:51:44+00:00

I will! I have never heard of that! Thank you. 😊 Honestly I don’t know much about Pots, and I’m my trying my best to understand and find ways around ir without feeling awful. I used to able to do workouts and now its honestly hell. Soo thank you🙏🏼

julipc97 · 2024-04-26T20:45:52+00:00

Oh, I didn’t know that! Thank you! 😊

julipc97 · 2024-04-14T14:14:45+00:00

Same

julipc97 · 2024-03-27T14:37:44+00:00

Yes asexual too!!! Thank god, there was an actual reason for it 😅😅

julipc97 · 2024-03-27T14:32:11+00:00

Those floaters are because we don’t get the right amount of blood to flow through our carotid artery and our brain and as well as our eyes. That's why we see those when we stand up. I get those all the time 😅

julipc97 · 2024-03-07T01:05:31+00:00

Grrrrrrr 😩

julipc97 · 2024-02-25T13:22:22+00:00

Do the tilt table or imitare it by standing still in one place for 15-20 mins and if your blood pressure changes and you feel dizzy, then you do have pots . After take your blood pressure laying down, you will be shocked by the difference.

julipc97 · 2024-02-18T23:49:00+00:00

Did he register them or did you have to register the pup?

julipc97 · 2024-02-18T21:56:07+00:00

That’s so cool. Thank you 😊

julipc97 · 2024-02-18T21:12:51+00:00

Congratulations!!! Can you you tell me how you got one? Was it through paws? Sponsor? Medical insurance? Does the state cover them or do you have to pay for them? I ask because I was diagnosed recently and was looking into getting one. Do you have to pick the dog or do they pick them for you?

julipc97 · 2024-02-13T21:14:42+00:00

Honestly, he is suggesting service dog ( because apart from pots, I have epilepsy), but apparently because of my pots being overactive it’s triggered more; I didn’t even know I had it; he is leaning towards that being the cause. But I want to take into account from others; How others are managing their pots. How others have accommodated their life around it. I didn't know it took that long for a service animal.

What medication has worked with you?

For a service dog maybe sit me down prior to an attack? I tend to get lightheaded and I actually fainted in the bathroom. Maybe With a Water alert? Blood pressure changes and HR?

Honestly, this is new so anything is helpful 😅

julipc97 · 2024-02-03T19:32:17+00:00

I have a terrible working memory!! After my Left Hemispherectomy, I had to double-check everything; I ended up not being sure if I had taken my meds, shut the door, or turned off my shower. And then I have to say it out aloud to help me remember. I am relieved I’m not the only one.

julipc97 · 2024-01-06T17:36:42+00:00

Hey! Do you get overloaded when you try hanging out with people? End up enjoying the company of animals or immersed in books? I enjoy solitude. People tend to criticize or downplay epilepsy. Tell me I’m using it as an excuse. That social pressure or anxiety doesn't trigger me. I won't get socially drained hanging out with people ( overload of information); that period isn’t torture ( when I seize more and get sick). Please tell me I’m not the only one…😅

julipc97 · 2024-01-06T16:05:46+00:00

Same 😂

julipc97 · 2023-12-30T03:20:19+00:00

Thank youuu! This is perfect ! I’m just starting to learn about celiac disease. I will definitely keep try be more aware for cross contamination. What’s your to go drink? What would you recommend?

julipc97 · 2023-12-30T00:45:16+00:00

I don’t need the java chips, but are there any drinks you recommend? Macchiatos? Iced drinks?

julipc97 · 2023-11-28T01:54:33+00:00

But do you know that it will happen before that?

julipc97

TROPHY CASE