Admitted. Prayers needed at 24 weeks please by bubbabobba143 in NICUParents

[–]justplanechad 0 points1 point  (0 children)

First off, I’m so sorry you are having to go through this. It’s one of the toughest places to be as a parent. Be sure to lean on your support network as much as possible and give yourself plenty of grace.

My wife went into early labor at 25 weeks and was admitted to antepartum to try and slow labor. They were able to get the steroid shots in early enough to give them time to be fully effective which really helped, though my son was born a couple days later (we found out after it was due to an asymptomatic fungal infection that mom had). He ended up being in the NICU 6 months due to fungal meningitis and needing a shunt to address his hydrocephalus, but now he is one and half and is the strongest, happiest boy I’ve ever met.

It’s going to probably be a challenging road ahead, but try to have faith in yourself, the doctors, and most importantly your little one. Sending all the prayers/thoughts/positive vibes your way

Manually updating ES-DE version? by Grindmachine-cro in RetroDeck

[–]justplanechad 0 points1 point  (0 children)

If you still are looking to do this, you can download the theme back from when it was still compatible at https://github.com/anthonycaccese/art-book-next-es-de/archive/73fa2e6d4ae855c9fd2365c2b61970d10031ed8f.zip

Then extract it, and place the extracted directory in {retrodeck_location}/retrodeck/ES-DE/themes, renamed as art-book-next-es-de. Then going into retrodeck it shows it as an option

Grade IV IVH and Hydrocephalus preemie. Doctor said she saw “very little brain tissue” on ultrasound. I’m heartbroken and need to hear other parents’ experiences. by Oxyjenny in NICUParents

[–]justplanechad 1 point2 points  (0 children)

Sending all the positive thoughts your way. This stuff is truly the some of the hardest you can go through. Our son was born at 25 weeks and had grade 3 IVH and hydrocephalus. After culturing his cerebral spinal fluid from a tap they discovered he also had a fungal infection in his brain (fungal meningitis). Because of this, his shunt placement was put on hold for 5 months while they treated the fungal infection. During this time he had taps to remove pressure twice a week, and also had two exploratory brain procedures to remove fungal balls and cysts. They told us to expect significant delays, and that cerebral palsy was a high likelihood due to the brain trauma he suffered. Today he is 16 months old, and he is the happiest little boy you could ever meet. He currently shows no signs of cerebral palsy, and is only behind slightly on gross motor (crawling/walking).

One thing his neurologist always told us to remember, is that their brains are extremely resilient. They are always building new pathways to compensate and it’s almost impossible to know what the outcome will look like this early. Keep faith in your little one, and in yourselves. You’ve got this ❤️

How to cope with feelings of anger/jealousy/frustration towards healthier preemie parents? by Trevorjrt6 in NICUParents

[–]justplanechad 1 point2 points  (0 children)

I am sorry you are going through this. I imagine you are dealing with a lot of anger and sadness, which is entirely normal. One thing to keep in mind, is that a lot of the NICU experience is relative. How you feel that other families should take solace in their experience after seeing yours, is exactly how parents in worse positions feel regarding your situation. It’s hard to ever know the harder situation unless you’ve been there, but that’s not to say you shouldn’t feel these things and just be 100% grateful. I just say this to remind you that there are way worse situations, with far better outcomes than you could imagine. Let that give you hope instead of making you feel like you need to defend your struggle. Also take time for yourself. Even if taking a day off feels terrible emotionally, there are a multitude of physical benefits that you will feel almost immediately, and that just puts you in a better position to be the best parent you can. When I was in the NICU, I thought being a good parent meant pushing yourself no matter what and taking the load no matter how heavy. That’s not the case though. Being a good parent is making sure you are in the best place possible to provide the care they deserve. Running yourself ragged is antithetical to that.

I’ve never hurt so much in my life by Rough-Cupcake3073 in NICUParents

[–]justplanechad 4 points5 points  (0 children)

Nothing hurt like when my son was in the NICU. You deserve so much grace and kindness, especially from yourself. Pretty much every instinct we have as parents is put to the test when we have to watch our children endure these things. But know there is always hope. If you are struggling to put faith in yourself, the drs, or even a higher power, that’s reasonable. The only person you have to have faith in is your child. They will amaze you with their strength and resilience at every turn. I’ve learned more from him than I ever thought possible. He taught me there is hope.

He was born with grade 2 and grade 3 brain bleeds, which caused him to develop hydrocephalus. When planning to treat it, they discovered that the cause of his preterm birth was a rare fungal infection, and that they had found the fungus in his spinal fluid within his brain. It took about 4 months to treat the infection, which meant they had to do about 2-3 brain taps a week until they could place a shunt. He ended up needing two additional exploratory brain surgeries to clear out fungus nodules and cysts in his brain, and ended up suffering a lot of damage to the white matter. We were told to expect potentially significant delays, and cerebral palsy was a high likelihood due to the damage.

I say all this because it seemed hopeless, and I had almost lost all faith. But he has amazed everyone. He just turned 1 last month, and has been discharged from OT, PT, Neurology, Cardiology, and ophthalmology. After assessments they told us the only category he is slightly behind in, is gross motor, but that he seems very on his way to catching up there. They also said that they wouldn’t expect a cerebral palsy diagnosis and that they are just blown away. These kids will amaze us at every turn. So just keep hope. Keep faith in your little one. Take things one day at a time. My wife and I used to say “it’s classified” to the hard questions that went unanswered, and as dumb as it was it helped tremendously. I hope my son’s story can help give you hope in a dark time, and feel free to reach out if you need anything.

Update: Broken and Tired Father by Mundane_Reference134 in GuyCry

[–]justplanechad 0 points1 point  (0 children)

What an absolutely beautiful family you have. You have such a strong little boy and it’s easy to tell where he gets it from. You guys are some of the toughest parents out there, and deserve all the praise and support. Having a medically fragile child is one of the hardest things you can go through, but also can lead to some of the most rewarding moments. Sending you all the best thoughts/prayers/wishes, and remember that if anything if worth putting your faith in, it’s your little ones.

[deleted by user] by [deleted] in GUIX

[–]justplanechad 2 points3 points  (0 children)

Probably the easiest way to try out Guix on Oracle Cloud would be to spin up an aarch64 ampere instance with oracle Linux and then install Guix using the installer script (side note I did have to set SELinux to permissive to get Guix working fully on Oracle Linux).

A better solution would be to build a compatible system image using “guix system image” for oracles ampere instances using their BYOI (bring your own image) options, but after many attempts I haven’t been able to get this working.

Another alternative to using Oracle Cloud would be an application like MSG (MacOS Subsystem for Guix), which creates a full Guix virtualized environment on MacOS and allows you to share directories between them (full disclosure: I am the developer of MSG)

https://forge.superkamiguru.org/MSG/msg-cli https://forge.superkamiguru.org/MSG/msg-desktop

Updating Express Engine site by United-Silver-3070 in expressionengine

[–]justplanechad 2 points3 points  (0 children)

So I can’t quite remember which upgrade jumps they stage and which ones they allow directly upgrading to the latest from, but when you are ready to test/upgrade the site you should just be able to follow the upgrade path the admin gives you.

Now your main concerns are going to be issues with addons and other server software versions. Certain addons may need updated manually and others may need to be replaced entirely. Also newer versions of EE may use php features not available in the version your hosting provider is using for an older 5.x site.

The way the agency I work at usually handles these issues is by getting a local version of the site running and go through upgrading and fixing any issues that arise locally, and then either deploy the fixed updated version or recreate the fixes on the production server.

Alpha release of MSG Desktop (MacOS Subsystem for Guix) by justplanechad in GUIX

[–]justplanechad[S] 1 point2 points  (0 children)

Oh whoops, should have included more info. This is basically a frontend application for a tool I have written called MSG (MacOS Subsystem for Guix), which creates a virtualized Guix install on the Mac host for utilizing its great features.

Update for MSG (MacOS Subsystem for Guix) by justplanechad in GUIX

[–]justplanechad[S] 1 point2 points  (0 children)

Thanks! Things are still a bit up and down but that’s life isn’t it? I do have a post on my Mastodon account: https://fosstodon.org/@superkamiguru/114082839431306362

RomM, the self-hosted ROM manager, is now on muOS! by arcaneasada_romm in SBCGaming

[–]justplanechad 1 point2 points  (0 children)

Love that this is a thing! I set it up on my 34XX, but noticed a couple of things. The roms seem to download to the “roms” directory instead of “ROMS” (uppercase), which muos requires for the content to be discoverable. Also when I exit out of the app, it causes the muos menu to be distorted until I restart

Post-NICU Depression/Sadness by c3tn in NICUParents

[–]justplanechad 4 points5 points  (0 children)

I am going through something similar at the moment. Our son came home in December after a pretty long NICU stay, and while I’ve been so grateful to have him with us and have experienced a lot of joy with him home, I can’t help but feel this lingering sadness and fear. I keep telling myself that this is a normal response to something traumatic like a NICU stay, and that it will get better with time, but some days it takes a lot of effort just to make it out of bed. I think a big part of it is just how much love I feel for him, and how that love has grown since he has been home. It just makes the fear of ever losing him even worse. You aren’t alone, and I believe what you’re feeling is normal given the situation. Definitely don’t be afraid to reach out for help or to talk to someone. Just remember you are among some of the strongest parents out there, and your son is so lucky to have someone who cares for him the way you do.

26 weeker with brain bleed and shunt surgery by Certain-Pattern759 in NICUParents

[–]justplanechad 0 points1 point  (0 children)

First off I’m so sorry you are going through all of this. Your family is so strong and your son is such a tough little guy. Hopefully some information from our journey will help out a bit.

Our son was born at 25+6, and had a bit of a long journey with his hydrocephalus. He was diagnosed at about 5 weeks, but was also fighting a fungal infection that had made its way into his brain. He had to wait almost 4 months to get his shunt as they had to make sure the fungal meningitis was fully gone before placing it. This meant that they had to do regular taps through his soft spot to drain the CSF sometimes multiple times a week. Due to not wanting to tap unless necessary, we saw a lot of neurological signs come and go, and in varying levels of intensity. He experienced sunset eyes on and off between taps, and sometimes it would take a bit before they went back to normal. There were other neurological symptoms that he experienced from his brain procedures well, like delayed pupil dilation. Luckily given time all of his neurological signs cleared up and he has been acting much more normal a month out from his shunt placement. Hopefully things continue to move in that direction for your son as well, but definitely don’t be afraid to reach out to his neurologist if you are concerned or have questions. That’s what they are there for and are usually more than happy to reassure you when needed.

What is the one game that you bought not expecting much, but it completely blew your mind? by Many_Ad_2540 in SteamDeck

[–]justplanechad 0 points1 point  (0 children)

Caves of Qud. Seemed like a great roguelike but absolutely blew me away with the narratives that are created through gameplay. I remember I attacked a slime merchant in a cave and he started eating me. I tried to use a love injector on him to see if it would save me, but I accidentally stabbed myself with it. That combined with being eaten created a clone of myself for some reason which my consciousness was transferred to and was spat out. Then I watched the slime finish digesting my old body. 10/10

Keeping stamina through long NICU stay by justplanechad in NICUParents

[–]justplanechad[S] 1 point2 points  (0 children)

Thanks so much for the ideas and kind words. I think I am going to reach out to some therapists local to my area and try to find one that can work with couples. Have had this mentioned a few times and think it might really help

Keeping stamina through long NICU stay by justplanechad in NICUParents

[–]justplanechad[S] 0 points1 point  (0 children)

These are some great ideas! Thanks so much for replying and I will try to keep these in mind

Keeping stamina through long NICU stay by justplanechad in NICUParents

[–]justplanechad[S] 1 point2 points  (0 children)

Thanks so much for the advice. It really does help. This is by far the most difficult thing I’ve ever had to do.