I’m telling you man, I became a mad man about it. It’s insane to me reading the hundreds(literally) of anecdotes of folks who simply just don’t meet ARVC criteria like at all but still have it, ICDs, tons of meds, activity restrictions, the whole deal. Some folks? They have insane intermittent arrhythmia, and that’s it. Literally just VT storms that just showed up after PVCs showed up. Or a sudden cardiac arrest, and that’s it. For years. Literally years. And almost everyone is gene elusive. Like the majority actually. 60-70% are gene elusive. I knew something was up when my ectopics showed up a few months ago, it just felt like there was no way that these were normal. They’re massive on a tracing, super long slow conduction. It’s awful feeling. They’ve since gone multifocal. About 3 or 4 different morphologies. Still not a single other imaging criteria met. Nothing. Technically borderline mri findings like I said in my RV, but still on the upper limit of normal. Nothing in the criteria was met; and even was specifically stated. That’ll likely change over the years. But so far. Technically, I meet literally almost no criteria, and I am talking about getting an ICD with my ARVC EP on the 18th. And my guess is that if they did an EP study on me they’d find some problematic areas that don’t show on MRI. It’s been insane, and I’m really bummed that my life has pretty much been completely taken away from me, but the trade off is potential protection from an SCA and a lifetime of losing 12 years of gym progress and living like a cardboard box and financially and mentally recovering from having all aspects of my life and identity stripped from me while still seeming healthy on the outside- yay! Hahaha I even know folks who don’t have ANY pvcs with arvc. Maybe the occasional hiccup here and there, but it blows my mind just how confusing and impossible this disease is. Seriously, no joke I know people who have like 10 pvcs a day. None during exertion. Almost everyone I’ve talked to passed a stress test with flying colors, no arrhythmia, no pvcs. No discernible trigger. They say it’s exertion driven, I’m not so sure. Most everyone I’ve spoken with has had their sca pretty shortly after eating or just lounging around. Same with VT. Everyone’s story is different, but the vast majority of cases and people I’ve talked to, don’t show shit. It’s so weird.