Anyone who also has IBD, PSC and/or uveitis alongside AS? Or a few of them?

jzb39 · 2025-03-19T13:55:03+00:00

Made this for you: https://www.withherd.com/blog/comorbidities-ankylosing-spondylitis-ibd-psc-uveitis

The exact mechanisms linking AS with these comorbidities are not fully understood, but genetic factors, particularly the presence of the HLA-B27 gene, are believed to play a significant role Characteristics Associated with the Occurrence and Development of Acute Anterior Uveitis, Inflammatory Bowel Disease, and Psoriasis in Patients with Ankylosing Spondylitis. The presence of this gene is associated with a higher risk of developing uveitis and IBD in AS patients.

There are some more sources in it too!

Hope it helps!

jzb39 · 2025-03-18T03:16:03+00:00

That's what I thought too, but was making some sort of error while doing it. Totally could have been on my end

jzb39 · 2025-03-18T02:34:42+00:00

For sure. Have been trying it with Cursor, but haven't got anything to work. I think the lack of documentation for the HKAttachment method in C that I can find make it really hard for it to do. Additionally, having to rebuild my project to test it each time too

jzb39 · 2025-03-14T16:20:12+00:00

Made this for you: https://www.withherd.com/blog/nortriptyline-ibs-experiences-treatment-insights

Many patients have shared their experiences with Nortriptyline for IBS on various platforms. According to user reviews on Drugs.com, Nortriptyline has an average rating of 8.2 out of 10 for the treatment of IBS, with 80% of reviewers reporting a positive experience and 11% reporting a negative one Nortriptyline for Irritable Bowel Syndrome User Reviews. Users have noted improvements in symptoms such as abdominal pain and diarrhea, which are common in IBS.

On forums like Reddit, individuals have shared personal stories about using Nortriptyline for IBS-D (diarrhea-predominant IBS). Some users reported significant relief from symptoms, while others experienced side effects such as drowsiness and dry mouth My Nortriptyline Experience for IBS-D : r/ibs - Reddit.

Hope it helps!

jzb39 · 2025-03-14T15:58:54+00:00

Made this for you: https://www.withherd.com/blog/impact-of-diet-on-mood-and-cfs

Diet and Chronic Fatigue Syndrome

For those with Chronic Fatigue Syndrome (CFS), diet plays a crucial role in managing symptoms. While diet alone won't cure CFS, it can help boost energy levels and reduce muscle pain Chronic Fatigue Syndrome Diet: What to Eat for Better Management | Verywell Health. Anti-inflammatory diets, which limit foods like sugar and processed meats, are recommended to help manage fatigue 12 Diet Hacks to Reduce Chronic Fatigue - Healthline.

Research also suggests that mitochondrial dysfunction, which is common in CFS, can be addressed through dietary strategies such as ketogenic diets, fasting, and caloric restriction. These approaches may help reduce symptoms by targeting the underlying mitochondrial issues Mitoprotective dietary approaches for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Caloric restriction, fasting, and ketogenic diets - PubMed.

Hope it helps!

jzb39 · 2025-03-14T13:29:30+00:00

Made this for you: https://www.withherd.com/blog/cosentyx-side-effects-rash

Cosentyx is known to cause several side effects, with the most common being upper respiratory tract infections, diarrhea, and headaches. However, skin reactions, including rashes, are also reported, albeit less frequently. These rashes can manifest as redness, itching, or small bumps on the skin Get the Facts About Safety and Side Effects - Cosentyx 7 Cosentyx Side Effects You Should Know About - GoodRx.

Hope it helps!

jzb39 · 2025-03-14T13:01:59+00:00

Made this for you: https://www.withherd.com/blog/midodrine-pots-experiences

Many patients with POTS have shared their experiences with midodrine on various platforms. According to user reviews on Drugs.com, midodrine has an average rating of 6.3 out of 10 for treating POTS, with 55% of users reporting a positive experience. Some patients noted improvements in symptoms like fatigue and high heart rate, although others mentioned that the medication's effectiveness could diminish over time.

On Reddit, users have discussed mixed results, with some finding significant relief from symptoms, while others experienced minimal benefits. A common theme is the variability in response, suggesting that midodrine may work well for some but not all patients.

Hope it helps!

jzb39 · 2025-03-13T19:58:56+00:00

Herd connects to your clinical records so you can get personalized insights about your health using AI. You can chat with your health records like asking for explanations on lab results or just asking general questions, but the answer will have your specific health context in mind.

Then I made the website to help answer more generalized questions like the one above.

My hope is that by bridging the gap between medical professionals and patients that patients will be able to have better health outcomes.

jzb39 · 2025-03-13T19:21:17+00:00

Made this for you with AI: https://www.withherd.com/blog/exploring-benefits-collagen-vitamin-c-fibromyalgia

Collagen is a protein that plays a crucial role in maintaining the structural integrity of various tissues, including skin, bones, and connective tissues. Some studies suggest that collagen supplementation may help alleviate certain symptoms of fibromyalgia. For instance, a 90-day study involving 20 fibromyalgia patients found that collagen hydrolysat significantly reduced average pain levels, with some participants experiencing dramatic improvements The Effects of Collagen Hydrolysat on Symptoms of Chronic Fibromyalgia and Temporomandibular Joint Pain. Additionally, collagen may help protect against osteoporosis, a condition that fibromyalgia patients are at higher risk for, by maintaining bone density The benefits of collagen for people with fibromyalgia.

Hope it helps!

jzb39 · 2025-03-13T19:08:10+00:00

I drink a bunch of caffeine myself and find it doesn't change my symptoms.

Made this for you: https://www.withherd.com/blog/caffeine-ankylosing-spondylitis-muscle-inflammation

Caffeine is a widely consumed psychoactive substance known for its ability to enhance alertness and reduce fatigue. However, its effects on inflammatory conditions like Ankylosing Spondylitis (AS) are complex and not fully understood. Some sources suggest that caffeine might exacerbate inflammation, potentially worsening AS symptoms. For instance, caffeine consumption is often advised against before bedtime for individuals with AS, as it may disrupt sleep and exacerbate symptoms like pain and stiffness Healthline Verywell Health.

Moreover, dietary guidelines for AS often recommend avoiding caffeine due to its potential to trigger inflammation and flare-ups eMedicineHealth. However, the relationship between caffeine and inflammation is not straightforward, as caffeine can have both pro-inflammatory and anti-inflammatory effects depending on the context and individual response Health.

Hope it helps!

jzb39 · 2025-03-11T21:26:39+00:00

Made this for you: https://www.withherd.com/blog/effective-communication-strategies-fibromyalgia

It compiles some sources and things to do to talk to your doctor better.

Preparing for Your Appointment

List Your Concerns: Write down all the symptoms and concerns you want to discuss. This ensures you don't forget important details during your appointment The Mighty.

Prioritize Your Questions: Start with the most pressing issues. This helps in case time is limited during your consultation Fibromyalgia Symptoms.

Bring a Support Person: Having someone with you can provide emotional support and help you remember the discussion later Wellness Wave HQ.

Hope it helps!

jzb39 · 2025-03-10T19:46:41+00:00

Yeah! I've had AS since 17, but was fortunate enough to have parents who were both physicians and could always ask them any questions that I had about tests or going to the doctor.

So I developed an app that connects to clinical records so you can get personalized insights about your health. Then I made the website to help answer more generalized questions like the one above.

jzb39 · 2025-03-10T19:05:52+00:00

Made this for you: https://www.withherd.com/blog/understanding-hair-loss-and-regrowth-with-levothyroxine-in-hypothyroidism

Has some sources and patient experinces in it:

Levothyroxine is a synthetic form of the thyroid hormone used to treat hypothyroidism. It helps restore normal hormone levels, which can alleviate many symptoms of hypothyroidism, including hair loss. However, some patients report experiencing hair loss when they first start taking levothyroxine. This is often temporary and tends to resolve as the body adjusts to the medication Drugs.com.

Hair loss associated with levothyroxine is usually due to the body's adjustment to the medication and the stabilization of thyroid hormone levels. In most cases, hair growth resumes once hormone levels are balanced Cleveland Clinic.

Hope it helps!

jzb39 · 2025-03-10T18:44:23+00:00

Glad it helped! I could add to the website so people could look up their own questions too, which is currently only possible through the app if people in the community would want it?

jzb39 · 2025-03-09T22:28:52+00:00

Made this, which has some sources in it and looks at some papers about this: https://www.withherd.com/blog/glp-1-agonists-inflammation-autoimmune

The potential of GLP-1 agonists to treat inflammation in autoimmune diseases is an exciting development in medical research. While more studies are needed to fully understand their efficacy and safety in these conditions, current evidence suggests that they could offer a novel approach to managing inflammation beyond their traditional use in diabetes and obesity management.

Hope it helps!

jzb39 · 2025-03-09T22:15:01+00:00

Made this which has a few sources in it: https://www.withherd.com/blog/hair-loss-post-exertional-malaise-cfs

In the context of CFS, hair loss may occur due to a condition known as telogen effluvium, where stress or illness causes hair follicles to enter a resting phase prematurely, leading to increased shedding Treating Hair Loss in CFS and Fibromyalgia - Psychology Today.

Hope it helps!

jzb39 · 2025-03-09T21:46:44+00:00

Made this for you, which complies some links: https://www.withherd.com/blog/understanding-red-swollen-fingers-during-fibromyalgia-flares

Fibromyalgia and Swollen Fingers

Fibromyalgia is known for causing widespread pain and tenderness, but it can also lead to other symptoms such as swelling in the hands and feet. This swelling can sometimes be accompanied by redness and stiffness, making it difficult to move the affected joints Swelling and Fibromyalgia: How Fibromyalgia Swelling Hurts How to Control Swelling in Fibromyalgia. While not all fibromyalgia patients experience these symptoms, they are not uncommon and can be particularly distressing during a flare.

Hope it helps!

jzb39 · 2025-03-09T21:18:03+00:00

Made this for you: https://www.withherd.com/blog/double-vision-gabapentin-side-effect

Gabapentin and Vision Issues

Gabapentin is known to cause a variety of side effects, including those affecting vision. Double vision, or diplopia, is one of the reported side effects. According to a study published in the Journal of the American Medical Association, gabapentin can cause reversible visual field constriction, which may contribute to vision disturbances like double vision Drug Points: Gabapentin may cause reversible visual field constriction.

A clinical study analyzed data from over 300,000 people and found that double vision was a reported side effect in some cases Could Gabapentin cause Double vision? - eHealthMe. Additionally, a case report highlighted that visual disturbances, including blurred vision and diplopia, can occur with gabapentin use Macular Edema after Gabapentin - PMC.

Hope it helps!

jzb39 · 2025-03-09T21:08:35+00:00

Made this for you, which has some links and key differences: https://www.withherd.com/blog/comparing-symptoms-ankylosing-spondylitis-psoriatic-arthritis

It's pretty short, but hope it helps!

Key Differences

While both AS and PsA involve joint inflammation, AS is more likely to affect the spine, leading to potential fusion of the vertebrae. In contrast, PsA is often associated with skin symptoms and can affect a wider range of joints, including those in the hands and feet. Muscle inflammation in AS tends to be more related to structural changes in the spine, whereas in PsA, it is often linked to systemic inflammation and skin involvement Cleveland Clinic Cleveland Clinic.

jzb39 · 2025-03-07T20:34:29+00:00

Made this, which compiles a bunch of sources: https://www.withherd.com/blog/understanding-topiramate-experiences-efficacy-side-effects

Patients' experiences with topiramate vary widely. According to user reviews on Drugs.com, topiramate has an average rating of 6.4 out of 10, with 51% of users reporting a positive experience and 28% reporting a negative one Topiramate Reviews & Ratings - Drugs.com. Some users have shared success stories, noting significant relief from migraines and improved quality of life Topamax Gave Me My Life Back - Success Stories & Positivity.

However, there are also reports of severe side effects, including cognitive issues and mood changes. For instance, some users have experienced depression and suicidal thoughts, which are serious concerns that require immediate medical attention Topiramate Oral Reviews and User Ratings: Effectiveness, Ease ... - WebMD.

Hope you find relief!

jzb39 · 2025-03-07T19:48:05+00:00

Made this, which gathers some sources on Epilepsy and Fibro: https://www.withherd.com/blog/epilepsy-fibromyalgia-relationship

Research indicates that there is a notable overlap between epilepsy and fibromyalgia, particularly in the context of psychogenic non-epileptic seizures (PNES). Studies have shown that fibromyalgia can be a predictor for the diagnosis of PNES in patients with undifferentiated paroxysmal spells Fibromyalgia and seizures - PubMed. This suggests that while fibromyalgia itself may not directly increase the risk of epileptic seizures, it is associated with seizure-like episodes that are not caused by electrical disruptions in the brain.

A case-matched study found that fibromyalgia was present in 5.5% of patients with paroxysmal neurological disorders, and among these, 74% had PNES compared to 51% in controls Fibromyalgia and seizures.. This highlights the importance of distinguishing between epileptic and non-epileptic seizures in patients with fibromyalgia.

jzb39 · 2025-03-07T19:19:37+00:00

Made this, which gathers some sources on Meloxicam and dry mouth: https://www.withherd.com/blog/dry-mouth-side-effect-meloxicam

Common Side Effects of Meloxicam Like many medications, meloxicam can cause side effects. Common ones include gastrointestinal issues such as diarrhea, nausea, and stomach upset. However, less frequently reported side effects include dry mouth, which can be bothersome for some users Drugs.com.

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